L'hermittes
23 Sep 2013 at 9:04PM
When I saw neuro he asked what happened if I put my chin to
my chest. I said that I got a sharp pain down spine to bra strap like my
spine was too tight and wouldn't stretch with a feint tingle in left
arn. On my letter he said I had positive L'hermittes but I imagined it
to be more like a really bad electric shock so does what I have match
other people's experience of it?
A xx
A xx
23 Sep 2013 at 9:44PM
Hi Arwen, the lhermittes sign at first, for me, felt like i
had a mobile phone buzzing in my back pocket. I then noticed it felt
like a stronger buzzing sensation that travelled down the part of me
that was affected at the time...... either my arm, or both legs. It was
never painful, and not like a bad electric shock, but when it happened
it was unmistakeable. Its always caused by lesion in the cervical cord, I
have 3 there. Have you had an mri of your spine? Another interesting
thing is I can always feel it when I have a relapse, or faintly when I
am very tired, and it is always when I put my chin to my chest and goes
away as soon as I bring my head back up. Hope that helps.........It is
also a very strong sign of having ms.
23 Sep 2013 at 9:47PM
Hi Daisy. I have an mri booked for 2 weeks time to see if
anything shows. Don't think I buzz with it but then it was only
speaking to gel300 on here today that I realised I had had buzzing
whenever I checked to see if it was my mobile going off!!
A xx
A xx
23 Sep 2013 at 10:07PM
Tingling is how I'd best describe it, usually it'll be my
upper back but sometimes my lower back and across my buttocks,
occsionally the back of my thighs are very,very ocasionally across my
calves.....it's weird because its so changeable for me - Sonia x
23 Sep 2013 at 10:14PM
Thanks Sonia tingling I do get sometimes in my arm.
A xx
A xx
23 Sep 2013 at 11:51PM
Ah, I am often asked to put my chin to my chest but nothing
happens to me when I do. I don't have spine lesions, only brain lesions
so maybe that is why? I have lots of tingling in general though.
24 Sep 2013 at 8:33AM
Hi Arwen! Approximately 2 years before I was diagnosed (June
2013), I will always remember being stood in my kitchen having just
arrived back from a training run. I was stretching out my quads and
just happened to then put my chin to my chest. I experienced something
very similar to Daisy. It felt like a mobile phone buzz/ tingling and I
felt it in my quads (front of the thigh). I was so intrigued by the
sensation, I repeated the move several times- placing my chin to my
chest. At the time, I thought nothing of it- absolutely nothing!, but
thought, 'what a weird sensation'. Little did I know then that that was
a characteristic sign of what was later to come. It was only following
my diagnosis of active, aggressive RRMS, that I bought the book,
'Awkward Bitch' by Marlo Donato Parmelee which recounted her journey
with MS. In her book, she mentioned exactly what I had experienced
myself. I could not believe it! I was blown away. It even had a name.
I had just remembered the strange and weird sensation that i had
experienced myself 2 yrs before. For that reason, I will always
remember 'L'Hermittes Sign and that was what brought me to your thread.
Best wishes from Tracyann xx
24 Sep 2013 at 9:05AM
I first started getting this about six years ago. When I
lowered my head and looked down, I got a very funny buzzing sensation
which ran from my lower back, about 8 inches above my cocxes (sp) down
to the back of my thighs. It was almost as if somebody was putting a
finger against my cocxes to start the buzzing sensation. This was
accompanied by bouts of severe back pain and to be fair to my doctor, he
probably thought that this is what was causing the issue. About two
months after this started I lost sensation in my lower left body and
passing urine became an issue. This was shortly followed by a burning
hot feeling in my left hip and area. My doctor put this down to a pulled
psoasis (sp) muscle in my bottom. (I am ok i that department now and
that episode lasted about three months)
It was the first sign of things going down hill for me and when I mentioned it to my doctor he didn't have a clue what I was on about and dismissed it as being all in my head. It was the starting point for my issues when passing urine, it can take up to two minutes from being stood there (I am a man by the way LOL) for anything to come out.
Nowadays I get bouts of the L'hermittes but the sensation only runs down the rear of my right thigh, the one which I am whitnessing numbness with.
My first ever neuro appintment is this week and I will be interested to hear what they say.
It was the first sign of things going down hill for me and when I mentioned it to my doctor he didn't have a clue what I was on about and dismissed it as being all in my head. It was the starting point for my issues when passing urine, it can take up to two minutes from being stood there (I am a man by the way LOL) for anything to come out.
Nowadays I get bouts of the L'hermittes but the sensation only runs down the rear of my right thigh, the one which I am whitnessing numbness with.
My first ever neuro appintment is this week and I will be interested to hear what they say.
24 Sep 2013 at 11:29AM
Ok, never heard of this before but have been aware for quite
some time that if I look down (ie, put my chin on my chest) I get a very
tight, uncomfortable, sometimes painful feeling down my spine, and I
have just tried it again now and I also get a warm tingling sensation
across the very bottom of my spine, in line with my coccyxx. I've tried
it a few times now (sad, huh?!?) and have also noticed that a couple of
times I've had tingling in my right arm, which is the side I have most
of my problems.
Something else to add to the list then!
Something else to add to the list then!
24 Sep 2013 at 2:04PM
Hi Tracyann and number 8 don't get the buzzing with it it is
more sharp tight pain as though my spinal cord is too short occasional
tingle to my arm. Exactly what you get purpledot.
Axx
Axx
24 Sep 2013 at 2:19PM
I get the tight sensation too, maybe a really intense version
of the shock like sensation that others experience, but I'm not sure x
No comments:
Post a Comment