Thursday, 23 October 2014

Misdiagnosed and left on MS Society message boards, how fair is that

Need help feel so confused???!
Ok I reallyboards need some help I have just been diagnosed and I need to hear from some people about there experiences and to see if anyone has had one similar to mine
it all started on October 8 I got a sudden sharp pain in my head and long story short on October 12 after 2 hospital visits and 1 doctor visit they finally took me serious and kept me in. I got dizziness and severe head pain and face muscle loss on right side I couldn't taste things and loss of balance I looked like I had a stroke. It was a very severe attack. Especially for someone who didn't even know they had ms.
so a few months later I was disavowed with ms. 6 months exactly after I got 5 days of tingling very slightly in my arm wer I had it before except it was no wer near intense I could hardly recognise it. However I went to the hospital because my wife made me and a few days prior to this I had my MRI scan because I was due my 6 month check up and it found out that I had 2 New lesions or my brain. So the nurse and the hospital then said because it lasted less than a week it wouldn't be classed as a attack and said people go there whole life's with flare ups because of the lesions scared the brain it s just letting you know there still there ect.
 After that I got diagnosed with  relapsing remitting ms by another doctor who then told me that having two attacks in the first year isn't a good sign and he wants to put me on tysbari. I'm just abit concerned I'm getting my first course so tysbari on Monday. But apart from the first major attack and that tiny flare up that didn't even bother me I haven't had nothing at all to say I suffer with ms. And now I have to start tysbari I'm scared that this is going to make me start getting things tk make me feel like I have ms ? Dos this make any sense. I'm completely fine without it and I'm scared if it's going to make my body prone to it. I really need some advice and hope someone can help me on this and help me calm down or whatever I so sorry but I'm so confused. My brother in law specialises in ms and he recons I shouldn't have been diagnosed so quickly ? Please share your stories and help me know if anyone has gone through something like this before. Thank you so much

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