Although Boudica means well, but convincing someone to accept the unacceptable is the worst advice, The MS Society is littered with hugs and kisses, lot's of sorrys and welcome to our gang or club, and thats why its dangerous to go on these message boards, it is all well meant, but truly damaging.
Acceptance
11 Oct 2013 at 10:23AM
I was diagnosed three months ago and have been started on
immune modulators. To help me keep seeing "the bright side of life" have
given up my career as a health professional and am taking a time out to
look after myself while I come to terms with things. Feel that it's
needed as I was getting anxiety from the stress of working in the NHS
and didn't think continuing in that mode was conducive to me helping my
immune system! Just wondered how long others have taken to come to terms
with things? I know it's probably very subjective.......
11 Oct 2013 at 10:51AM
Hi I was diagonoised in July this year and still getting my
head around around it, I've stopped the crying but still have good and
bad days were I feel sorry for myself and that just isn't me I'm usually
the strong one. I have a weakness in my leg so can't walk far and I
look at people jogging and walking and think why me and not you and then
feel guilty for having these thoughts. I was a senior working full time
in a dementia home but luckily they have been really supportive and am
starting as a receptionist part time next week has I have been
struggling for about a year thinking I just had a trapped nerve or a
slipped disc and eventually work made me see a gp and hey ho now have dx
of ms. I saw my physio yesterday for the first time and feel a lot more
possitive. Hope you can come to terms with it and I regular come on
here and feel there is a lot of support on herexxx
11 Oct 2013 at 8:19PM
Hi I have been in and out of here a couple of times in the
last 2 years. I haad transverse Myelitis with clear brain MRI, ended up
with a Behcet Disease diagnosis which can present much like MS...sadly
there is now doubt whether it was the wrong diagnosis or have MS in
addition. Anyhow I had to see a psychologist as part of the pain clinic
routine. She felt I had not accepted the prognosis of a chronic lifelong
illness and gave me a reading list of acceptance and commitment
therapy. I am an avid reader so I gave it a try but I thought it was
pants.....however after the last really big relapse I have accepted life
can no longer be the way that it was, and I too am considering giving
up what was a great career. So I think that you may be closer to
accepting your diagnosis than you think as you have already made the
leap of putting your health first. I am still a little bit scared of
re-inventing myself.
11 Oct 2013 at 11:32PM
Hi, I was told likely PPMS in July so yes, a lot of tears
that month. PPMS is difficult in that when you have a bad day, you can't
really be sure if the next day will be any better BUT you still hope
it will be.
I guess in some ways I do live in hope rather than having a real acceptance but the tears are less often now and I am generally coping. I'm self employed so I feel I have to just get on with things as best as I can... I had to give up my part-time job at a gym.... yep, I taught classes up to a month before my initial Dx - like Mands, I thought I had a trapped nerve or I was overcompensating for some ligament damage!
Good luck, I think we all just find a way ;)
Sonia x
I guess in some ways I do live in hope rather than having a real acceptance but the tears are less often now and I am generally coping. I'm self employed so I feel I have to just get on with things as best as I can... I had to give up my part-time job at a gym.... yep, I taught classes up to a month before my initial Dx - like Mands, I thought I had a trapped nerve or I was overcompensating for some ligament damage!
Good luck, I think we all just find a way ;)
Sonia x
Hello you newly diagnosed folk!
The word `acceptance` is a great word to me. i use it a lot when i see people are fighting a diagnosis. To me, doing that is a huge waste of precious energy.......whether it be physical or mental.
I know being diagnosed with something as chronic and incurable as MS, is absolutely terrifying.
But we know, from members here, that there is life after such a diagnosis.
Life can still be lived in a good and fulfilling way. Maybe it won`t be the life you planned for yourself, when thinking about your future years.
You may feel you are not you..........for a while, but you are.........you`re just a slightly different you..........it may take a lot of self searching to realise that.
Never ever belittle yourself, never ever think you aren`t worthy of being listened to, or having good relationships with present or future partners.
If a relationship breaks down due to your MS, or whatever, then that relationship was probably never meant to last.
Whoever you are ...you are a VIP...........don`t ever forget that, okay?
much luv Pollyxxx
The word `acceptance` is a great word to me. i use it a lot when i see people are fighting a diagnosis. To me, doing that is a huge waste of precious energy.......whether it be physical or mental.
I know being diagnosed with something as chronic and incurable as MS, is absolutely terrifying.
But we know, from members here, that there is life after such a diagnosis.
Life can still be lived in a good and fulfilling way. Maybe it won`t be the life you planned for yourself, when thinking about your future years.
You may feel you are not you..........for a while, but you are.........you`re just a slightly different you..........it may take a lot of self searching to realise that.
Never ever belittle yourself, never ever think you aren`t worthy of being listened to, or having good relationships with present or future partners.
If a relationship breaks down due to your MS, or whatever, then that relationship was probably never meant to last.
Whoever you are ...you are a VIP...........don`t ever forget that, okay?
much luv Pollyxxx
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