Sunday 5 June 2016

P. 2 The shakes

Cookson
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Posted 22 September 2013 - 11:23 AM
I am actually taking a fish oil supplement! Along with vitamin D supplement that flagged in the tests I had done that I am chronically low In.
I urge anyone to try vitamin D because 30% of people who are suffering from depression is down to low levels of vitamin D!
2013-July 1st Citalopram 20mg ()
2013-August 19th ended Citalopram cold turkey
med free.  (Took them for 7 weeks)

When I was a child, I spoke as a child,
I understood as a child, I thought as a child;
But when I became a man,
I put my childish things away.

- 1 Corinthians 13:11
 


#38 Altostrata

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Posted 22 September 2013 - 12:52 PM
Make sure it's vitamin D3, a better absorbed form.

A tremor is a movement that's involuntary, it's the shakes. What is your symptom like?
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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#39 Cookson

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Posted 22 September 2013 - 01:10 PM
Vitamin D3? Ill look into that.

As If I'm not very stable on my feet? Like I'm learning to coordinate my body again? like If I put my arm out in front of me it quivers? And then sometimes ill get a sudden jolt as a muscle twitches which happens less often. I also feel quite warm and am sensitive to sound? It always seems to guss worse out night its awfull feel like an alien In my own body
2013-July 1st Citalopram 20mg ()
2013-August 19th ended Citalopram cold turkey
med free.  (Took them for 7 weeks)

When I was a child, I spoke as a child,
I understood as a child, I thought as a child;
But when I became a man,
I put my childish things away.

- 1 Corinthians 13:11
 


#40 Altostrata

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Posted 22 September 2013 - 01:14 PM
Nervous system sensitization often involves heat intolerance. The tremors indicate other instability.

When you lie down at night, do your legs twitch?
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

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#41 Cookson

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Posted 22 September 2013 - 01:28 PM
Yes, But I more often of not get a feeling of restless built up energy in my legs? Have been getting these symptoms only very recently.

Look I don't want to sound delirious but I am just a tad freaking out a bit. I feel quite weird and anxious.

Would drinking alcohol help ease it?

I think I have an idea why this is happing. Could I pm you?
2013-July 1st Citalopram 20mg ()
2013-August 19th ended Citalopram cold turkey
med free.  (Took them for 7 weeks)

When I was a child, I spoke as a child,
I understood as a child, I thought as a child;
But when I became a man,
I put my childish things away.

- 1 Corinthians 13:11
 


#42 Dani

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Posted 26 September 2013 - 11:10 PM
I know exactly what you're talking about & i used to get them... I don't get them as often as i used to. But you aren't alone in feeling the tremors/feeling cold.
Dec 2004 - Put on Zoloft after having a panic attack from the Birth Control Ortho Evra Patch (the doctors thought I was completely insane when I told them I think the Birth Control Patch is giving me anxiety/panic. Funny how they tell you NOW that Birth Control can indeed cause anxiety) Started at 25mg, increased to 50 mg and 100 mg in 2007. They made me too sleepy so decreased back to 50mg until 2009. Reduced to 25 mg in 2010.

Oct 2010 - Decided to come off Zoloft to try and have children. Didn't know anything about tapering because apparently, my doctor didn't know about it either. WDs included heart palpitations, dizziness, tinnitus etc. Decided to go back on Zoloft within 2 weeks of stopping.

January 2011 - Knowing a little more about tapering, I decided to stop taking taking Zoloft with my doctors help again. She told me to hurry and taper in 4 weeks because the tinnitus could become permanent. I thought this was too fast so I took another month to taper.

March 30, 2011 - Last Zoloft pill.

Had a little dizziness & sadness, but felt fine until Aug 2011 after a relative died.

Since then symptoms include brain shivers, migraine headaches on right side of head, warm/hot sensations on right side of head and ears, internal vibrations, tremor, muscle twitches, strange sensations in right side of head, anxiety, nervousness, sadness, disconnected, depersonalization, numbness on left side of body at times, neck pain, muscle/rib cage pains,  just don't feel like myself :(


#43 Cookson

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Posted 27 September 2013 - 12:10 AM
I hardly ever have twitches now, I still get the tremors unfortunately! Doesn't seem to be very common the symptoms we are experiencing in the withdrawal scheme of things nice to have someone to relate to.

Its funny just reading your info I've been experiencing a headache on the left side of my head that is sensitive to the touch.
2013-July 1st Citalopram 20mg ()
2013-August 19th ended Citalopram cold turkey
med free.  (Took them for 7 weeks)

When I was a child, I spoke as a child,
I understood as a child, I thought as a child;
But when I became a man,
I put my childish things away.

- 1 Corinthians 13:11
 


#44 Altostrata

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Posted 27 September 2013 - 10:57 AM
Alcohol and other psychoactive substances, such as recreational drugs, tend to make symptoms worse.

Magnesium often helps with that restless leg feeling.
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.


#45 Cookson

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Posted 27 September 2013 - 12:36 PM
Alto, Completely agree with you. Am supplementing a multi vitamin currently however will get hold of some pure magnesium tablets as soon as I can.
2013-July 1st Citalopram 20mg ()
2013-August 19th ended Citalopram cold turkey
med free.  (Took them for 7 weeks)

When I was a child, I spoke as a child,
I understood as a child, I thought as a child;
But when I became a man,
I put my childish things away.

- 1 Corinthians 13:11
 


#46 Altostrata

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Posted 28 September 2013 - 10:58 AM
The B vitamins in multivitamins can sometimes cause jumpiness. See if you get symptoms shortly after taking the multivitamin.
This is not medical advice. Discuss any decisions about your medical care with a knowledgeable medical practitioner.

"It has become appallingly obvious that our technology has surpassed our humanity." -- Albert Einstein

All postings © copyrighted.


#47 Cookson

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Posted 29 September 2013 - 01:53 PM
Don't necessarily feel any jumpiness I don't think.

Am really starting to feel better-Physically, I'm not worried. Tremors are lessening, feeling a great deal more in touch with reality now.
However psychology I'm still suffering cognitively with my thinking processes and communication.
Although I'm noticing this has got progressively better over the last few days.
2013-July 1st Citalopram 20mg ()
2013-August 19th ended Citalopram cold turkey
med free.  (Took them for 7 weeks)

When I was a child, I spoke as a child,
I understood as a child, I thought as a child;
But when I became a man,
I put my childish things away.

- 1 Corinthians 13:11
 


#48 Cookson

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Posted 07 October 2013 - 04:06 AM
Tremors are now non-existent.
Just some random muscle twitching now In my legs.
2013-July 1st Citalopram 20mg ()
2013-August 19th ended Citalopram cold turkey
med free.  (Took them for 7 weeks)

When I was a child, I spoke as a child,
I understood as a child, I thought as a child;
But when I became a man,
I put my childish things away.

- 1 Corinthians 13:11
 


#49 btdt

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Posted 03 April 2014 - 06:47 AM
Make copies of all your posts here so you have it as a reference later when you may need it to see how you health has progressed as I wish I had done that way back at another site as I am sure there are particulars that would help me and my doctors today.
You may not feel you have the energy to do it but trust me copy and paste into a file could save you a lot of stress later if you have further issues.
Imagine if all you ever wrote here was deleted and you needed the information due to memory issues ... you would have dates and specific issues you posted here that information could be invaluable to the future you and your future doctors.

Tremor I had before quitting Effexor and a dragging right foot ..my foot had changed and I could no longer put a boot on that foot in the winter living in Canada wearing clogs all winter is a bad idea yet I had no choice I could not bend the right foot enough to get a boot on.
These are some of the reasons I went off Effexor I was way to scared to think of this on  my own it was a neurologist who came up with the idea...

After what I had experienced after taking Prozac - for pain and not knowing it was a psych drug as I was never told it was a psych drug... I thought the resulting sever adverse reaction was all my own crazy brain... I took treatment after that to keep those reactions from returning I had not clue they were all drug induced ... my fear of having those experiences again kept me drugged 18 years so you know I was not stopping Effexor without a fight but it seems I had hit a wall and my body was revolting.  While waiting on test for MS ect to come back off E I went and tried a few other drug concoctions but they were of no value to me for the tremor or the foot drag or any of the other things... I know there were more but can't recall them now.

Tremor and the foot improved gradually very gradually over the last several years I did however break that foot twice in the last six years and it hurts but I can't say now if it hurts any worse than it did before I broke it or not??? up for debate I can't remember well enough ... at this point it seems it has hurt for ten years at least. Why I don't really know various reasons and for the ladies out there it sucks to never wear a nice pair of shoes again side note.

Seems all I had to do was get off the drugs and go thru hell to get my body to ease back to something I could almost be comfortable in there are many other things but laying contorted in my bed in pain is over... just some lingering things and pain of course pain has been a huge part of this for me .. body pain headaches.

I had a car accident in Dec 2012 sound a  long time ago but really it was only 15 months ago short if you consider how long withdrawal is... after that accident I had a tremor in my right leg and arm .. it came together at the same time to the same rhythm
I talked to my doc about it and we both thought some nerve had been irritated and it would settle in time... it did gradually noting heals quickly for me everything is gradual... the arm stopped shaking in unison with the leg but the leg continued  tho it gradually had a tremor less and less.

When I learned years ago that these drugs can cause parkinsonism I figured that was what I had some form of it and having parkinsonism will leave you more vulnerable to Parkinsons disease in the future I was sure I would not be one of those people as I am adamant about drug control in my own body and have turned down a drug store full of pills in the past 6 years...

If it was drugs that cause it I was going to lessen my chance and heal.

This morning I was shaking not just my arm and leg but my head my arm my torso ...shaking all thru my spine. It lasted maybe a minute not that long but long enough to draw my attention that this is something new.

I looked up tremor of course the varying types and causes.
http://www.medicinen...ories_of_tremor

Read a suggestion of putting a paper on the outstretched hand to see if there was a tremor... there was in both hands.
I read all the causes and since my sister just passed it could be a emotional issue.. I sure hope it is...I use to hate the idea that things were all in my head but today I hope it is.   Stress of course can make anything worse... could be that too. Being in my head means I will eventually get past it when grief lessens.

There are a few things I have been taking tho I tend to react badly to drugs I am taking and penicillin and two puffers for my lungs I had an infection almost done the antibiotics that I have never reacted too before... the puffers I don't like and in early withdrawal could not tolerate them one I think has a steroid and maybe it is the drug in the puffers that is causing this... I was jumping out of my skin anxious last night and took have a 500mg of taurine... that is it for my drugs...

salvent and fluticasone are the puffers amoxicillian is the drug...

it has been months since I was on an antibiotic this one can work sometimes

I guess I could look up the puffers but this go around I really feel I need them or I would not be taking them...

Drug induce tremor response could be due to the puffers if you have a leaning towards them I guess... I am not sure.

This is my morning so far. A bit scary and I hope not a taste of what is ahead of me.
WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.
As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey.
http://survivinganti...ng-myself-btdt/
There is a crack in everything ..That's how the light gets in :)


#50 btdt

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Posted 03 April 2014 - 07:20 AM
Had to look up the puffers they both cause anxiety...
and tremor... here we go again everything that has a nervous system side effect I seem to get... crap... I feel I need it but I need other things too... will have to choose I guess.
WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.
As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey.
http://survivinganti...ng-myself-btdt/
There is a crack in everything ..That's how the light gets in :)


#51 LoveandLight

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Posted 24 December 2014 - 12:42 PM
Three times since big drop in dose in October, I had violent shaking happen all over, teeth chattering, everything shaking. It happens for about a few minutes I think. No pain or discomfort. I do get a cold flash just before it. I did a google search and I came up with myoclonic epilepsy. Obviously, this is worrying and I wonder if other people have had this, have they just ignored it or brought it to docs attention. Thank you very much!
18 - 26 yrs - various antidepressants
30yrs (2013) - severe anxiety after doc stopped sertraline cold turkey to try mirtrazapine. Psych intervention. Put back on 200mg sertraline. Quetiapine given prn. Only took 5 times.
Tapered 100mg by December July 2014: 50mg Aug: 25mg Sept: 12.5mg Oct: 0mg
RI sertraline 8th October 2014 12.5mg
Reacted to brand change march 2015 and then liquid sertraline in same week. Back to normal brand.
18/4 -updose to 15mg slight relief 25/4 - updose to 20mg apathy but big relief from cortisol am, horror, dread, suicidal ideation, inner distress/restlessness so far. For few months stupidly went up and down doses every few days or weeks trying to find right dose between 30mg and 18mg
Recent: 21.5mg held 4 weeks. 10% cut. Crashed. Back up to 20mg. V bad crash.
1/8 - dropped sertraline to 20mg of prozac. Dropped to 10mg 5/8 to see if would help with insomnia and experiencing electrical current. 10/8 - 9.5mg 14/09 - 8mg 18/09 - 6mg headache and confusion and toxic feeling pain less on this dose


#52 Ever

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Posted 24 December 2014 - 01:00 PM
Last time I jumped off from 3mg, I began sweating at night.  Waking up covered in sweat.   Then I would spend hours shaking and freezing in bed.  Weird sort of freezing.   I haven't had those symptoms since the first day I re-instated at 2.3mg.   Don't know whether it helps....
Put on Prothiaden for severe depression in 1989.  Recovered.   Prescribed Paxil for another bout of depression around 2000.   Have been trying to taper ever since but always crash about 2 months after getting to zero.   Because of the crashes, for years I thought that there was something wrong with me.   Then found that the crashes were simply withdrawal.   Now following a maximum of a 10% reduction every month or so and ready to slow down any time I feel any symptoms whatsoever.  Feeling good:).
7th Jan 15 - 3.6mg
28th Jan 15 - 3.2mg


#53 Wildflower0214

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Posted 24 December 2014 - 01:08 PM
I've had it.
I think it's just another part of CNS out of whack.
2005-Zoloft bad reaction.....2006-Lexepro......2012-Upped Lexepro.......2013-Upped Lexepro......2/2014- Attempted Taper Lexepro...2/2014- Updosed Lexepro.......3/2014-Ativan.....5/2014- CT switch from Lexpro to Effexor.....
5/2014-7/2014-Tapered Ativan from 1mg to .25mg.....6/2014-Bad reaction to Effexor........7/2014- Rapid taper Effexor every other day......7/5/2014- Off Effexor.......7/2014-12/2014 - Ativan .25mg.......12/25/2014 -Taper Ativan by 4% due to paradoxical reaction .24mg...11/18/2015-Taper Ativan 1% CURRENTLY ON: .2376mg Ativan taken in 6 .0396mg doses.


#54 luv2knit

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Posted 02 January 2015 - 08:31 AM
I agree with JDM. I actually get this fairly frequently. Sometimes it is accompanied by chills, and my body temp. is low as well. Other times, I just get the shaking.
Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day).
Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired)


#55 moodyblues78

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Posted 02 January 2015 - 10:02 AM
My left hand was useless for a long time early on in my taper. It just shook and I had not much control over it. It got better in 2 months or so.

I got those whole body shakes too but they came and went away. The hand thing was much more annoying.
08 Cipralex 10mg for about 6 months. 11-12 Cipralex 20mg. Unsuccesful WD. 12-13 Zoloft 100mg with Diazepam 10-20mg as needed for anxiety.
Fall 13 Tapering Zoloft 100->50->25->12,5->0 in 2,5 months and CT Diazepam. 12/24/13 RI Zoloft 12,5mg
.
1/21/14 11mg
3/18/14 9,9mg
2/18/14 8mg
4/22/14 7,6mg
5/5/14 7,2mg
5/12/14 -> cutting 0,5mg per week, holding when necessary.
8/18/14 -> cutting 0,25mg per week holding when necessary.
10/20/2014 -> cutting 0,1mg per week, holding when necessary.
12/28/2014 Jump!


#56 Obstacle1

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Posted 02 January 2015 - 01:49 PM
I've had a similar experience with my legs shaking uncontrollably for around 30 minutes - both times I woke up around 5 am and it suddenly started happening. It was terrifying the first time as I didn't know what the hell was going on but I think a little better second time round since I realised it would pass in a little time.
Began paxil/seroxat 20mg in 2001 for social anxiety, age 14
Switched to liquid and at some point tapered down to around 7ml(14mg)
2007 tapered too rapidly down to 4ml had severe depression and anxiety for a year, stabilised at 6.6ml(13.2mg), same dose ever since
Have had 2 negative reactions then, one in 2010 and one in 2014. Currently recovering from this latest one, whole array of symptoms that come and go


#57 Petunia

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Posted 02 January 2015 - 05:37 PM
similar topics merged

*note
When you have a question or comment about a specific symptom, please search to see if we already have a related topic, we usually do.  Then you can benefit from previously collected information and add to the discussion.  This keeps the site organized with all available knowledge in one thread, easily accessible through searches.

The search function on this site doesn't work very well.   The best way to search this site for specific information  is to use Google.  Type in survivingantidepressants.org then the symptom or information you wish to search for.

If after searching, you can't find what you're looking for, please start a new topic.
I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary
Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety)
Xanax PRN
Various other drugs over the years for side effects
2 month 'taper' off Lexapro 2010
Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal
DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms
Failed reinstatement of Lexapro and trial of Prozac (became suicidal)
May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.
In protracted withdrawal, with a very sensitized nervous system, slowly recovering animal25.gif

Supplements which are helping me:  Vitamin C, Magnesium, Garlic and Ginger.  Taurine, Vit D3, L-Theanine and Inositol. I'm one of the rare people who react badly to fish oil.

VIDEO: Where did the chemical imbalance theory come from?


VIDEO: How are psychiatric diagnoses made?


VIDEO: Why do psychiatric drugs have withdrawal syndromes?


VIDEO: Can psychiatric drugs cause long-lasting negative effects?
VIDEO: Dr. Claire Weekes


 


#58 WiggleIt

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Posted 02 January 2015 - 06:18 PM
I went about three weeks without having an episode that I refer to as "Big Wiggle."  Yesterday and today I had Big Wiggle episodes, which are always accompanied by severe speech impediment.

Big Wiggle is when my whole body flops uncontrollably.  Arms, legs everywhere.  Sometimes I lay on the ground flopping like fish out of water, and sometimes it happens when I try to walk, so my parents must hold me so that I do not fall.  I am conscious, though, and an EEG of my brain did not detect any seizure activity.  But it does LOOK like I am having a seizure.

Anyway, I had many Big Wiggles during the first month off meds.  Then they settled down a bit for about two or three weeks.  Yesterday and today I had bad Big Wiggle episodes and the myoclonic jerks of my arms and legs are terrible, and when I talk out loud it is choppy with very simple words.

I am scared.  I had improved a little bit so that I was able to walk five laps in my hallway.  Now, I cannot walk five feet without my whole body twisting and writhing.

I haven't read of any cases as severe as mine on those whole site, nor anybody who has suffered from c/t or rapid taper of TCAs.

Certainly not reading any recovery stories of people manifesting as severely as me.  Sure, there's some people recovering from less severe-sounding TD and less-severe sounding MS-like symptoms, but I haven't read anything anywhere else about anybody flailing uncontrollably on the ground.  It is terrifying and I am sure I am going to die, or be stuck like this forever.  As long as my Mom and Dad are alive to take care of me, I know I can be brave.  But I am an only child, with no spouse or children.

If I am stuck with a whole body movement disorder and cognitive impairment, I'm ******.  There is no hospice that will be as kind or gentle with me as my parents are.

Today, I have not even been able to feed myself because my arms are jerking too much.  My parents have been feeding me with straws and spooning soft foods up to my mouth.  I am able to the this because it does not mater if my hands jerk while they hover above the keyboard, but if they jerk while i try to feed myself, then obviously food goes everywhere.

Seriously, though, NOBODY on this site seems as bad as I am and NOBODY on this site seems to have any experience with my class of meds.  There are so many sweet people here who are so encouraging, and I was encouraged for a few days, too, but now I am just as bad as I was at the VERY beginning, when we were calling 911 all the time because I was flopping on the floor.  The only difference now is that I know 911 is a waste of time.

So I just lay on the floor, flop, and whimper, "Please, please," over and over again.

And that's my life.
-Dual cold turkeys off TCA & Ativan in October 2014. Prescribed from 2011-2014, off-label for pain
-Meds were prescribed for an "autoimmune chronic pain disease."  It was a MISDIAGNOSIS, but did not find out until AFTER meds had caused total damage.  All med tapers & cold turkeys directed by doctors
-Nortriptyline from May 2012 - Dec 2013
-Desipramine from Jan 2014 - October 2014. 60 mg reduced by 10 mg each month. Held 30 mg for 3 months. Rapid taper over 1 week from 30 mg down to 20, 10, 0
-Lorazepam 1 mg per night in 2011. In 2012, used 1 mg per month or less.  Lorazepam on & off Dec 2013 - Aug 2014, did not exceed 1.5 mg, did not exceed 3x a week
-On desipramine had muscle tremors & rigidity. Were they side effects or withdrawal effects as I reduced desip throughout 2014? Or was I in WD from nortrip as I was on desip? First muscle/dystonia side effects started on nortriptyline, but docs were too stupid to help me figure it out
-Last dosage desip 10 mg on Oct. 29, 2014. Last dose lzpam 1 mg, Nov. 2, 2014. Paradoxical reactions to benzos after quitting TCAs
-Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.
-Month 7 off meds: hair falling out; no improvement in vision; still tardive dystonia; facial & tongue tics returned
-Month 8 off meds: thrown back to acute, including Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9 off meds: tardive dystonia worsened, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat.
-Month 13 off meds: Back to total acute, brain zaps back, plus developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs are now damaged


#59 Skylarblue75

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Posted 20 January 2015 - 09:35 AM
Hand tremors started for me back in November of 2012, they would subside when I took my benzo, and of course I was on a ton of other meds to, the psych dr just enjoyed the poly drugging.now since January of 2013 since I was rapid detoxed off benzos the internal shaking, tremors body shaking/tremors are non stop. I can't stand it, even my eyes vibrate at times, I mean when I sit still you can see the shaking it's like I'm plugged into a wall outlet, it's like a buzzing shaking. Ugh I hope that makes sense. It sometimes gets so bad at night I can't sleep. It also increases with stress and of course in the early am with the cortisol spikes. Ok I'm done
Spring of 1998 place on birth control pills for irregular bleeding, high testosterone and one ovarian cyst, stayed on until April 2004, told to take hormone holiday, conceived first son 4 months later-VERY BIG SUPRISE, was told wouldn't be able to have childern or would need reproductive doctor to help. Got pregnant again 2006 with second son easily, then was on/off birthcontrol again until October 2011, concieved 3rd son in October 2011(tried many times to get pregant again when 2nd child was close to 2yrs, hormone problems started again after 2nd child, along with thyroid enlargement.

Spring of 2001 celexa 10 mgs-rx'd by pcp for complaints of chronic fatigue, irritability and weight gain, stayed on until June 2005, switched to Lexapro 20mgs for PPD, stayed on Lexapro 6-7 months, couldn't afford to see psyh dr. and Lexapro, saw PCP switched back to 20mgs celexa in 2007, remained on until November 2011, was c/t off due to 3rd pregnancy, baby had umbilical cord defect, seemed ok during pregnancy, except for crying jags here and there. Our miracle baby was born July 20th 2012, healthy except with reflux. One month later the anxiety,restlessness,horrible crying, insomnia and the deepest depression ever. That started the psyh drug nightmare-benzo's,antidepressants, sleeping pills, mood stablizers. Nothing help made me worse, doctors just kept changing the meds frequently. 4 mental health hospitalizations, rapid detox off benzos Jan 2013, horrible withdrawal and still suffering withdrawal symptoms NO ONE BELIEVES ME, I feel like ive been on one consistant drug withdrawal for the past 2 years
January 2014 slow titrate up of lexapro to 20 mgs-horrible side effects!!, was just rapidly taper by current pysh off to pursade me to try an MAOI-no way!!! Was told should consider ECT


#60 Skylarblue75

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Posted 20 January 2015 - 09:36 AM
So sorry widget, I do get the jerks too but not as bad as your suffering. This is horrible
Spring of 1998 place on birth control pills for irregular bleeding, high testosterone and one ovarian cyst, stayed on until April 2004, told to take hormone holiday, conceived first son 4 months later-VERY BIG SUPRISE, was told wouldn't be able to have childern or would need reproductive doctor to help. Got pregnant again 2006 with second son easily, then was on/off birthcontrol again until October 2011, concieved 3rd son in October 2011(tried many times to get pregant again when 2nd child was close to 2yrs, hormone problems started again after 2nd child, along with thyroid enlargement.

Spring of 2001 celexa 10 mgs-rx'd by pcp for complaints of chronic fatigue, irritability and weight gain, stayed on until June 2005, switched to Lexapro 20mgs for PPD, stayed on Lexapro 6-7 months, couldn't afford to see psyh dr. and Lexapro, saw PCP switched back to 20mgs celexa in 2007, remained on until November 2011, was c/t off due to 3rd pregnancy, baby had umbilical cord defect, seemed ok during pregnancy, except for crying jags here and there. Our miracle baby was born July 20th 2012, healthy except with reflux. One month later the anxiety,restlessness,horrible crying, insomnia and the deepest depression ever. That started the psyh drug nightmare-benzo's,antidepressants, sleeping pills, mood stablizers. Nothing help made me worse, doctors just kept changing the meds frequently. 4 mental health hospitalizations, rapid detox off benzos Jan 2013, horrible withdrawal and still suffering withdrawal symptoms NO ONE BELIEVES ME, I feel like ive been on one consistant drug withdrawal for the past 2 years
January 2014 slow titrate up of lexapro to 20 mgs-horrible side effects!!, was just rapidly taper by current pysh off to pursade me to try an MAOI-no way!!! Was told should consider ECT


#61 WiggleIt

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Posted 20 January 2015 - 11:31 AM
Skylar, I am sorry this is happening to you, too. May peace and relief and mercy be granted to us so that we can live out the rest of our lives in health and joy.
-Dual cold turkeys off TCA & Ativan in October 2014. Prescribed from 2011-2014, off-label for pain
-Meds were prescribed for an "autoimmune chronic pain disease."  It was a MISDIAGNOSIS, but did not find out until AFTER meds had caused total damage.  All med tapers & cold turkeys directed by doctors
-Nortriptyline from May 2012 - Dec 2013
-Desipramine from Jan 2014 - October 2014. 60 mg reduced by 10 mg each month. Held 30 mg for 3 months. Rapid taper over 1 week from 30 mg down to 20, 10, 0
-Lorazepam 1 mg per night in 2011. In 2012, used 1 mg per month or less.  Lorazepam on & off Dec 2013 - Aug 2014, did not exceed 1.5 mg, did not exceed 3x a week
-On desipramine had muscle tremors & rigidity. Were they side effects or withdrawal effects as I reduced desip throughout 2014? Or was I in WD from nortrip as I was on desip? First muscle/dystonia side effects started on nortriptyline, but docs were too stupid to help me figure it out
-Last dosage desip 10 mg on Oct. 29, 2014. Last dose lzpam 1 mg, Nov. 2, 2014. Paradoxical reactions to benzos after quitting TCAs
-Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.
-Month 7 off meds: hair falling out; no improvement in vision; still tardive dystonia; facial & tongue tics returned
-Month 8 off meds: thrown back to acute, including Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9 off meds: tardive dystonia worsened, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat.
-Month 13 off meds: Back to total acute, brain zaps back, plus developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs are now damaged


#62 WiggleIt

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Posted 20 January 2015 - 11:32 AM
Buzzing shaking is a good way to describe it.
-Dual cold turkeys off TCA & Ativan in October 2014. Prescribed from 2011-2014, off-label for pain
-Meds were prescribed for an "autoimmune chronic pain disease."  It was a MISDIAGNOSIS, but did not find out until AFTER meds had caused total damage.  All med tapers & cold turkeys directed by doctors
-Nortriptyline from May 2012 - Dec 2013
-Desipramine from Jan 2014 - October 2014. 60 mg reduced by 10 mg each month. Held 30 mg for 3 months. Rapid taper over 1 week from 30 mg down to 20, 10, 0
-Lorazepam 1 mg per night in 2011. In 2012, used 1 mg per month or less.  Lorazepam on & off Dec 2013 - Aug 2014, did not exceed 1.5 mg, did not exceed 3x a week
-On desipramine had muscle tremors & rigidity. Were they side effects or withdrawal effects as I reduced desip throughout 2014? Or was I in WD from nortrip as I was on desip? First muscle/dystonia side effects started on nortriptyline, but docs were too stupid to help me figure it out
-Last dosage desip 10 mg on Oct. 29, 2014. Last dose lzpam 1 mg, Nov. 2, 2014. Paradoxical reactions to benzos after quitting TCAs
-Tardive dystonia, dyskinesia, myoclonic jerks ALL over body, ribcage wiggles, facial tics, twitching tongue & fingers, tremors/twitches of arms, legs, cognitive impairment, throat muscles semi-paralyzed & unable to swallow solid food, brain zaps, ears ring, dizzy, everything looks too far away, insomnia, numbness & electric shocks everywhere when I try to fall asleep, jerk awake from sleep with big, gasping breaths, wake with terrors & tremors, severely depressed.  NO HISTORY OF DEPRESSION, EVER. Meds CREATED it.
-Month 7 off meds: hair falling out; no improvement in vision; still tardive dystonia; facial & tongue tics returned
-Month 8 off meds: thrown back to acute, including Grand Mal seizure-like episodes. New mental torment, PGAD, worse insomnia
-Month 9 off meds: tardive dystonia worsened, dyskinesia returned. Unable to breathe well due to dystonia in stomach, chest, throat.
-Month 13 off meds: Back to total acute, brain zaps back, plus developed eczema & stomach problems. Left leg no longer works right due to dystonia, meaning both legs are now damaged


#63 btdt

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Posted 28 February 2015 - 11:09 PM
I have had jerks and shaking both.
In the past two years vibrating in one leg and arm on the same said at the same time.  No cause has been sought hence none found I had a neurologist apt to figure it out but when I got there I could not remember why I went and apparently my family doc who referred me could not or would not write arm and leg shaking on the referral.  The last apt was last Aug... it has taken 7 months to get an apt to ask the same question....oddly enough after two years of this it has changed and is just the leg that shakes most of the time.

I have this idea that my doctor no longer believes what I say here we go again... as I have had this before all based around symptoms from these drugs... it gets very old.
WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.
As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey.
http://survivinganti...ng-myself-btdt/
There is a crack in everything ..That's how the light gets in :)


#64 Bellisimo

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Posted 18 May 2015 - 05:08 AM
I havent been on here for a while because I feel much better but still I come back and read sometimes.

One of my major problems during these 21months free have been tremor, I have been shaking alot.. and my questions is, have anyone experience this increased of tremor if youi get excited about something?

Example, I can be calm and shakings is ok.. Then I start to get excited about something and suddenly I shake alot and need to calm down to not get more shaky... :/ I seem to be so sensitive to being too overwelmed and too sad bc then I just start to shake like crazy.
2007 - 2013: was on citalopram (tried to quit a few times, never worked, always went back on. max dose 40mg)
2012-2013: was tapering my citalopram all down to 2,5 mg then quit.
2013/aug: Took  my last pill
W/D hit me bad after a few weeks off my medicine.
2014/August: 12 months off (much improved)
2015/April: 20months off. ( much improved, still some symtoms comes in waves, but not so intense.)
2015/june: 22months off. FELT different than before, all shakings suddenly stopped, feel much better. a fantastic feeling!
2016/Feb : 2 years and 6 months off, END of my suffering. I feel perfectly fine and back to normal.


 


#65 Mikey1975

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Posted 27 June 2015 - 02:47 PM
Do many of you experience internal vibrations in your body like palpitations all over


#66 Petunia

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Posted 27 June 2015 - 08:15 PM
see:

tremors, shaking, body vibration - Surviving Antidepressants
I'm not a doctor.  My comments are not medical advise. These are my opinions based on my own experience and what I've learned. Please discuss your situation with a medical practitioner who has knowledge of tapering and withdrawal.

My Introduction Thread

Full Drug and Withdrawal History

Brief Summary
Several SSRIs for 13 years starting 1997 (for mild to moderate partly situational anxiety)
Xanax PRN
Various other drugs over the years for side effects
2 month 'taper' off Lexapro 2010
Short acute withdrawal, followed by 2 -3 months of improvement then delayed protracted withdrawal
DX ADHD followed by several years of stimulants and other drugs trying to manage increasing symptoms
Failed reinstatement of Lexapro and trial of Prozac (became suicidal)
May 2013 Found SA, learned about withdrawal, stopped taking drugs...healing begins.
In protracted withdrawal, with a very sensitized nervous system, slowly recovering animal25.gif

Supplements which are helping me:  Vitamin C, Magnesium, Garlic and Ginger.  Taurine, Vit D3, L-Theanine and Inositol. I'm one of the rare people who react badly to fish oil.

VIDEO: Where did the chemical imbalance theory come from?


VIDEO: How are psychiatric diagnoses made?


VIDEO: Why do psychiatric drugs have withdrawal syndromes?


VIDEO: Can psychiatric drugs cause long-lasting negative effects?
VIDEO: Dr. Claire Weekes


 


#67 Mikey1975

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Posted 28 June 2015 - 01:45 AM
Have you got an advice on how to calm these vibrations they are worse than ever feels like my body is jumping around inside 24 7


#68 katieb

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Posted 28 June 2015 - 02:01 PM
I get this .It's a new sympton for me .Very odd feeling.I used to get it just in my head but recently it's been all over my body.I just have to wait until it passes.
Been taking paroxatine for approx 15 years.Tried a few times yo stop but failed. Am currently on 3.5mg liquid
Jan 2016 been slow tapering paroxatine and i am currently at 2.9 mg and last drop was 5 weeks ago.
Started to feel awful about 3 weeks ago with brain 🌁 , shakes, blurred vision and dizzyness. ..


#69 btdt

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Posted 28 June 2015 - 09:21 PM
btdt, on 01 Mar 2015 - 08:09 AM, said:
I have had jerks and shaking both.
In the past two years vibrating in one leg and arm on the same said at the same time.  No cause has been sought hence none found I had a neurologist apt to figure it out but when I got there I could not remember why I went and apparently my family doc who referred me could not or would not write arm and leg shaking on the referral.  The last apt was last Aug... it has taken 7 months to get an apt to ask the same question....oddly enough after two years of this it has changed and is just the leg that shakes most of the time.

I have this idea that my doctor no longer believes what I say here we go again... as I have had this before all based around symptoms from these drugs... it gets very old. 
No word on the shaking yet but a neurologist said I had a psychogenic movement or reaction in my leg don't recall what word he used.. He wrote it down for me the neuro surgeon said it was nothing when I showed him the paper.. so I guess it is nothing. Or one more thing that is all in my head.  I am use to it me the big google person I have not even looked it up.  I don't know it this has anything to do with shaking or not seems to me part of the movement was a shake.
WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.
As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey.
http://survivinganti...ng-myself-btdt/
There is a crack in everything ..That's how the light gets in :)


#70 Mikey1975

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Posted 30 June 2015 - 05:26 AM
Mine are internal tremors / vibrations that feels like my body is jumping it started in the chest and now on different parts


#71 Rosy

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Posted 03 August 2015 - 06:17 AM
Do I understand it wrong, or can it be the Omega 3 supplements that might causes one's body to tremble / shiver?   I'm off Cymgen now for 2 weeks after tapering it down over 2 months and was placed on Trazedone (50mg) and now suddenly I experience this trembling / shivering feelings during the night.
I tried (as per advice from the psychiatrist) to increase the Trazedone dosage to 100mg, but I could not as it felt like my head was cutting in half (sharp pain) and then the trembling the whole night through.  Then I decided I'm back on the 50mg as the side-effects was not nice and since then the trembling continues every night.  What might this be?? Should I stop using Omega 3?  Might it be the withdrawal symptoms of the Cymgen?
On Cymgen since 2011.
Menopausal since 2014 - on several HRT (do still have ovaries and womb in tact) - Anqelique for 3 months; then Livifem (6 months); then Femoston Conti (1mg) for 5 months; then Novofem (1 month);  now clean for 1 month.  Since Jan 2015 I'm on Remeron (7,5mg).
Severe anxiety experienced after a while on each HRT - doctors realized then it was actually my Blood pressure that was sky high.
Now on Cozaar (25mg) as well.  Psychiatrist felt that I have to wean off Cymgen (30mg) as it might causes anxiety after my GP increased the dosage to 60mg and I felt terrible on it. Then psychiatrist also prescribed Trazodone (50mg) and Purblocka (10mg x 3/d) for anxiety.

I'm started to wean off since beginning June 2015 - breaking capsules in half and drink half a capsule every day, but became very sick after 2 weeks.  Then GP suggested I drank it full dosage again for 4 days and then wean it off drinking full dosage (30mg) every 2 days for 2 weeks, and then one pill every 3rd day for 2 weeks, which I did. I'm off the Cymgen now for 2 weeks, but get severe back pains, dizziness, anxiety etc.

So I'm only drinking now:
Remeron 7,5mg
Trazedone (50mg)
Cozaar (25mg)
Purblocka (10mg x 3/d)


#72 Cookson

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Posted 14 August 2015 - 03:48 PM
I don't tremble much now, although not sure if others can relate but when I go to bed I can feel the back of my neck/head shaking?
2013-July 1st Citalopram 20mg ()
2013-August 19th ended Citalopram cold turkey
med free.  (Took them for 7 weeks)

When I was a child, I spoke as a child,
I understood as a child, I thought as a child;
But when I became a man,
I put my childish things away.

- 1 Corinthians 13:11
 



    

          

            




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