Tuesday, 7 June 2011

Consumed by it

You live and breathe ms, it is with you all day and all night, theres no escape you read copious amount of literature on it, you are given by well meaning people, http; here http; there, you read up on everything which to me is a futile excercise as none none of it is factual, its a presumed information from assumed reasoning, you fill you head way beyond its capacity in non factual non evidence based information. your head is so full there is no room for everyday things.Do DMDs work, do they just have a placebo effect only, but you cant risk it so you take them. You struggle constantly even at the simplest task, you try doubly hard, sometimes setting yourself up for inevitable failure. Your self esteem gets kicked so hard. You ability to fight or flight is taken away, but fear may still remain causing anxiety worry. Where does it end. where indeed because nobody stands up to question it all, you have to accept as that is the normal thing to do. You may be 17 18 19 in your twenies, rely on the older ones, ones with experience of ms. Just go with the flow quietly.

I DONT THINK SO!!!!! I will stand up (metorphorically speaking that is) and I'm not doing it for me. But for those kids younger than my own, treading water in limboland is unacceptable. When they could be benifitting from lifestyle changes and alternatives. Somebody has to wake up in authority and soon

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