Hey trina
Chris here
Im 27 and have a 5yr old girl,single
Ive got rrms and over past 12 months have had no symptoma
Luckily
Currently on copaxone aswell
I have had ms for 5 and half yrs now
Chris here
Im 27 and have a 5yr old girl,single
Ive got rrms and over past 12 months have had no symptoma
Luckily
Currently on copaxone aswell
I have had ms for 5 and half yrs now
09 Nov 2012 at 2:14PM
Hi chris
Thanks for the reply, I also have rrms. I'm on avonex. Currently relapsing, but they won't put me on steroids due to the type of relapse. I'm 5 months into it so i shouldn't be much longer.
Do you manage to work ok?
Thanks for the reply, I also have rrms. I'm on avonex. Currently relapsing, but they won't put me on steroids due to the type of relapse. I'm 5 months into it so i shouldn't be much longer.
Do you manage to work ok?
09 Nov 2012 at 6:55PM
Work seems to be ok so far,get quite tired lata on in the afternoons but thats all.
Used to play football but gave that up due to haveing like jelly like legs after the heat i think
I only go to the hospital now every 12 months
When i first started on rebiff when 1st diagnosed my daughter used to do injections for me,jus to get her involved with it, these days she lost intefest though i do explain things to her x
Used to play football but gave that up due to haveing like jelly like legs after the heat i think
I only go to the hospital now every 12 months
When i first started on rebiff when 1st diagnosed my daughter used to do injections for me,jus to get her involved with it, these days she lost intefest though i do explain things to her x
Chris_Travis. I have serious concerns about you letting your daughter (aged 5!) do your injections!
I am a little gob smacked to be honest!
What are you thinking?
I am an oldie (41) and dont usually come on the young persons forum but this has shocked me!!!!!!!!
I have 2 children and i don't feel this is an acceptable thing to do. My kids know i have ms and it has been explained carefully to them. They know i inject Rebif.
I dont inject in front of them but they have walked in the room when i have been doing it. I have not hidden anything from them as i feel it is important that they understand.
Your daughter should not be involved in this way.
I AM MORTIFIED!!!!!!!!
Teresa
I am a little gob smacked to be honest!
What are you thinking?
I am an oldie (41) and dont usually come on the young persons forum but this has shocked me!!!!!!!!
I have 2 children and i don't feel this is an acceptable thing to do. My kids know i have ms and it has been explained carefully to them. They know i inject Rebif.
I dont inject in front of them but they have walked in the room when i have been doing it. I have not hidden anything from them as i feel it is important that they understand.
Your daughter should not be involved in this way.
I AM MORTIFIED!!!!!!!!
Teresa
10 Nov 2012 at 2:17PM
To be honest if i wanted ur opinion id ask for it
She is involve so she understands
+ its the machine aswell not the actual needle holdibg so keep ur opinion to urself
Thanks
She is involve so she understands
+ its the machine aswell not the actual needle holdibg so keep ur opinion to urself
Thanks
11 Nov 2012 at 12:18PM
O dear, do things like this happen a lot on this site?
I'm assuming you don't let her hold the injection on her own etc! Or walk around with it! Lol
I'm too on a machine, I don't know whether I'd let my son do it, but he's not old enough to understand yet. If he was old enough and took an interest in, it's something I may have to consider and judge at the time.
Hope you're keeping well anyway.
I'm assuming you don't let her hold the injection on her own etc! Or walk around with it! Lol
I'm too on a machine, I don't know whether I'd let my son do it, but he's not old enough to understand yet. If he was old enough and took an interest in, it's something I may have to consider and judge at the time.
Hope you're keeping well anyway.
11 Nov 2012 at 12:40PM
She only helped me when it was the machine i was usig
Jus this nosey woman gettin involved,
Needs keep her opinions to herself.haha
Apart from her annoyin me ye im fine and feel fine,jus tired late afternoons
Hw r u?
Jus this nosey woman gettin involved,
Needs keep her opinions to herself.haha
Apart from her annoyin me ye im fine and feel fine,jus tired late afternoons
Hw r u?
12 Nov 2012 at 9:05PM
Hi I am 26 and got diagnosed in 2009. Symptoms were tingling
in hand and feet and an electric shock on neck flexion. After being
diagnosed I realised that tiredness must have been something to do with
it. Since I was diagnosed I have got married and had a baby who is now
11 months. I took pregabalin at first but I think the symptoms just
resolved by itself and pregabalin was just making me more tired. I now
don't take anything for it and am enjoying life! X
24 Nov 2012 at 9:56PM
i'm joanne. 29 at dx now 30. not been given a type but it's
all weird n stupid. cos it comes from no where! 7 months ago i ran 5k 3
times a week.!
25, dx in MAR12 but held off to have lumbar puncture done -
results yday +ve so starting Avonex. they can start me before xmas but
getting married 6wk on sat to starting a couple days after i'm home from
honeymoon in Jan... anyone else on Avonex? symptoms? weight gain? x
01 Dec 2012 at 8:07PM
Hi everyone,
I’m 28 and was diagnosed about 6 weeks ago now. I don’t really know how bad it is but I have quite a few lesions in my brain and one that’s fairly big on T7/T8 of my spine.
So far I have experienced the tiredness and have had tingling in my hands but mainly on my left side and numbness in both my legs.
Have any of you had numbness in your face?! It’s the same feeling that you get after having a filling at the dentist, when the numbness is wearing off.
Thanks
Jem x
I’m 28 and was diagnosed about 6 weeks ago now. I don’t really know how bad it is but I have quite a few lesions in my brain and one that’s fairly big on T7/T8 of my spine.
So far I have experienced the tiredness and have had tingling in my hands but mainly on my left side and numbness in both my legs.
Have any of you had numbness in your face?! It’s the same feeling that you get after having a filling at the dentist, when the numbness is wearing off.
Thanks
Jem x
02 Dec 2012 at 12:01AM
Hi Jemma,
I've not had it in my face, but I had a spinal cord relapse on my T4 area and that felt the exact same. It hurts but is numb at te same time! It's a very strange feeling. Your explanation is how I explained mine to the MS nurse.
Have you mentioned this to your nurse or dr yet?
Trina xx
I've not had it in my face, but I had a spinal cord relapse on my T4 area and that felt the exact same. It hurts but is numb at te same time! It's a very strange feeling. Your explanation is how I explained mine to the MS nurse.
Have you mentioned this to your nurse or dr yet?
Trina xx
02 Dec 2012 at 2:54PM
Hi Trina,
I have an appointment with my gp on Tuesday so will mention it then. I don't have a MS nurse yet, I suppose i'll get one soon.
Don't really know what to think of it all. I've been married almost 6 months now and we were thinking about starting a family before. But now I don't know what to do or even if I'm going to be any use as a parent. Pretty much sucks!!!
Jem x
I have an appointment with my gp on Tuesday so will mention it then. I don't have a MS nurse yet, I suppose i'll get one soon.
Don't really know what to think of it all. I've been married almost 6 months now and we were thinking about starting a family before. But now I don't know what to do or even if I'm going to be any use as a parent. Pretty much sucks!!!
Jem x
02 Dec 2012 at 6:29PM
Jem,
I was diagnosed at 23 and I felt the exact same, I married at 21. I'm now 27 with a 22 month old.
How I figured is that if I was to have a family, best to start sooner instead of my mid 30s, which was my original plan. Im not going to lie, it can be difficult at times, but the sure start centres are a blessing and really help out. I wouldn't change my son or decision for the world.
But on the same note we've made a decision, because of my MS not to have any more.
Now every ones MS is different and your decisions have to be yours based on your own personal circumstances, but I personally don't think having MS should stop you having a family. Discuss it with your husband, GP and MS nurses (when you get one) and see if that helps aid your decision.
I hope this helps.....
Trina xxx
I was diagnosed at 23 and I felt the exact same, I married at 21. I'm now 27 with a 22 month old.
How I figured is that if I was to have a family, best to start sooner instead of my mid 30s, which was my original plan. Im not going to lie, it can be difficult at times, but the sure start centres are a blessing and really help out. I wouldn't change my son or decision for the world.
But on the same note we've made a decision, because of my MS not to have any more.
Now every ones MS is different and your decisions have to be yours based on your own personal circumstances, but I personally don't think having MS should stop you having a family. Discuss it with your husband, GP and MS nurses (when you get one) and see if that helps aid your decision.
I hope this helps.....
Trina xxx
04 Dec 2012 at 6:41PM
Hi Trina,
Thank you for your comments they have really helped.
It's nice to be able to speak with other people going through the same thing.
Jem xx
Thank you for your comments they have really helped.
It's nice to be able to speak with other people going through the same thing.
Jem xx
11 Dec 2012 at 2:16AM
Hi, I'm Nicole. I'm 21 & was diagnosed just befofe my 21st birthday this year.
I don't know anyone else with MS who are young, yet close to my age.
Xx
I don't know anyone else with MS who are young, yet close to my age.
Xx
Hi,
I am Hazel and have been diagnosed on the 07/12/12. I am 29 years old. I went and meet the Neuro Nurse yesturday for the first time and I was crying my eyes out because someone came straight out of her room in a wheel chair. That was unlucky but she had other issues that put her in the chair so I calmed down a bit. The nurse told me I had RRMS and drew a picture to explain how MS works. It is very fasinating how it all works, wish I could see it under a microscope. Anyway, I'm to be put on a medcine which "I can't remeber the name" but it's being put on a drip for 2 hours every month at the hospital. I get my med start in January and hope I get get no side affects.
Please excuse any spelling mistakes "I can't spell very good"
Hazel x
I am Hazel and have been diagnosed on the 07/12/12. I am 29 years old. I went and meet the Neuro Nurse yesturday for the first time and I was crying my eyes out because someone came straight out of her room in a wheel chair. That was unlucky but she had other issues that put her in the chair so I calmed down a bit. The nurse told me I had RRMS and drew a picture to explain how MS works. It is very fasinating how it all works, wish I could see it under a microscope. Anyway, I'm to be put on a medcine which "I can't remeber the name" but it's being put on a drip for 2 hours every month at the hospital. I get my med start in January and hope I get get no side affects.
Please excuse any spelling mistakes "I can't spell very good"
Hazel x
18 Dec 2012 at 8:59PM
Hi, I'm 27, diagnosed in October. First attack in April,
numbness on right side which resolved after about 2 months. No symptoms
since then except occasional tingling and slight difference in feeling
of some fingers. I have felt very tired for last few years but thought I
was just pushing myself too hard in my job, maybe the fatigue is also
due to ms. Haven't really got my head around diagnosis, some days I'm ok
and others I'm a mess, crying at any opportunity. Trying 2 be positive
but finding this all very difficult, especially the uncertainty of my
future. Would appreciate a chat anytime :-)
22 Dec 2012 at 1:38PM
Hi everyone. New to the forum but so interesting to hear how
people are going through the same as me. Im 23yrs old and was diagnosed
in may 2011. Its tough to get my head around it all but managing well. I
gave birth to my beautiful daughter 11wks ago and have struggled since
then with this relapse. Steroids not worked and now having plasma
exchange. Noticed slight improvements but may take few wks. Anyone else
had problems after having a baby? And anyone had plasma exchange?
Thanks
Holly
Thanks
Holly
Hi
I have been diagnosed for 8 months and am 31. I don't know anyone around my age with MS and haven't told many people I know ( I don't really mind if people know but can get a bit tearful when talking about it).
This site has been really useful for advice. Thanks, everyone!
Fade
I have been diagnosed for 8 months and am 31. I don't know anyone around my age with MS and haven't told many people I know ( I don't really mind if people know but can get a bit tearful when talking about it).
This site has been really useful for advice. Thanks, everyone!
Fade
10 Feb 2013 at 10:18PM
Hey.... I have rrms going well over be 30 this year just had another attack....gutted
10 Feb 2013 at 11:19PM
Hey, I was diagnosed at 19, im now 21, nicole your not alone :)
Hi,
Im Darren and Im 27 and 364 days old (hint hint). I have had ms since last april and was in limbo for 6 months. I think i was dx quickly because my first attack was pretty bad, and my neuro believes the sooner you start dmd's the better.
Iam at the mo taking avonex once a week pens. Done six so far.
Im Darren and Im 27 and 364 days old (hint hint). I have had ms since last april and was in limbo for 6 months. I think i was dx quickly because my first attack was pretty bad, and my neuro believes the sooner you start dmd's the better.
Iam at the mo taking avonex once a week pens. Done six so far.
13 Feb 2013 at 11:22PM
H everyone............im cat, im 31...diagnosed not far off 6
years ago.......still humming the rocky tune to myself as i walk up the
stairs so i must be ok.
Im really surprised at how many people have responded in this age group.....maybe we should have our own 25-35 room??
Happy to chat anytime :-) xx
Im really surprised at how many people have responded in this age group.....maybe we should have our own 25-35 room??
Happy to chat anytime :-) xx
13 Feb 2013 at 11:24PM
oops.....20-35 sorry about that x
13 Feb 2013 at 11:25PM
Happy birthday!
Hi,
Im Darren and Im 27 and 364 days old (hint hint). I have had ms since last april and was in limbo for 6 months. I think i was dx quickly because my first attack was pretty bad, and my neuro believes the sooner you start dmd's the better.
Iam at the mo taking avonex once a week pens. Done six so far.
Im Darren and Im 27 and 364 days old (hint hint). I have had ms since last april and was in limbo for 6 months. I think i was dx quickly because my first attack was pretty bad, and my neuro believes the sooner you start dmd's the better.
Iam at the mo taking avonex once a week pens. Done six so far.
02 Mar 2013 at 2:28PM
Hi Rebecca, I'm 32 and was dx in 2008 at 28. Here if you wanna chat xxx
28 Mar 2013 at 12:03AM
Hi rebecca
i am newly diagnosed this year and i am 26.would love to chat as just coming to terms with it myself.
X
i am newly diagnosed this year and i am 26.would love to chat as just coming to terms with it myself.
X
01 Apr 2013 at 11:25PM
Hey everyone,
I was diagnosed 4 years ago at the age of 19! I am currently 22 and a medical student...I wanted to become more active in the MS World...I wanted to talk to anyone that has been active in research or just generally active in MS causes, so to speak!
Look forward to hearing from you guys! :-) Also if anyone wants to chat about anything, then feel free to message me! :-)
Rosh x
I was diagnosed 4 years ago at the age of 19! I am currently 22 and a medical student...I wanted to become more active in the MS World...I wanted to talk to anyone that has been active in research or just generally active in MS causes, so to speak!
Look forward to hearing from you guys! :-) Also if anyone wants to chat about anything, then feel free to message me! :-)
Rosh x
02 Apr 2013 at 11:25PM
Hi rosh
well done you for going through medical school! I was a med student till six months ago when i had to stop.it wasnt the ms so much as i was awaiting my diagnosis, but the med school really didnt support me. I wish you the best of luck :-) i was in a clinical trial for ms in london.msg me if interested :-)
Chocolat-e-fudge
well done you for going through medical school! I was a med student till six months ago when i had to stop.it wasnt the ms so much as i was awaiting my diagnosis, but the med school really didnt support me. I wish you the best of luck :-) i was in a clinical trial for ms in london.msg me if interested :-)
Chocolat-e-fudge
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