When to give up getting a Dx?
28 Sep 2013 at 12:09PM
I have been ill for nearly two years now. Not any closer to
getting a Dx. I have had 2 x MRI's brain and c spine and now a lower
back one, no lesions found but a bulging disc at L4/L5 Gp says this is
not causing my bladder or numbness problems.
Sure when I go back to see Nuero he will discharge me. Last time I saw him first he said it wasn't MS, but then wanted to do another MRI to look for MS.
My sister has MS with no lesions. Gp thinks it is MS and suggested I ask for a LP, Nuero said even if LP was positive he would not give me a Dx of MS unless I had more major symptoms!
I have unexplained eye problems- under eye clinic at local hospital.
Numbness, pins and needles, nerve pain, bladder problems, stiff and heavy legs. Balance and memory problems. Brisk reflexes. And fatique.
Last time I saw Nuero 3rd visit, when I asked what was wrong, he said I did not need a label as they could treat symptoms!
Starting to get stressed about Nuero visit in 6 weeks, and wondering if I should stop trying to get a Dx and just get on with my life! Or should I find an MS specialist? My Gp said she would refer me, but understand they do not have to take referral?
Help
Sure when I go back to see Nuero he will discharge me. Last time I saw him first he said it wasn't MS, but then wanted to do another MRI to look for MS.
My sister has MS with no lesions. Gp thinks it is MS and suggested I ask for a LP, Nuero said even if LP was positive he would not give me a Dx of MS unless I had more major symptoms!
I have unexplained eye problems- under eye clinic at local hospital.
Numbness, pins and needles, nerve pain, bladder problems, stiff and heavy legs. Balance and memory problems. Brisk reflexes. And fatique.
Last time I saw Nuero 3rd visit, when I asked what was wrong, he said I did not need a label as they could treat symptoms!
Starting to get stressed about Nuero visit in 6 weeks, and wondering if I should stop trying to get a Dx and just get on with my life! Or should I find an MS specialist? My Gp said she would refer me, but understand they do not have to take referral?
Help
Hello there x Bless you - your plight sounds so very familiar! To me & many others I'm afraid!
I've been going through it for a few years now with test after test always coming back abnormal - but always inconclusive! Everything else pretty well ruled out so MS is a probable - frustrating I know!
So sick of hospital visits and tests - I often ask myself that question these days - do I need to keep persuing that elusive and definitive label?Eespecially since the drugs they have given me have been awesome and very much keep my symptoms at bay?
So - I have no answer for you I'm afraid! I've just got into the mindset of whatever will be will be and it'll all pan out in the end xxxjenxxx
I've been going through it for a few years now with test after test always coming back abnormal - but always inconclusive! Everything else pretty well ruled out so MS is a probable - frustrating I know!
So sick of hospital visits and tests - I often ask myself that question these days - do I need to keep persuing that elusive and definitive label?Eespecially since the drugs they have given me have been awesome and very much keep my symptoms at bay?
So - I have no answer for you I'm afraid! I've just got into the mindset of whatever will be will be and it'll all pan out in the end xxxjenxxx
29 Sep 2013 at 3:49PM
I'm not going to be much help other than to say that not
having a name for what's going on in your body is very frustrating, Try
and stay calm when you see neuro, explain calmly that you appreciate
having your symptoms treated, but that him using the word symptom makes
you think that he thinks they're symptoms of a condition x
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