Young and Newly Diagnosed
31 Aug 2013 at 6:07PM
I found this forum through google. I am 22 and just received
my diagnosis of MS two weeks ago. I am only on steroids for now. I meet
with my neuro again Sept. 12 to hopefully start treatment with DMDs. I
have had symptoms of tingling in both my legs, loss of coordination and
balance, and my right dominant arm is having major problems writing and
typing. I am most scared I am not going to get better. I just started PT
last week and I cannot even do simple tasks. Everyone has told me
things will get better but I am afraif they will not. I guess I am
writing to find people who have learned how to deal with this disease.
It is very overwhelming and I am just scared that I will be this was for
the next 50 years of my life.
We all had that moment worrying about our future.my diagnosis
came out the blue so had all the same thoughts and worrys as you.ask
your gp to send you to an ms nurse.neuro,s are the start but its the
nurses and their team who helped me through those difficult times.
Spudz...
Spudz...
01 Sep 2013 at 12:49AM
Hi vani
You will be fine don't worry to much X
You will be fine don't worry to much X
01 Sep 2013 at 8:13AM
Hi hun I was exactly 24 when diagnosed. Sensations were my
main symptoms although I relapsed which caused also ON, poor
coordination and increased sensations. Like you I worried for the
future. I'm now 33, slightly worse since my last relapse which was beg
this yr in that my left leg is weaker so I limp after walking about ten
mins but I continue and rest when needed before continuing again. Still
enjoying life doing the things I have always done almost. Only almost
as I have a four year old now so priorities change but my worry was I
might not have children because the diagnosis might change these plans
but it doesn't have to hun.
Try not to worry too much and be positive which isn't easy at the beginning. You will get used to certain things. I'm used to permanent sensations in my hands as they've been there since 2011. I forget them now. And even getting used to walking a lil different. What I'm saying is for the last nearly ten years I've been relatively well and although I've deteriorated slightly I still feel fine most days. We all have good n bad days. It's important to listen to yiur body too. Also exercise and a good healthy diet is advisable. That doesn't mean no more treats however. My weekends are my treat times. Also I've not been on medication up until this year. I'm now on rebif.
Good luck and chin up hun xxxx
Try not to worry too much and be positive which isn't easy at the beginning. You will get used to certain things. I'm used to permanent sensations in my hands as they've been there since 2011. I forget them now. And even getting used to walking a lil different. What I'm saying is for the last nearly ten years I've been relatively well and although I've deteriorated slightly I still feel fine most days. We all have good n bad days. It's important to listen to yiur body too. Also exercise and a good healthy diet is advisable. That doesn't mean no more treats however. My weekends are my treat times. Also I've not been on medication up until this year. I'm now on rebif.
Good luck and chin up hun xxxx
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