CURING MS WITH DIET OR SUPPLEMENTS?
anonymous
21 Jun 11
15:18
21 Jun 11
15:18
I went on a copaxone and had mitox treatment plan (and lost much of my hair) for 12 months but symptoms continued to get worse. I’ve been offered more ‘radical’ (to my mind) treatments of which the side effects worry me to be honest (campath or tysabri).
I also added 3.5mg LDN to my regime for the last 6 months but haven’t really notice any difference.
I’m thinking about going off all medication and trying a diet based treatment such as SWANK or Best Bet Diet. My body needs a rest and I’d like to give it a chance to heal itself if that were possible. I suppose the difficulty would be purchasing specialist food on a limited income.
Has anyone done anything similar and cured or at least arrested the progression of their MS through dietary means / supplementing their diet with vitamins / minerals etc?
*My symptoms are legs don’t work, cognitive issues and extreme fatigue
**Anon because I’m sure people will see me as mad, rejecting tried & trusted medications :), no offence, that may be what I have to return to eventually.
Thank you for any advice
replies to "CURING MS WITH DIET OR SUPPLEMENTS?":
Hi anon,
You have described me and my symptoms.
My neuro said to continue with COPAXONE for the moment.
For supplements, Vitamin B and Vitamin D.
Plenty of oily fish including sushi.
Z
chauncey 24 Jun 11
8:42
[post abridged by admin - overlong for users with screenreaders and material owned by another site- please see link http://www.overcomingmultiplesclerosis.org/Resourc es/FAQs/ reference "What about people who say 'There is no evidence for diet in MS'?" Remember to remove the space from the link]
I was taking alot of of supplements and vitamins , and i saw my ms nurse because i was feeling very fatigued and tired . She ask what i was taking on a daily basis , i gave her the list and she went to check them out in this book she has . She emailed me back and told me in the book most of what i was taking was immune stimulating .
I have stopped taking them for over a month and i feel better than i have in years . The book is called " alternative medicine and multiple sclerosis " by Allen C. Bowling M.D Ph.D. There is alot of useful information in there about MS . Its a good guide if you are thinking of taking something . ... read replies [1]
Hi,
I'm currently reading a book called "Trick & Treat " by Barry Groves. It's about how "healthy eating" is making us ill, and about the trend to eat a low-fat, high-carb diet is causing a lot of health problems.
I've been on the Best Bet Diet since Feb 2008, and although it has helped with brain fog I've lost loads of weight. My heat sensitivity has also gone through the roof and I can't be out in the sun for more than a few minutes, otherwise I just go to mush and can't walk. My bladder is also irritated by certain foods, eg. fruit and oils, and I suffer from terrible cystitis. The book recommends frying food in lard rather than oil, and as fried food cooked in any oil triggers cystitis in me, I bought some lard and decided to give it a go. Amazingly, I was OK. The idea of cooking with lard didn't appeal to me as I'd previously considered it to be an unhealthy option. This book is causing me to re-think what I'd previously thought of as "healthy".
But, everyone is different and what benefits one person won't benefit another. I think it's very much a case of give it a go and see what happens.
Heather ... read replies [1]
im looking at vibtations and health
food also have these vibrations or frequencies
natural foods have the same frequency or closer to the sun in frequency
dead food doesnt ... read replies [4]
Hello.
If your legs are not working then I would think about Tysabri at the very least if you haven't tried it, as this is proven to stop relapses in severely progressive MS. Yes, there are small risks, but I am sure that your neuro can explain these to you and how the benefits may outweigh the risks.
Of course, following a sensible diet regimen will make most of us feel much better, but with this beast of a disease, we need all the help we can get.
I watched my mother go through all the fad diets for MS, to of no avail, so I would say beware. Don't forfeit conventional treatment for special MS diets when your MS has become this bad. My mother wouldn't have risked this if conventional treatments would have been available to her at the time.
Have a chat with the neuro or MS nurse.
Steffi ... read replies [1]
Chuckling at all the replies to the comments and everyone getting ratty with each other. I agree there is no cure but I do believe a healthy diet and exercise, if you are able to do some is good for your mind and body. So I say go for it you might actually feel benefits from a healthy lifestyle. I think a lot of it has to do with the state of mind your in a lot of people with MS suffer with depression and that can make you feel worse. Good luck with the healthy diet am trying to do the same but the biscuits in the cupboard keep calling my name.
Although am doing about 30 minutes of exercise a day and it feels good.
Take care all of you xx ... read replies [1]
chauncey 22 Jun 11
17:32
Research LDN and make your own mind up. Your neuro has read about MS in a book, you live with it. If they were so damn smart they'd have found a cure themselves by now. ... read replies [1]
Just to add my bit to all the rest.
There is no cure for MS
There is no cure for MS
There is no cure for MS
Certain dietary controls may benefit the body in some ways. They cannot cure MS.
Multiple Sclerosis simply means "many scarrings" or lesions - casuses unknown. The lesions are shown in spinal cord and the brain. Apparetnly the disabling symptoms causing loss of balance and fatigue may be helped by removing some foods from one's diet. Each person has to find out by trial an error which foods or drinks can be omitted.
For example the already weakened body will very likely be better off without wines and spirits but this will be a matter of trial and error.
Also, dietary controls can be of help to everyone without any disabling illness.
We can sometimes slow down the progression of MS symptoms with some treatments in some cases of MS but there is no cure for MS.
The term multiple sclerosis is not an identified diagnosed disease. It is a description of the pathology or symptoms.
Regards
Christopher ... read replies [3]
Hi I don't see the harm in having a healthy diet or taking supplements infact a good diet promotes ones health and general well being but I do not believe for one moment it is a cure for ms. I wish it was we would all be sorted out very quickly if that were the case. By all means follow a diet and I would talk in depth with your neuro about further treatment and the worries you have. It is not a bad thing to have questions when you are offered these drugs after all they are going into your body.
Take care,
Sarah ... read replies [1]
im pretty much onto it as far as a
rank outside amateuer can be
i have enough experince to suggest many things
a cure eh
if theres going to be one im trying but it takes second place to
relief
relief with diet yes and certain supplements
a food diary and journal is beneficial
i think it would be wise for me to say at this time not all symptoms are the same
not all generate from the same cause
or respond from same things
we are immune and nerve issued
a better undeerstanding of these systems worth learning
look at vit b for nerve assistance links mood
and olive leaf for immune assistance
see my post
having a bit of an apiffany
ask me anything ... read replies [5]
I am on a low saturated fat diet.I have read Swank and jelineks diet regime and i prefer to think of it as a lifestyle change more fruit,fishetc.The problem i think we all have is we are used to taking a pill and expecting instant results this does not happen and it may take one to three yrs before we see any stability.Swank ran his patients over many years and found those that stuck rigidly to the diet did well. All i can sayis it's worth giving a try as when did healthy eating cause problems. ... read replies [2]
It is a difficult question to answer. I am very interested in dietary issues with ms and I am also very interested in the CCSVI possible link, and amalgam fillings. An electrolytic fallout in the mouth area thus polluting the blood with mercury, one of the most deadly chemicals known to man is on my mind a lot these days. I was not persuaded to follow the CCSVI course until more evidence could be presented; it is simply to expensive a procedure to have no possible effect. My own ms followed almost immediately after a very severe electric shock which in normal circumstances should have killed me. I often wonder if this triggered such an electrolytic release of chemicals, and the start of ms for me?
My own grandmother, now deceased, smoked, drank, and made merry in her long life. She lived to be very very nearly 103.
I do wonder if it is not just one of these elements which afflict us so unfortunately, but a combination of these and others?
In my opinion, diet is definitely a factor to be considered. Our food intake is a fundamental contributory factor in the health of the human species.
Mark ... read replies [1]
No you are not mad.
I have found fish oil every day, high does of vitamin D3 very day and and losing three stones with a good diet has put the world to rights.
And - green tea. ... read replies [1]
You might like to ring the LDN Research Trust and ask Linda Elsegood to put you in touch with Dr Bob Lawrence who has been relapse free himself for many many years. He is a great advocate of LDN but also has a thorough knowledge of dietary regimes & vitamins etc. If you get a telephone consultation with him he will pass on a great deal of useful information. Roger ... read replies [1]
Hi Anon.
I agree with nearly everyone who has replied to you as far as MS cannot be cured just slowed down (hopefully).
I have been very lucky so far in that i have only had 3 relapses over 8 years and only have minor symptoms remaining except the fatigue ( i was asked the other day at my local MS therapy centre if i was a volunteer because i dont display any outward symptoms).
I do not take any dmds and never have yet. I follow pretty much the swank diet and go to my local gym for yoga and have weekly oxygen therapy. I had a major relaspe last december which caused symptoms of heaviness and loss of feeling down my left side of my body which lasted a couple of months. This has now all but gone. At this point an mri showed a new large area of inflammation and i was offered dmds but refused as i wanted to try my way first as this was the first episode in 4 years. If this situation changes i will look at what is offered again.
I believe that the problem is we are all different and have so many different variations of MS that no one treatment is right for anyone. I dont see the harm in trying alternative methods outside the normal medical route. The MS centre i go to promotes a healthy diet with exercise plus therapies such as acupuncture and oxygen.
Take care Sally ... read replies [1]
Sorry, I'm afraid I don't believe you.
If it was as simple as that, do you think there would still be over 100,000 people in the UK with MS?! ... read replies [1]
You will get a Buddy request very soon ... read replies [1]
Hi
I'm sorry to say that MS cannot be cured by diet in fact presently MS cannot be cured at all. The medications and the diets etc can only ease the symptoms or reduce the number of relapses but they are not cures. I'm not meaning to be negative but the title is difficult to answer any other way.
So heres what I've done to ease my symptoms: I've tried LDN but it didn't do anything for me but is has for others so I wouldn't dismiss it. I take high dose Vit D and C and inject B12. I've been a lifelong vegetarian, teetoteller, and non smoker so I've have done everything I can (I've been denied DMDs but would have tried them if given the opportunity and feel abandoned by the NHS). For me there's a genetic link as its run right through my family.
I wish I could be more positive for you but the reality is we have to enjoy life as much as we can for as long as we can and live in hope of some bright spark coming up with a cure so that future generations don't have to face this horrid illness. It's too late for me as I've too much damage done now but I still live in hope for others. I hope you can find something to ease your symptoms but take care not to waste money on things that can't work.
(((((((BIG HUGS)))))) Mary ... read replies [1]
Hello anon
I respect any person's right to try any methods they may want to try or any methods they may not want to try. However, MS is at present incurable so your both your title and the content of your post about curing MS is perplexing and misleading especially perhaps to anyone who is in limbo or newly diagnosed.
Progression can be slowed, am not sure it can be completely arrested....but we can live in hope.
Best of luck. ... read replies [1]
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