Sunday, 8 September 2013

They need to STOP misdiagnosing- this is just dreadful

would like to meet people of a similar age to me
Author
Post
Rebecca xx
01 Apr 2012 at 10:00AM
Hi
I was diagnosed 2 years ago now and would love to chat to people with ms who are a similar age to myself. I have just turned 30.
I have struggled to come to terms with it and feel chatting to other people will help. X
folksongs19884
02 Apr 2012 at 2:32PM
Hi Rebecca, i'm Bex, i was diagnosed with MS 2 and a half years ago. I know you said you want to talk to people of a similar age, and I'm only 23, but would love to talk to you if you want xx
Rebecca xx
02 Apr 2012 at 5:40PM
Hi Bex, thank you for replying and I would love to chat with you. Xx
daisy1984
02 Apr 2012 at 7:05PM
Hi Rebecca, my name is Diane. I was diagnosed with MS last wednesday. Dont think it really has sunk in as yet!! Im 28 and have a 6 year old and a 1 year old. Would love to chat to people in the same situation as me xxx
Twinklejelly
03 Apr 2012 at 2:06AM
27 and diagnosed for 3 years - always happy to talk :) Ginny
carly111222
03 Apr 2012 at 9:30AM
hey im 23 was diagnosed in january i have a little boy whis is 22 months pm me if u wanna chat
carly xx
chris_travis
13 Apr 2012 at 7:05PM
Hello all
Im chris,26 and have had ms for 4 and a half years now,
I have rrms, started on rebif and now on copaxone
I act like everything fine but when im at home on my own it gets me thinking and glad there people to talk to on here
I have a cba attitude these days which isnt good,just lack the energy i used to have az i was out playing football non stop and golfing,now i feel i get home and jus want to chill,
How do u all feel?
Iolanda82
14 Apr 2012 at 7:29PM
Hi Rebecca , I'm Anna and I was diagnosed 16 months ago.. Happy to chat it you want to.. I will be turning 30 this summer . Was meant to be sorting out invItations to my party but the fatigue has hit me hard today .. So it's a duvet day xAx
Jazz-1978
29 Jul 2012 at 11:59PM
Hi all, I'm Martin. I was diagnosed with relapsing remitting ms in 2009 aged 32. I've just had my first relapse recently and been prescribed Prednisolone and Rinitidine by my ms nurse. I'm always happy to chat with others.
mrsp83
05 Aug 2012 at 4:35PM
29 next week... with a 6 month old baby...
diagnosed jan this year - feel free to pm me :-)
Shadowking
07 Aug 2012 at 4:47AM
24 nearly 25, was diagnosed about 6 years ago in my first year at uni, always happy to chat so drop me a message :)
Q
Astyanax
07 Aug 2012 at 2:19PM
Hi,
I am 26 and have just been diagnosed with relapse remitting. I'm about to go on the Beta Interferon after two attacks in the last year. Pretty scared about future attacks (two so far have been 95% corrected by steroids) but what can ya do? Talking it over with some friends has helped. Hope you're feeling good at the moment.
O.
MAKS
10 Aug 2012 at 6:02PM
Hi Rebecca,
I'm Kerry and was also diagnosed 2 years ago.  I know what you mean about struggling to come to terms with the diagnosis and hearing from others really does help as well as attending the MS events.
I'm happy to chat anytime you want.
Kx
MAKS
10 Aug 2012 at 6:02PM
Hi Rebecca,
I'm Kerry and was also diagnosed 2 years ago.  I know what you mean about struggling to come to terms with the diagnosis and hearing from others really does help as well as attending the MS events.
I'm happy to chat anytime you want.
Kx
Whitey
27 Aug 2012 at 4:18PM
Hey, I was diagnosed with definite rrms a couple of months ago, the consultant wants to start me on disease modifying injections but as I am trying for a baby the drugs will have to wait. was a tough choice. feel free to message me too, I could do with the chance to speak to others who understand as feeling pretty lonely when it comes to the diagnosis. (I'm 26 and live in Yorkshire by the way :-) ) x
chris_travis
03 Sep 2012 at 6:17AM
Hello all im chris,26 and have had ms for 4 and a half years now,I have rrms, started on rebif and now on copaxoneI act like everything fine but when im at home on my own it gets me thinking and glad there people to talk to on hereI have a cba attitude these days which isnt good,just lack the energy i used to have az i was out playing football non stop and golfing,now i feel i get home and jus want to chill,
Im from the preston area,love to chat,can message me if you like aswell
Poppet
05 Sep 2012 at 7:13PM
Hi everyone I'm Sarah got my Dx of RRMS in 2010 age 33 .
I have struggled with the slowing down of my life and getting my head around the whole thing . Have felt talking on here has been a great help .
Nothing like a good old moan sometimes to make u feel a bit better. :) lol.
Sarah x
marcus1
11 Sep 2012 at 6:50PM
Hi, My name is Marcus and I am 56 and was diagnosed about 14 years ago. Maybe I shouldn't be on here but WHAT DO YOU THINK is 'CAUSING' all this 'MS'?
moracruz
23 Sep 2012 at 7:07PM
Hi Rebecca,
I am Mónica and I was diagnosed in 2008 with RRMS. I will be happy to talk with you everytime you will need. I will turn 40 next December....( I am getting older...!!)
Monica
Xxx


Levi
27 Sep 2012 at 8:00PM
hiya im Levi and im 23, i was diagnosed with relapsing remitting MS 2 weeks ago. ive had a course of steriods some of the symptoms have eased off, iv been told it could be a few months. still taking it all in really, hoping talking to people on here will help.
xxx
Levi
27 Sep 2012 at 8:00PM
hiya im Levi and im 23, i was diagnosed with relapsing remitting MS 2 weeks ago. ive had a course of steriods some of the symptoms have eased off, iv been told it could be a few months. still taking it all in really, hoping talking to people on here will help.
xxx
beket
04 Oct 2012 at 11:43PM
Hi,
I'm Mel, aged 32 with Ms diagnosed 7 years ago. i'm just about starting to get my head round the diagnosis properly now - sometimes have sessions of wanting to scream and cry still but have to get on with life. i live in sunny sheffield and find that going to my local ms therapy centre helps - people know where your coming from and you don't have to explain everything. most of the therapy centres are online and i can recomend them as a good source of information and support. Feel free to pm if you need to chat.
Mel.
alixmarie
09 Oct 2012 at 11:01PM
Hi, i'm alix and i was diagnosed in 2009 with rrms. I have, up til now tried very hard to ignore the fact that i have ms and to be honest have been kinda scared of being in touch with others who have ms...almsot like i'd have to fully admit to myself that i do in fact have it. I just started copaxone last Friday and joined this forum so i could ask a question about the injections and reading the replies i have realized that talking to and hearing from other ms-ers is actually quite nice, its good to hear from folk who have an idea of what its like having this horrible disease. I'm 28 and was 25 when diagnosed. I knew no other people my age who had it (still dont). Would be nice to hear from people.
mcmillar00
10 Oct 2012 at 10:32AM
Hi, I'm 23 with RRMS and was diagnosed at 16. I'd always be willing to chat about it.
Ross x
Kevin1986
10 Oct 2012 at 6:55PM
Hey becca (hope u don't mind me calling you that) i'm 26 and was diagnosed almost 2 years ago i'd gladly listen if you wanted to chat since tbh it would be helpful on my part too
Char84
17 Oct 2012 at 5:35PM
Hi Rebecca
My name is Charlotte and am 28, I was diagnosed with MS 5months ago so fairly new to all this.
I just started my Refib treatment today so fingers crossed all goes well. I am happy to talk whenever as we all need a little support.
C xxx
Anne28
28 Oct 2012 at 3:13PM
HI everyone,
I know I am on the wrong Forum as I am in my 50's, early 50's thankyou!
Please don't turn off.
I just wanted to say something and hopefully give you something to think about.
I was only diagnosed 4 years ago.  However, I have had severe problems since I was 14 years old.  The neuros think I have probably had MS for at least 20 if not 30years.
I am still upright.  I got married, I have a wonderful life.
I just want all those of you are scared at being diagnosed at such a young age and worry about the future to try and stop worrying so much. Your particular MS may not progress quickly.
I wish that I had been diagnosed at an earlier stage in my life,  It would not have stopped me from doing anything I have done.  I may however, have changed certain things, eg. diet, lifestyle, so that the fatigue did not impact so much.
So please, enjoy your lives.
x

VinceA
01 Nov 2012 at 10:08AM
I consider myself young at 40! Does this count? Diagnosed at 39, first known relapse at 36. I say known due to being used to living with different sporting injuries from mountain biking/fell running so they all do not help pinpointing a start. Look forward to what you can acheive, not back at what you did not acheive.
Gareth 1987
03 Nov 2012 at 2:20PM
Hey I'm Gareth, 25 years old, had MS since I was about 17-18. Would be happy to talk to you if you have any questions. xx
ShyStar
03 Nov 2012 at 4:07PM
Wow... its so weird seeing that im not alone ... as most of the time I feel I am... especially seeing ppl younger then me with it. All people I've met have been 20 years older then me (Minimum)...
I was diagnosed when I was 23... I had a relapse with roughly 20 legions... I read somewhere that the average person has 1 or 2 relapses a year... I've had about 7/8 (I try not to keep count) in the first year... I was on Rebif for a lil while... but it didnt seem to help so my docter and nurse wanted to try me on Tysabri... Anyone else on that ...?
I guess I'm here posting as I do feel li got diagnosed at 23 and ike I'm alone with this.... I have my family ofc... and they are wonderful... but they don't quite have the insight I'm craving...
I turned 25 yesterday... it would be great if people would pm me for a chat... it doesn't even have to be about ms... just wanna make some friends who know about ms and understand it...
x_xtrinax_x
08 Nov 2012 at 11:46PM
Hi I'm brand new to the website,
I'm 27 diagnosed at 23. Would love to talk to younger people. This thread got me to join.
I have a 1 year old and a husband, who is very supportive, but it's hard to find people of our age who actually understand.
I don't quite understand how these forums work, so if some kind person could help as well, that would be much appreciated.......

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