Wednesday 23 October 2013

I have watched this video - It asks many questions - and needs an expert in the musculoskeletal system to answer it

please watch my video, want advice :)
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Mreed
23 Oct 2013 at 1:21AM
hey, i have many symptoms that present as MS but i think it probably is not and so does my neurologist especially after MRI came clean. I find my neurologist difficult though, not good for listening and seems to be clutching at straws and is not sure really what is going on with me. i'm going to be tested to pots but it doesn't fit at all for me either.

I have this thing that i can't find anything about online, when i tense a muscle they spasm like crazy, at least they did before amitriptyline, now they still spasm but much less, and this drug has helped me a great deal.
here is a link to a video of what happens, here i am just thensing the muscles in my arms, the movement is involuntary, but stops when i relax muscles. i feel this is why i was in so much pain, like the muscles are working against eachother or something.
http://www.youtube.com/watch?v=y47fKt4Ftvo&feature=youtu.be
please if someone else has this let me know :)
thanks
Leora
23 Oct 2013 at 11:13AM
I have no idea, never seen anything like that before, must be horrid. If your Neuro is not getting to the bottom of things, maybe it's worth asking for a second opinion? Hope it gets sorted for you, good luck.
Leora
Mreed
23 Oct 2013 at 5:46PM
I'm still trying to convince my neuro I'm not imagining everything, I haven't shown him this yet, forgot as he would not let me use notes. 2nd appointment in two weeks, hoping he will let me speak this time
Leora
23 Oct 2013 at 7:38PM
I'm confused about how he can 'not let you use notes'? That's not his decision to make. Yeah he should definitely let you speak, you are the patient after all. How is he going to find the problem if you can't communicate your problems properly? If your next appointment is as non productive, I would def seek another neuro's opinion . He sounds like a hack, Good luck though, hope you find an answer.
Mreed
23 Oct 2013 at 8:08PM
I think he was having a bad day, he was shouting at receptionist whilst I was in waiting room because my notes weren't ready, then he got more upset because he thought I was coming about a tremor but I came with many many symptoms. I think he was not well prepared.... I've found these people very proud, too proud often.

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