I'm a wee bit stuck, where do I go now, I believe I have kyphosis now, I haven't quit yet

I was diagnosed with MS in the year 2000 a few years later I started to have doubts, and started my own investigation into my condition, and throw the MS book out I had to,..............I've always known that there was wrong with my neck. I believed a misaligned Atlas was my issue. It was all starting to make sense. For the next 10 years or more I managed my own mobility, my surroundings became my gym. I had to balance my head over my hips. finally my dexterity my finer motor skills were improving, I was happy and impressed. ............Then my manual chair was accidentally scrapped, and then there were some changes handling wise with my carers that my OT suggested, again not in my interest, as to my, unique to me exercise routine. Since being in my electric chair 14 hours a day pressure on my back pushing my head and neck forward.. I then started to display symptoms indictive of MS that I NEVER had before These included # shaky head # shaky left hand # neck pain # sharp shooting face pain jaw pain, and back of tongue pain # my hands have changed shape # my wrists have twisted # loss of feeling in groin and intimate area # my legs won't straighten # rushing noise in ear my body through no fault of MS or mine I was starting to carefully put my right hand in cup handle. it just hangs now. I was getting small positives in many ways, I also feel that I have functional scoliosis as chest twists right and now because I curve so far forward now badly affecting my hands. Attitudes towards MS have to change, there must be others like me, if we deny denial we learn nothing. thanx for reading Fiona Marshall