Thursday, 23 June 2011
I understand why they do it now
Over the years when I was active on MS Societys Everyday Living message board, I noticed fromn time to time, where a personwould come along with speciific ideas or methods that have benefitted themselves i.e. one girl was premoting that her possitive thinking and attitudes were helping her (makes total sense to me) but those on the website, were very negative and dismissive of her ideas, to the point where they were quite sarcastic to her. This behaviour has been directed at others that have different theories or ideas, they too are kind of driven away deliberately, its like being too possitive is automatically treated in a negative way. They have become quite bullying in the approach, and give the imporession it is done to protect others. The thing is the Society has allowed this kind of behaviour, even in my case. I think there has become a problem of some users of the site and those controlling it i.e. moderators an above socialise or have built up frienships, thus not making the impartial on certain situations, as the display favouritism. This for such a large organisation is unprofessional to say the least. In my oppinion it needs radically looking at. I think that because people have been convinced that there are no answers its just a case of waiting for a cure, thats why some good ideas and good people have been allowed to be hound off of boards. I can understand their reasons, but at the same time it is very manipulative and very wrong indeed in the fact it is keeping others ignorant of alternaive info, and keeos them dependant on a blinkered and unversitile organisation which seems to be solely interested in its own sustainability and future. Its really not good.
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