Tuesday, 17 December 2013

Again stuck on MSS boards desperately wanting advice, its heartbreaking, it really is

Scared
Author
Post
sailingwave
15 Dec 2013 at 1:30PM
Hi, I am very scared and my Dr have made an appointment to see a neurologist ,I really need to talk with someone about MS I woke up this morning terrified. I have been feeling fatigued and run down for nearly two years now and i don't know what way to turn. I feel desperate will someone please email me at [Edited - please use PM facility] Thanks Nick
Blossom
15 Dec 2013 at 5:00PM
Hello Nick.  Hope someone's contacted you.  This is a scary time,hopefully you won't have too long to wait before seeing neurologist.  There is a helpline you can ring on this website in the morning or the samaritans if you feeling really desperate and need someone to talk to.  The samaritans number is; 08457 90 90 90 
pigpen
17 Dec 2013 at 5:52AM
hi nick
don't waste time worrying because you never get that time back.
now if it turns out to be ms there are a lot of options for you.
not just the disease modifying drugs but also things like hyperbarric oxygen therapy (HBOT) and LDN (low dose naltrexone)
maybe a bit of research into these will give you less time to worry.
HBOT can be accessed at a ms therapy centre as well as loads of other therapies.
LDN can't be had on the NHS but it only costs about £18 per month.
good luck
carole x

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