Memory problems
25 Sep 2013 at 7:37PM
Does anyone else have problems with their memory? I was
'evaluated' by a neuro-psychologist. He said there was nothing wrong
with my memory because I could recall a few nouns in a paragraph he'd
just read to me.. He didn't tell me why I have started to forget simple
things that I usually do everyday. Things like; Why I have started to
forget to flush the toilet, or why I can make a cup of coffee and then
walk out of the kitchen without it. Or why I have to 'preview' posts 4
or 5+ times before it makes sense to anyone else.
25 Sep 2013 at 7:56PM
Hi Juliet, yes i have memory problems, things like names,
what day it is, what i was about to say just a few seconds ago,
sometimes even things like how to use my mobile phone or the TV remote.
it probably happens about 2 or 3 times day. I don't have a dx yet but
it is one of things that really bothers mee, can be very embaressing at
work
25 Sep 2013 at 8:03PM
I had to wait 2.5 years before my diagnosis was confirmed,
and I know others that waited longer. 3 words. Critical illness
cover. I wish I'd known! I have problems with days of the week, and
timelines also, I keep thinking its the beginning of the year. I'd
always put that down to not being able to work for so long, that
weekends are just like any other day :-( I really resent not
apprecisating Friday afternoons/evenings now :-(
25 Sep 2013 at 8:41PM
Hi apart from pain, memory is my biggest problem and it does
cause lots of problems in my daily life. I forget numerous things
through the day, including taking medication even though I have an
alarmed tablet machine. Sometimes cannot remember how to use the phone
or switch tv on( like Bunnythecat above) and yet I can remember things I
wouldn't expect to.
I have a recently had an Occupational Therapist test me on my memory and she said it was normal (if only).
One of the most annoying things is when people say "Oh , but I always do that" and you know that it is not normal for you.
I have a recently had an Occupational Therapist test me on my memory and she said it was normal (if only).
One of the most annoying things is when people say "Oh , but I always do that" and you know that it is not normal for you.
Hiya
I get the sort of memory problems you mention and I had it confirmed by a neuro psychologist when I had a full cognitive test done. She said it was MS causing it.
I can forget the directions to a place I go to all the time, then suddenly remember again.
I can make a cup of tea, forgetting to boil the kettle or make one, sit down and think I fancy a cup of tea so go an make one, sit down, think I fancy a cup of tea etc....I only realise that I've got 6 cups of tea all sitting there on the counter, when I've run out of cups! All still hot too!!!
I also forget words and names 1/2 way though talking.
I have to shop with a 2 lists, 1 of things I need and 1 of things I don't need, so when I have that nagging thing in my head telling oh I NEED that and must have forgotten to put it on the need list, I can check the don't need list to make sure I'm not going to end up with 6 jars of coffee a enough toilet rolls to last a lifetime.
It's a pain in the bum but you do get a bit used to it and find ways to cope, as do the people around you.
Sue x
I get the sort of memory problems you mention and I had it confirmed by a neuro psychologist when I had a full cognitive test done. She said it was MS causing it.
I can forget the directions to a place I go to all the time, then suddenly remember again.
I can make a cup of tea, forgetting to boil the kettle or make one, sit down and think I fancy a cup of tea so go an make one, sit down, think I fancy a cup of tea etc....I only realise that I've got 6 cups of tea all sitting there on the counter, when I've run out of cups! All still hot too!!!
I also forget words and names 1/2 way though talking.
I have to shop with a 2 lists, 1 of things I need and 1 of things I don't need, so when I have that nagging thing in my head telling oh I NEED that and must have forgotten to put it on the need list, I can check the don't need list to make sure I'm not going to end up with 6 jars of coffee a enough toilet rolls to last a lifetime.
It's a pain in the bum but you do get a bit used to it and find ways to cope, as do the people around you.
Sue x
Hi
Yes....I haven't actually admitted this to anyone before now, but a couple of weeks ago, whilst I was particularly unwell, I forgot my own name. I was on the phone giving details and it just went. I could remember my date of birth and my maiden name, which I haven't used for 24 years but not my forename or surname. I was and still am, mortified.
Catherine
Xx
Yes....I haven't actually admitted this to anyone before now, but a couple of weeks ago, whilst I was particularly unwell, I forgot my own name. I was on the phone giving details and it just went. I could remember my date of birth and my maiden name, which I haven't used for 24 years but not my forename or surname. I was and still am, mortified.
Catherine
Xx
25 Sep 2013 at 9:12PM
I totally get being annoyed about any comments people make
thinking they're being empathy empathic. Grrrr just thinking about It
25 Sep 2013 at 9:19PM
As well as setting myself an alarm to remind me to take my
meds, I have to text my brother within an hour of taking them. Last
year, I ended up in A & E when I forgot my epilepsy meds.
I have to have my shopping delivered (I live alone), so I order what I need online a week early, so that I have plenty of time to change it during the week.
I am so glad I did this post, it makes the world of difference knowing I'm not alone with this.
Juliet xxx
I have to have my shopping delivered (I live alone), so I order what I need online a week early, so that I have plenty of time to change it during the week.
I am so glad I did this post, it makes the world of difference knowing I'm not alone with this.
Juliet xxx
25 Sep 2013 at 9:22PM
I am the same (no dx). The other day I decided I wanted a cup
of tea went to pick my old cup off the table to take through and
realised it waa a full cup of hot tea no recollection of making it.
Permanently wander round looking for stuff but can't think what it is
etc. Oh and MrsH I have forgotten my name too
Axx
Axx
26 Sep 2013 at 9:27AM
Hi,
Yes i have memory problems too..taking my meds is a joke, no alarm, no tablets!!
I have a large lesion in my juxcortical region (not sure if spelt right?) and my neuro said this accounts for the memory issues!
The brain cant rewire itself so it has to make/find a new area to put memory in.So i guess it will be a while before my hubby quits yeeling at me coz i forgot to turn the pasta pot on for dinner, or wheres the bloody coffee i made that i didn't even start! lol
Oh to be my old very capable self again, na this is so much more fun! The new me maybe a blonde idiot and forgetful and shaky and twitchy etc....but i laugh my a** off most days just becauset the stuff i do is so funny. Oh the best one is putting milk in my kettle coz i was sure thats where the cup was hahahaha!!!
What was i talking about again?......
Lea xx
Yes i have memory problems too..taking my meds is a joke, no alarm, no tablets!!
I have a large lesion in my juxcortical region (not sure if spelt right?) and my neuro said this accounts for the memory issues!
The brain cant rewire itself so it has to make/find a new area to put memory in.So i guess it will be a while before my hubby quits yeeling at me coz i forgot to turn the pasta pot on for dinner, or wheres the bloody coffee i made that i didn't even start! lol
Oh to be my old very capable self again, na this is so much more fun! The new me maybe a blonde idiot and forgetful and shaky and twitchy etc....but i laugh my a** off most days just becauset the stuff i do is so funny. Oh the best one is putting milk in my kettle coz i was sure thats where the cup was hahahaha!!!
What was i talking about again?......
Lea xx
Hi,
I believe Coconut Oil is good for the memory. I read somewhere that Alzheimers patients had good results just from taking a teaspoon of it morning and night.
It really does seem to be a wonder food. I use it for frying/roasting, plus will have a teaspoon every now and then as it's supposed to be good for the bladder and helps heal a leaky gut. Expensive, though. A jar is around £7 I think, depending on the brand you buy.
Heather
I believe Coconut Oil is good for the memory. I read somewhere that Alzheimers patients had good results just from taking a teaspoon of it morning and night.
It really does seem to be a wonder food. I use it for frying/roasting, plus will have a teaspoon every now and then as it's supposed to be good for the bladder and helps heal a leaky gut. Expensive, though. A jar is around £7 I think, depending on the brand you buy.
Heather
26 Sep 2013 at 9:42AM
Sorry, but I had to laugh also.
26 Sep 2013 at 9:51AM
I forgot to preview ... lol
I was just going to say thank you to Lea, because I needed a laugh this morning. Sudden dizzy spell, and very grateful for the boxes I've placed around the flat, as a buffer for falling.
Also, it's great to know the specific lesion I can at least Google to see what else it affects. I get very generalised responses from my neurologist when I ask about my MS or my epilepsy.
Coconut oil is supposed for weight loss as we'll. My daughter bought some for me when I started putting on weight from the steroids. I keep forgetting to take it though :-)
Juliet xxx
I was just going to say thank you to Lea, because I needed a laugh this morning. Sudden dizzy spell, and very grateful for the boxes I've placed around the flat, as a buffer for falling.
Also, it's great to know the specific lesion I can at least Google to see what else it affects. I get very generalised responses from my neurologist when I ask about my MS or my epilepsy.
Coconut oil is supposed for weight loss as we'll. My daughter bought some for me when I started putting on weight from the steroids. I keep forgetting to take it though :-)
Juliet xxx
It is so nice to read that i am not alone with memory loss, i
hide my memory loss very well. but recently haven't been able to.
People can ask me to do things and i won't remember within less than a
minute what they wanted me to do, and then have to go back and ask them
what it was i was supposed to do. I put things in the fridge that don't
belong there, cutlery was one. Ive left the shower on and then 1/2
later i can hear something in the bathroom and remember i was supposed
to have a shower.
oops, deleted what i was writing. damn what was it again...oh ya. i was out shopping the other day, and i met someone whom i recognized but for the life of me couldn't remember his name. I've known him for years. I forget my name too. Short term memory seems to be worse. I am always phoning my neighbour up to check if i have locked the front door.
My kids think its great, when i have taken something off of them. i'll ask them "didn't i take that off you" and they always say "no"....haha They are using it to there advantage,,,, but i write it down now. i have lists of things i need to do, lists of things i've done, so i don't redo them. Birthdays i am forgetting aswell, even if they are written down. Oh and i hide things from the kids all the time like the tv remote....and i forget where i put it....i've stopped hiding things now....it was causing more trouble than its worth....it's bonkers in my house.....haha.
Seeing the ms nurse in a few weeks and i am going to mention it to her. i have put all my questions in my mobile, hope i don't loose mobile. Interesting that everyone seems to know where their lesions are, question to put in my mobile. I have no clue.
jennifer x
oops, deleted what i was writing. damn what was it again...oh ya. i was out shopping the other day, and i met someone whom i recognized but for the life of me couldn't remember his name. I've known him for years. I forget my name too. Short term memory seems to be worse. I am always phoning my neighbour up to check if i have locked the front door.
My kids think its great, when i have taken something off of them. i'll ask them "didn't i take that off you" and they always say "no"....haha They are using it to there advantage,,,, but i write it down now. i have lists of things i need to do, lists of things i've done, so i don't redo them. Birthdays i am forgetting aswell, even if they are written down. Oh and i hide things from the kids all the time like the tv remote....and i forget where i put it....i've stopped hiding things now....it was causing more trouble than its worth....it's bonkers in my house.....haha.
Seeing the ms nurse in a few weeks and i am going to mention it to her. i have put all my questions in my mobile, hope i don't loose mobile. Interesting that everyone seems to know where their lesions are, question to put in my mobile. I have no clue.
jennifer x
26 Sep 2013 at 2:54PM
I started making notes of questions I wanted to ask Jennifer. Then I kept forgetting to ask them though ... haha
Now I email them to my MS Nurse, so we can talk about them at my next appointment. She forgot last time also though ...
Now I email them to my MS Nurse, so we can talk about them at my next appointment. She forgot last time also though ...
26 Sep 2013 at 3:06PM
This thread has made me smile after not a very nice week so
far!! It is interesting (and a little amusing!!) to read all of our
forgetfullness!! I am constantly forgetting words for things and try to
explain what I mean but people just look at me like i'm mad! I teach 4
year olds and they have to help me sometimes, which isn't great when
trying to teach new vocabulary or a new concept!! I have to write the
date on every piece of work but constantly forget it and end up asking
my assistant about 100 times a day. I forget what i'm saying in the
middle of a sentence and put things down and forget what i was
doing...nightmare during a busy day! Have yet to forget my name tho! 
i've done the same, but forget. emailing them before hand
sounds like a great idea. i'm going to write that down to. my partner
can't come with me next time, so i have my sister in law and my two kids
want to come to ask questions aswell.
26 Sep 2013 at 3:29PM
I'd love for someone to come with me, but my daughter lives
in Canada, and I always forget to ask my brothers until it's too late.
Speaking of which, I'd better email to see if one of them can come to my
next appointment, on Monday! Doh!
26 Sep 2013 at 3:56PM
This is a classic MS symptom. I have had "cognitive issues"
(as my neuro-psychologist calls it) for about 3 years now.....I think.
She has done some tests to find out how bad it is:
I recommend anyone who has this to see their GP and ask if there is someone locally in the NHS who does CBT - Cognitive Behavioural Therapy i think it stands for. This will cover the tests that I have outlined above.
Best of luck everyone,
Dav......dammit i've forgotten ny name now!
- The first one was to copy a random shape that looked like a house with lots of extra bits attached to it and she would see how close I was to the original (even allowing for how bad I am at drawing). She then repeated this test 3 times over the next half-an-hour, after doing the other tests, to see how much I remembered about the shape.
- The next thing was she read out a list of 12 words and I then had to repeat them back to her. This test was done twice more over the next half-an-hour or so.
- The 3rd test was she read a list of about 16 words that I had to group into 4 groups. So there might have been 4 tools, 4 fruits, 4 of something else and 4 of something else.
I recommend anyone who has this to see their GP and ask if there is someone locally in the NHS who does CBT - Cognitive Behavioural Therapy i think it stands for. This will cover the tests that I have outlined above.
Best of luck everyone,
Dav......dammit i've forgotten ny name now!
26 Sep 2013 at 8:01PM
That sounds similar to the tests I've had Dave, but they're
designed to analyse. You shouldn't feel that you've passed or failed
them. If you've come away with that impression, then your psychologist
needs to go back to school.
26 Sep 2013 at 9:32PM
I don't have much faith in psychometric tests for any
purpose. I refused to use them to define my staff when I was working.
The psychologist who did mine was an a***. I shouldn't tar all
psychologists with the same brush.
27 Sep 2013 at 12:27AM
My memory for faces and names has been going downhill for a
while but since having my 'episode' I often lose words during sentences,
and can't always explain myself properly. I also forget times more than
I used to (eg hospital appointments).
I don't have much faith in psychometric tests for any purpose. I refused to use them to define my staff when I was working. The psychologist who did mine was an a***. I shouldn't tar all psychologists with the same brush.
There is nothing wrong with psychometric tests. The problems come when people try to use one test to select for a particular ability. Some of the commercial Occupational Psychologists do this all the time.
I once had the opportunity to run a batch of personality tests on some sections of a (sporting) National Squad. The body that picked up the tab thought that they would find out how to choose the potential top performers. My report said that this was not possible, but that the tests could be used to determine the best way to coach each individual, when that individual had already shown great potential. Some people were not happy with these findings (surprise, surprise).
Geoff
27 Sep 2013 at 11:28PM
hi
a good few years before i had the pleasure of meeting ms
i was working in a school and at staff meetings i could never remember crucial bits of info.
so i bought some gingko biloba and told everyone in the staff room
at the next staff meeting someone asked me how i was doing with the gingko biloba and i had to confess that i couldnt remember where i had put it!
it gave them all a chuckle though!
carole x
a good few years before i had the pleasure of meeting ms
i was working in a school and at staff meetings i could never remember crucial bits of info.
so i bought some gingko biloba and told everyone in the staff room
at the next staff meeting someone asked me how i was doing with the gingko biloba and i had to confess that i couldnt remember where i had put it!
it gave them all a chuckle though!
carole x
28 Sep 2013 at 2:05PM
I think my neurologist wants to talk to me about DMDs on
Monday, so I'm trying to read up on them again, and make notes of all my
questions, to take with me.
I read something, turn to my notebook and then I have to look back at the literature to remind me what the question was. Sometimes upwards of 3 times!!
It's taking forever!!
I read something, turn to my notebook and then I have to look back at the literature to remind me what the question was. Sometimes upwards of 3 times!!
It's taking forever!!
28 Sep 2013 at 9:31PM
Hi folks,
It was really good reading this post as I underwent cognative testing with a Neuro Psychologist just last week......................................................no idea how I've done yet :-s
Jools
X
It was really good reading this post as I underwent cognative testing with a Neuro Psychologist just last week......................................................no idea how I've done yet :-s
Jools
X
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