Memory like a sieve...
One of the symptoms that causes me the most problems is a
malfunctioning short-term memory. I frequently leave food too long in
the fridge and get told off by hubby (who is the one paying for it). I
have to write down times when cooking. Appointments and important events
have to be written on the calendar immediately. I often go to bed and
forget to lock up. Little routine things that cause domestic stress. I
have to write down all my passwords. I forgot some bank details recently
which caused me a lot of hassle to put right. *sigh*
But I actually shocked myself the other day with something fairly innocuous. I was preparing a tub of blackberries for the freezer and I wrote the date on it. I got the day right. I got the month right. But I wrote '08!
But I actually shocked myself the other day with something fairly innocuous. I was preparing a tub of blackberries for the freezer and I wrote the date on it. I got the day right. I got the month right. But I wrote '08!
27 Sep 2013 at 12:55AM
My main problem is losing words in the middle of sentences.
My friends jump in and help me, a bit like people do when people
stutter. It is frustrating when the words just disappear from your
brain!
27 Sep 2013 at 7:18AM
hi, you are not alone. I have had this problem for many years
and I adapted like you with diaries, notes, to do lists etc. some days I
can add up items in my basket at the checkout and other days struggle
to understand the change I have in the palm of my hand. The variability
of my memory is crazy but better when I am focused on one thing only.
I can often get my telephone number/ post code wrong and I can even recall a time when I rang my land line and was quite insistent that the number that i had rung was mine. (The last two numbers cause me problems).
I get words mixed up and may say pass me the television instead of telephone which is amusing (but wearing thin) and family and friends finish or guess words if I am struggling with making a sentence. (Which makes me feel stupid)
I struggle with the year. With my passwords at work I incorporate the month and the year to reinforce that information.
The constant barrage of password related logins are a nightmare but I try and have as many as possible the same.
What a do!!!
Yvette
I can often get my telephone number/ post code wrong and I can even recall a time when I rang my land line and was quite insistent that the number that i had rung was mine. (The last two numbers cause me problems).
I get words mixed up and may say pass me the television instead of telephone which is amusing (but wearing thin) and family and friends finish or guess words if I am struggling with making a sentence. (Which makes me feel stupid)
I struggle with the year. With my passwords at work I incorporate the month and the year to reinforce that information.
The constant barrage of password related logins are a nightmare but I try and have as many as possible the same.
What a do!!!
Yvette
Thankyou for your replies!
The hard bit of this is not being able to give a reason (yet) as to why these episodes, that my Tai Chi teacher amusingly calls 'brain farts', are happening.
I can't claim the phenomenon that new parents call 'mumnesia' any more...she's nearly five! It's embarrasing, harmful to my self-esteem and worrying. This 'cog fog' is one of my top five concerning symptoms and a strain on the relationship with my hubby.
I'm counting the weeks until I see the neuro. What a strange situation to be in. Why would it seem easier to get a diagnosis? Maybe because we humans like to name things. If we have a name for something, we feel a degree of control over it (whether or not that is the reality). Will I improve or will I just have to learn to live with this? Just give me a name for it so I can explain it to others. Then maybe I'll be able to accept it and be better able to respond to situations that arise when next I forget something.
(and I hope that somebody benefits from me sharing all this!)
The hard bit of this is not being able to give a reason (yet) as to why these episodes, that my Tai Chi teacher amusingly calls 'brain farts', are happening.
I can't claim the phenomenon that new parents call 'mumnesia' any more...she's nearly five! It's embarrasing, harmful to my self-esteem and worrying. This 'cog fog' is one of my top five concerning symptoms and a strain on the relationship with my hubby.
I'm counting the weeks until I see the neuro. What a strange situation to be in. Why would it seem easier to get a diagnosis? Maybe because we humans like to name things. If we have a name for something, we feel a degree of control over it (whether or not that is the reality). Will I improve or will I just have to learn to live with this? Just give me a name for it so I can explain it to others. Then maybe I'll be able to accept it and be better able to respond to situations that arise when next I forget something.
(and I hope that somebody benefits from me sharing all this!)
27 Sep 2013 at 11:31AM
I know exactly what you mean! Everyone keeps asking me what
my I diagnosis is and I just have to keep saying that I have none (I am
still off work). The truth is even if they do suspect MS (which I was
told I had in hospital) they won't officially diagnose it as I have only
had one episode. It is a nightmare this limboland!
27 Sep 2013 at 12:56PM
I, too, struggle with cognitive issues. I go blank in the
middle of sentences and say the wrong words all the time. I also have
this weird thing where I frequently say the opposite to what I want to
say........eg: cold instead of hot, or outside instead of inside. The
worrying things is that I have no idea I've said it wrong until someone
points it out to me! I also, like you Yvette, say words that are
similar but wrong, eg: hotel instead of hospital, or wardrobe instead of
window!
I also forget things, and struggle with timings for cooking etc.
I spent the whole day yesterday trying to remember the name of the Neuro I'm being referred to, having referred to him quite happily and frequently over the previous week or more!
I also struggle with remembering what day it is, although I've put this down to being at home most of the time so not having any routine.
I can also completely forget whole conversations, which has caused problems between my hubby and me on more than one occasion when I swear he hasn't told me something, or that we haven't discussed something that he assures me we have. I have learnt to accept that he is right now (not easy!!).
Also, when on the rare occasions I am out in public these days I can get a kind of 'detached' feeling, where everything is going on around me but I am nothing to do with it and I am just looking on. Very weird. I can also get this if I have a fairly long one-on-one conversation, where the other person will kind of seem to become distant from me, but I can still hear what they are saying. Maybe I'm just a bit weird!!
I also forget things, and struggle with timings for cooking etc.
I spent the whole day yesterday trying to remember the name of the Neuro I'm being referred to, having referred to him quite happily and frequently over the previous week or more!
I also struggle with remembering what day it is, although I've put this down to being at home most of the time so not having any routine.
I can also completely forget whole conversations, which has caused problems between my hubby and me on more than one occasion when I swear he hasn't told me something, or that we haven't discussed something that he assures me we have. I have learnt to accept that he is right now (not easy!!).
Also, when on the rare occasions I am out in public these days I can get a kind of 'detached' feeling, where everything is going on around me but I am nothing to do with it and I am just looking on. Very weird. I can also get this if I have a fairly long one-on-one conversation, where the other person will kind of seem to become distant from me, but I can still hear what they are saying. Maybe I'm just a bit weird!!
27 Sep 2013 at 1:12PM
I have the 'hubby being right' issue. Very frustrating. Haha.
I've been feeling quite disconnected from my environment since I
developed this infection. It's quite scary.
27 Sep 2013 at 1:23PM
Yep me too forget so much stuff its annoying and more than
the usual things that I think most people get. I was writing the date
yesterday and after putting 26 I was lost and my friend had to tell me
to put Sept next. Words are constantly wrong. I have got lost driving
to work as well one day. In fact I got a bit lost driving back from
somewhere a mile from my house last week. Neuro told me 4years ago that
was normal!!!!
A xxx
A xxx
It's so good to know that I'm not alone here!
Puddinglover - isn't it just!
Purpledot - I'd happily admit to being 'a bit weird'...I know what you mean about (lol I just spelled 'the' with all the wrong letters!!) THE detachment. Especially with this dizzyhead.
MrsChicca - I also get annoyed when hubby is right. We are both the same personality types according to numerology - both 1's which are independant leader types so yes, we both like to be right. I get picked up on what I said and what he heard and perhaps my mind plays tricks on me sometimes but I swear blind I said A when he heard B. Another kick in the self-esteem.
Arwen - Normal?! Normal in what context?!
Anyone remember that film Flight of the Navigator? There was a line in it, something about the human brain leaking. If only I could plug the hole!
Puddinglover - isn't it just!
Purpledot - I'd happily admit to being 'a bit weird'...I know what you mean about (lol I just spelled 'the' with all the wrong letters!!) THE detachment. Especially with this dizzyhead.
MrsChicca - I also get annoyed when hubby is right. We are both the same personality types according to numerology - both 1's which are independant leader types so yes, we both like to be right. I get picked up on what I said and what he heard and perhaps my mind plays tricks on me sometimes but I swear blind I said A when he heard B. Another kick in the self-esteem.
Arwen - Normal?! Normal in what context?!
Anyone remember that film Flight of the Navigator? There was a line in it, something about the human brain leaking. If only I could plug the hole!
27 Sep 2013 at 3:28PM
My frustration is a because hubby is known as the dipstick,
he often mishears things or completely forgets. Now I'm catching up with
him :-(
27 Sep 2013 at 4:12PM
Yep apparently permanently forgetting why you are in a room,
getting wirds wrong, crashing car cos not putting handbrake on etc was
all normal according to the neuro I saw 4years ago as is tingling and
burning sensation. Did no neuro exam and sent me away! !
A
A
27 Sep 2013 at 11:52PM
I have had to stop working due to the massive brain fog. But I
always say bwrain frog! I frequently put things down and in minutes
forget where they are. I think I've said things when I haven't and can't
keep track of the days either. Not the safest of things when having to
dispense medication! At least I know I'm not alone in this!
28 Sep 2013 at 1:47AM
Arwen , well your neuro must have lived in a weird sort of normal then!
I haven't been out of the house apart from being in hospital or to go to hospital appointments for 6 weeks now so I am utterly detached from reality and totally confused about days and dates. Like others I also can't remember what I have told people. I am sure I am turning into that old bore that repeats stories again and again and my visiting friends are just too polite to say!
I haven't been out of the house apart from being in hospital or to go to hospital appointments for 6 weeks now so I am utterly detached from reality and totally confused about days and dates. Like others I also can't remember what I have told people. I am sure I am turning into that old bore that repeats stories again and again and my visiting friends are just too polite to say!
28 Sep 2013 at 9:34AM
Lol pudding I thought that he was a right t##ser my dad saw
him as well when first getting diagnosed with parkinsons and immediately
changed neuro. I repeat stories too and ask the same question
repeatedly my hubby is always saying I've asked or told him something.
Axx
Ps never forget what pud I like so far although some days I point at a menu cos I can't say the word.
Axx
Ps never forget what pud I like so far although some days I point at a menu cos I can't say the word.
28 Sep 2013 at 2:48PM
Purpledot you're not the only one with feeling disconnected.
It seems like everything is going on around me or I know I'm doing
something but just doesn't feel like it's me... Today I forgot the word
for vertebrae (spelling?). That was interesting telling my fiance how a
LP is done without knowing biology of the spine hahaha.
TsukiUsagi (Nihonjin desu ka?) I often think I've said things
when I haven't...maybe I just had the thought. I'm also finding placing
things in time quite tricky e.g. I might actually remember opening that
houmous very clearly, but when I did it is beyond me.
Puddinglover - I'd be lost without a calendar on my wall...a wall I pass by very frequently. Do you have one?
Arwen - never let it be said that the name of your favourite pudding desserts you (just can't help myself!!)
I have a lingering memory from childhood of being able to picture an elephant but just not remembering what one is called (ironically, as they 'never forget'). Thought that was funny for years. Not so much now.
May you recall your lost 'elephants'.
Puddinglover - I'd be lost without a calendar on my wall...a wall I pass by very frequently. Do you have one?
Arwen - never let it be said that the name of your favourite pudding desserts you (just can't help myself!!)
I have a lingering memory from childhood of being able to picture an elephant but just not remembering what one is called (ironically, as they 'never forget'). Thought that was funny for years. Not so much now.
May you recall your lost 'elephants'.
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