Tourette’s, Tics, and OCD
Why Biomedical Testing for Tourette’s, Tics, and OCD?
It has been observed in clinical studies that individuals with Chronic Tic Disorder (CTD), Tourette’s syndrome and Obsessive Compulsive Disorder (OCD) are also predisposed to having physical problems that co-exist in addition to the symptoms of the disorder. These include:- Allergy
- Anxiety
- Attention Deficit Disorder
- Autoimmune Disease
- Chronic Pain
- Cognitive Difficulty
- Eating Disorder
- Headaches and Migraines
- Hyperactivity
- Inflammation
- Poor Immunity
- Restless Leg Syndrome (RLS)
Clinical studies have shown that these physical conditions associated with CTD, Tourette’s Syndrome, OCD, and Depression are also associated with oxidative stress, mineral deficiency, and microbial imbalance. Very often, these abnormalities are not identified through routine lab work and are dismissed as insignificant when they are discovered. The reality is that the specific concentration of the mineral balance in the body has a profound effect on the response of the immune and nervous systems. Furthermore, individuals prone to inflammation and oxidative stress are more susceptible to opportunistic pathogens. These pathogens can hinder (either directly or indirectly) proper digestion/absorption and create further oxidative stress and mineral deficiency in the body. Unless properly addressed, this vicious cycle will continue to inhibit the various chemical pathways necessary for proper neurological and immune function. The resulting complications will contribute to, and may even cause, the symptoms of CTD, Tourette’s syndrome, OCD and Depression.
Some individuals develop symptoms of CTD, Tourette’s syndrome, and OCD as a result of brain trauma. Such damage will likely contribute to a lifelong condition which may be minimized by proper assessment of the physical response to the trauma. As observed in clinical studies, there can be other factors such as inflammation which also occur simultaneously in the body. These factors may go unnoticed for a period of time and lead to the progression of the symptoms CTD, Tourette’s and OCD. At times, the only visible symptoms are those of CTD, Tourette’s syndrome, and/or OCD. Non-routine testing may still be very useful in these cases where no other physical symptoms are apparent and the cause is known.
Great Plains Laboratory is the industry leader in biomedical testing and is committed to bringing about corrective balance through the proper diagnosis. The tests that we recommend are designed to identify complex chemical abnormalities that can often be treated through diet, supplementation, elimination, detoxification and other appropriate remedies. When balance is restored, the symptoms of CTD, Tourette’s syndrome, OCD, Depression, Migraine, Chronic Pain, RLS, Inflammation, and other symptoms are significantly reduced and sometimes eliminated altogether.
Core Panel
IgG Food Allergy Test w/ Candida: The improper digestion of foods can cause inflammation and immunity problems which contribute to the formation of allergies. The IgG Food Allergy Test w/ Candida will identify the specific antibody that is not commonly tested by physicians. This antibody stays in the body much longer than the traditional IgE antibody commonly tested. The elimination of the offending food will help strengthen the immune system and can reduce symptoms of cognitive difficulty, fatigue, chronic pain, headaches, and more.Metals Hair Test: Heavy metal representation can be difficult to determine because heavy metals will bind to soft tissue and are not water soluble. Hair is a soft tissue and therefore can give an accurate reflection of heavy metals in the body. Heavy metals can have profound effects on neurotransmission and immunity. When toxic metals are reduced, immune function and neurotransmission are greatly improved. This test will also evaluate the balance of essential metals such as selenium, phosphorous, lithium, and more which are needed for proper immune and brain function.
Organic Acids Test: We have patented the specific byproducts of certain opportunistic pathogens that are only available through this test. We can identify an overgrowth of yeast and bacteria more reliably than a common culture. The test will also identify deficiency of essential nutrients such as vitamins and antioxidants as well as oxidative stress and detoxification ability. All together we test for 65 metabolites that relate to yeast, bacteria, water soluble vitamins, oxalates, neurotransmitters, mitochondrial function and other metabolic pathways which can have adverse effects on immune and neurological function.
Streptococcus Antibodies Profile: It has been observed that individuals who exhibit symptoms of CDT and Tourette’s syndrome may also have elevated streptococcus antibodies. These antibodies occur naturally as we encounter these bacteria. When they persist in high levels for long periods of time, they have the potential to interfere with structurally similar proteins in the human brain and cause symptoms of yelling, motor tics, aggression, unwanted thoughts, hallucinations, and repetitive behavior.
Advanced Cholesterol Profile: A direct correlation exists between the concentration of cholesterol in the brain, particularly the myelin, and how well the brain functions. Low values of cholesterol have been identified in almost 60% of children on the autistic spectrum. The panel developed by Dr. William Shaw will help determine whether cholesterol deficiency or abnormalities in cholesterol transport is a problem. Without proper cholesterol, gene expression, neurotransmission and hormone synthesis are all impaired.
IgE Inhalant Allergy Basic Test: Research indicates that individuals with Tourette's Syndrome have a higher level of classic allergy than the general population. Environmental factors can contribute to dizziness, headache, tremor, fatigue, tics, hyperactivity, muscle spasms, and more. Thorough examination of the environmental factors that cause a reaction will help speed up the process of elimination from the home and the body.
Enhanced Panel
Comprehensive Stool Analysis: Many predisposed individuals often have a compromised immune system. They are more susceptible to opportunistic pathogens in the gut which creates imbalance and inflammation. The comprehensive stool test cultures beneficial bacteria, imbalanced bacteria, dysbiotic bacteria, and yeast to determine the exact species so that correct treatment can be administered. The test will also measure digestive enzymes, inflammation, microbial resistance, short chain fatty acids, Secretory IgA and more.Gluten/Casein Peptides Test: We have isolated several proteins found in wheat and dairy which mimic opiate receptors in the brain called neuro-peptides. These peptides are often poorly digested by individuals with TS and CTD. These peptides have the potential to interfere with neurotransmission and cause cognitive difficulty.
Copper/Zinc Profile: Zinc affects many different aspects of the immune system and of gene expression. Deficiencies cause a decrease in immune response which contributes to many of the issues of toxicity, illness, and disease. Zinc is inversely related to the copper in the body and so both of these metals are measured in tandem with each other. Zinc deficiency may lead to excess copper. Access copper will lead to oxidative stress on the body.
Immune Deficiency Profile: The B-lymphocyte cells of the immune system produce antibodies called immunoglobulins. These antibodies are designed to react against specific antigens (foreign molecules) introduced into the system by microorganisms of various types. Antibodies react against microorganisms (viruses, yeast, parasites, and bacteria) and allow them to be killed by the white blood cells. Composed mostly of amino acids, antibodies are proteins and are divided into five major antibody classes (IgA, IgG, IgM, IgD, and IgE). This test measures the availability of all these immunoglobulins as well as zinc. Measuring serum zinc level is important in assessing immune function because it is crucial for the normal function of other immune system cell types that mediate nonspecific immunity.
Amino Acids Urine Test: Amino Acids are the building blocks of proteins. The method by which we break down and absorb proteins can give an indication of foliate, magnesium, and zinc utilization. It will also provide insight about the digestion and absorption of all the amino acids. Certain Amino Acids are also themselves neurotransmitters.
References
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The spasm is involuntary muscle guarding as the muscles brace to protect the cervical spinal cord from injury.
I have been working with a chiropractor who specialises in functional neurology for some years now, and am well aware that I have had longstanding deficits of body awareness especially in the right upper quadrant. These were easily demonstrated on the more sophisticated chiropractic neurological examination that was done on me. (Us doctors have a LOT to learn).
However- due to a combination of QiGong, and some rhythm related meditation with great emphasis on balance and exact awareness of foot placement I actually tuned off the neck spasm and pain about 3 weeks ago. This is quite a remarkable result- and I now understand that the basic problem was one of my brain receiving mismatching sets of visual, proprioceptive, tactile and vestibular information– and getting very overloaded.
The other nice aspect of this is that it has completely turned off the last of my ADHD symptoms- and it happened virtually in an instant. I am now looking at a way of simplifying and operatonalising these findings to make them more widely applicable.
Which doctor did you see at kempsville? Looks like a great place. Thank you. Anja
Will your chiro adjust your C1? Not all will do this.
Good luck.
Ljdebernardi@gmail.com
LIL
Other options are to be found through the “NUCCA” website and also any practitioner of Sacro-occipital technique should be able to remedy the problem without excessive force.
I am fortunate to see one in my locale, Bloomington Minnesota. David Philips is his name.
“…..we seal ourselves in within a linguistic shell of dis-empowered perception.” ~Terrance McKenna
How are you doing now with your symptoms?
Best anja
I had already diagnosed this in myself. I backed into the diagnosis in a roundabout way, but the day I cradled my head in my hands pressing in with my thumbsjust below and behind the ears did I feel the misalignment of the atlas (the left side did not feel like the right side). I could feel a slight bony-like projection on my left side, but for the life of me no matter how much I searched find any such structure on the right side (no matter how deep I explored with my thumb). Therefore, I pressed extremely hard on the left side trying to force the bone to the right back into place. I used a hard plastic case, using the heal of my left hand to push against it while bracing the neck on the right with my right hand. I had some success but the bone would always float back to the left. Finally this morning while lying in bed I once again used the plastic case, but this time positioned it very tightly and immediately below the mastoid process on the left side. I positioned my right palm over the mastoid on the right. Pushing with the left palm on the plastic case while resisting with the right hand and at the same time trying my best to relax the neck muscles. Guess what? I can now feel the bone on the right side. The left and right sides feel the same. This has not been the case.
Now going forward I will need to maintain the ground I have taken and build on this success. I am now hoping that my sleep will improve and with it my energy level and love for life. I cannot expect this one thing to make all the difference. It will take effort on my part but I am hoping this small change will be the tipping point for me to move in a positive direction.
I am glad that the information was useful.
If you could manage to settle it yourself you were lucky- most cannot.
I certainly would not recommend that anyone try to repeat the exercise themselves!!
My blog needs major revision, as my biggest discovery has been that the original injury caused brainstem injury that left me with long term balance and co-ordination issues.
It has taken me years to get on top of these.
I am finally getting close- but I must stress that the aim is to achieve an upright, flexible posture and good eye hand co-ordination.
By “Upright” I mean SO upright that your ear canals, the centre of your shoulder joints and the centre of your hip joints lie in the one vertical plane.
This takes quite a bit of work- but the rewards in term of ability to remain calm and focussed are huge.
The reason this blog has remained anonymous has been the serious hostility I have faced from my local colleagues when I bring this matter up for public discussion.
That matter is close to being resolved, and when it is, I hope to have time to give more information on the blog.
For the meantime- it is well worth your while to go to the site psychevisual.com and look up a talk by the chiropractor Ian Niven on “visual suppression of the vestibular system”, another one by randy beck on “Clinical correlates of traumatic brain injury” and another by Matthew Holmes on “Cervical dystonia following central nervous system injury – a case study highlighting the functional neurology approach”. it costs $20 to subscribe for 1 month- but is worthwhile.
See the Biedermann book I have referenced.
I am doing specific exercises designed to correct the brainstem problem- a slow process, but progressively successful.
(Functional neurology- a new branch of chiropractic- still somewhat controversial with the conventional medical profession, but I am clear as to my improvements in reflexes, coordination and regulation of the stress response. Thankfully I have the anatomical knowledge and clinical skills to assess this- but this is an area where individuals must do their own research and make their own decisions).
100 Chiropractors over the past 20 years..but never an atlas expert.
Any suggestions for one near Santa Barbara CA.?
Thanks
Lillian
Be sure that your advisor is well informed of all sides of the argument before committing.
Your orthopedist is too ignorant to be fit to comment.
I found my major atlas subluxation was nicely fixed by one treatment with Atlas Profilax, but that correcting the rest of the spine and relearning abberant movement patterns related to my old scoliosis has been a much slower process.
Thanks! Anja
Stay tuned, there is much more information to come.
My experience is that I was badly injured by my profession’s foolish insistence that us doctors knew everything and chiropractors knew nothing.
Unfortunately to even voice that opinion in Australia is to risk the wrath of some very senior and powerful figures in the medical profession who are attempting to get chiropractic courses driven out of Australian Universities.
If I could pin this ignorance down to one individual, I would gladly sue for damages.
However I had some cervical flexion and extension xrays taken by a surgeon. He held my head in position to do them and forced my head forward and backward. He said he saw nothing to concern him whatsoever with the bone alignment and the twist and head pulling over was all down to a muscular issue. I am confused as if the muscles are in so much spasm I fail to see how the bones can be in alignment and also to how it differs to what I see from My Nucca xrays.
Who do I listen to? The Nucca doctor or the ortho guy. Do I get adjustments of massage? Any advice most welcome. Thanks so much
However,anomalous neuromuscular activity does develop and maintain this problem, and may need further work to deal with it.
Chiropractors are well trained to deal with this.
Do you mind telling me what the electrical stimulation was?
The issue is that when the suboccipital muscles are in spasm the tonic neck reflex kicks in and pulls everything else into the wrong position.
It can take some time for the adjustments to hold, your neck has become accustomed to being
in this position.
May i ask, what type of adjustment did the chiropractor do to cause your problems?
The NUCCA chiropractors do not ‘crack or ‘pop your neck or spine and would be the most
Benefical to your needs.
Hello from Minnesota USA. Medical doctors don’t seem to have answers. In regard to the Atlasprofilax, why don’t you ask my upper cervical chiropractor. Here is his e-mail.
DPPhillipsdc@gmail.com He is really nice and compassionate individual.
Teresa
Now as far as Atlas Profilax goes- my medical defence organisation has warned me that they would not insure me for any incidents involving Atlas Profilax- as the practitioners were not registered by AHPRA.I would comment though that they clearly arrived at that decision without having done due diligence on the subject and they refused to look at further information I offered to supply. My own experience of Atlas Profilax is that I have personally referred a good number of patients (about 100) all of whom did well. Another doctor I know has referred about the same number and those 200 recommended the treatment to their friends- resulting in about 200 more referrals- so I have seen a good case load.
However not all Atlas Profilax practitioners are trained enough to take people through the ongoing bodywork required to correct chronic postural issues associated with a longstanding atlas injury (these include fascial contractures, arthritic facet joints in the spine, sometimes spinal crush fractures and collapsed discs, and longstanding abberant patterns of movement. In this regard a good upper cervical or sacro-occipital proctitioner is the best option.
I would also disagree that Atlas Profilax is “the only” procedure that can correct the malalignment, and that atlas malalingments that have been corrected by Atlas Profilax always stay in place.
My own personal experience was that I had a rotatory misalignment of about 25 degrees and that the atlas profilax corrected that in a way that was uncomfortable but not painful, certainly did not seem risky, and produced an immediate result.
However- correcting my posture fully has been a big job and is taking a long while – and minor recurrent subluxations do occur. For those I have definitely found chiropractic effective and safe, and also more affordable than repeat episodes of Atlas Profilax.
What I would like to see would be more collaboration and less competition between Atlas Profilax and other manual and manipulative therapy traditions.
So- to answer your question- it really is something that you have to decide for yourself, but there is enough information there re safety.
Look especially at the atlantotec website– “their technique”- is actually virtually identical to Atlas Profilax– in fact I am told by an Atlas Profilax practitioner that they are a breakaway group from Atlas Profilax. However- they do have a study of 500 patients published on their website.
However, I have found that good chiropractors provide more comprehensive treatment than Atlas Profilax, that only fixes the one 9very important joint).
I have done enough research to be confident of sacro-occipital chiropractors and specific upper cervical chiropractors.
See http://isyourheadonstraight.com/prac2.asp?rid=1 and http://isyourheadonstraight.com/prac2.asp?rid=1 to find practitioners.
It sounds like an XRay would be in order.
As for heavy school bags- they will definitely make things worse- though the postural deformity caused by an atlas subluxation leaves one shoulder sitting up high- and people then prefer to use that shoulder to carry bags as the bag doesn’t fall off. An odd aside is that women always complain of the bra strap on the low shouler falling off and can never figure out wh until shown their posture.
My question to you is this, i have suffered for about 20 years now with a laundry list of symptoms. Many of them I am sure can be attributed to the Atlas issue and new chiro agrees. My primary issues now that making my life a living hell are allergies (which only started about 4 years ago), asthma (also started about 4 years ago), dizziness, vertigo, motion sickness, panic attacks, hear papks, etc. that come out of seemingly nowhere, etc. Chiro thinks these are probably Atlas related. However I also have suffered from chronic candida, leaky gut, digestive issues, etc, for around 20 years, viruses, bacterial infections, etc. I am 47 now, i have done the diets, anti-fungals etc., and nothing has helped. I read on another Atlas blog that the Atlas can lead to dysbiosis, due to a redirection of blood flow away from the gut. Do you feel that the Atlas can be the cause of candida and/or leaky gut in any way and do you have any suggestions on how to remedy it once snd for all? As I said, I have done the diets, probiotics, anti-fungals etc., all to no avail. I’m pretty desperate, tired of being fat and tired, and of eating such limited things. Thanks.
Look at this webpage:
http://www.dyslexiaonline.com/blog/intriguing-dyslexia-adhd-research-explains-hidden-origins-successful-treatment-phobias-announced-dr-harold-levinson/
So the issue here is that we know via the work of Heiner Biedermann and his colleagues (see Manual Therapy in Children) that the atlas problem is well and truly linked to balance/vestibular issues– and that there is a direct link between balance issues and stress/ anxiety.
The latest information is that a dysregulated stress response will lead to an imbalance between the helper and suppressor sides of the immune system (and that is putting it very crudely)– so asthma and allergies are likely to be part of the broader picture.
Re gut– the problems with chronic stress will divert blood flow away from the gut. The immune dysregulation is likely also to substantially increase the number of infections you get, and to increase your chances of being treated with antibiotics. Both impaired blood flow to the gut (via impairment of mucosal permeability and also altered gut motility and acidity), and increased antibiotics should be expected to be risk factors for intestinal dysbiosis &/or leaky gut. This problem in turn will further compromise good health and emotional regulation.
I would concur with your chiro (though still have trouble formally proving this as comprehensively as I would like).
However – with the atlas– when it is back in place– the rest of the issue is the small problem of keeping it back in place. My atlas was first corrected at age 47 by the supposedly one time Atlas Profilax- but my posture was distorted, my movement patterns were problematic and I am stuck with too much time at the computer.So- after another 4 years- I am pretty sure the problem is now fixed.I can certainly sense if it goes out and fix it very fast- and am now back in place and stable for the vast majority of the time.
Re Infections- I used to get 8 upper respiratory infections a year- (as a doctor I am in the firing line). I have had one or two in the 4+ years since the atlas was corrected by Atlas Profilax (which I regard as a good method, but not quite as good as its promotional material!)
I have found that I have got the best value from sacro-occipital chiropractic. They have a whole spine approach and gentle techniques.
I do note slow progress at the atlas area with some of my patients- and wonder if they might need one or two specific upper cervical adjustments.
These problems are complex and do not lend themselves to single treatment approaches in most cases- and any practitioner should be up front about that.
I expect my practitioners to be able to give me a good explanation of what progress they expect, and what clinical features tell them when it is time to change course.
I am happy for practitioners to offer a discount for a course of treatment versus session by session- but I would not personally be keen on paying up front for months of treatment. For a start- what if they get sick/die/go out of business?
I would guess that the adjustment left you with a sudden change in the mix of proprioceptive data being recieved by your brain- and that confusion is the cause of the problem. Persistinng with care is obviously important- but I think that the big thing we have to be looking at is ways to improve sensory integration– and that means things like qi gong, or maybe more formal sorts of dance or acrobatic type training.
Qi Gong is good because it is gentle and does not require a complex set of equipment etc to do it.
I have been looking at a new technique called “atlas balancing”- while I hve no idea at all of the efficacy of this treatment, one of its practitioners has an excellent series of vidos demonstrating the way to find the position of the atlas, and how to find a malaligned one:
http://www.atlasbalancingnow.com/practitioners.html
All 4 short videos are worth watching.
That overloaded leg will bear much more weight than the other one and be more prone to injury. Also significant is the fact that on the shortened side the knee and the hip are both thrown into external rotation and the foot pronates.
All of the above contribute to orthopedic problems at multiple levels.
To make matters even more complex- issues at the level of the foot, the sacro-iliac joints and also the temporomandibular (jaw) joint can feed back and destabilise the atlas.
While my initial Atlas Profilax treatment vastly improved my neck issues eleswhere continually destabilised it again.
In the end it has taken a year of work with a socro-occipital chiropractor to really resolve those issues, and that work has been assisted with other bodywork- initially yoga, but now specifically qi gong. It has also required expensive proprioceptive insoles. Now- after about a decade of difficulty with pain in bed at night due to multiple spinal issues- things are finally improving and I am sleeping through, and sometimes even waking with no stiffness. That has been a long time coming.
So the short answer is that the problems you describe need acomprehensive approach, and a determined persistent attitude.
As much as is possible I minimise analgesic use- and take the attitude that the pain is informing me that I am misusing my body.
That is, after all what the pain signalling mechanism is meant to do!
Anja
Definite benefit.
I saw a chiropractor for back pain initially but he had an x-ray ordered of my neck too. I have a loss of the curve in my neck, and mild curve in my spine. He also noted one of my shoulders is lower than the other (I really can’t hold it up), and the opposite leg is shorter than the other by a substantial amount. My head is always forward of my shoulders, I really can’t keep posture…it hurts like hell. Not to mention one of my “floating ribs” (the 11th I think?) is distorted and noticeably protrudes out from my abdomen on the right side. Sitting is painful, it feels like the rib is pressing on something inside.
He did back adjustments, pelvic adjustments, and those lovely “he’s going to break my neck” adjustments. None of which ever held for long. “At home” physical therapy made everything worse.
And then… it gets better. I suffered a blow to the head. Since then the pain in my neck at the base of my skull is excruciating and constant. I have to sleep perfectly on my back, with my neck perfectly supported and slightly tilted back, or I will wake up so stiff I can’t move my neck. The most recent neck adjustment by this new chiro caused an extreme left sided migraine, pain down my left shoulder and arm, fatigue, blurred vision… the chiro advised if it continued to go to the ER.
This most recent doctor even noted that at the base of my skull, there is a “bump” which he explained is probably me feeling the c2’s spinous process being slightly twisted, or one “side” of it is larger than the other…only it’s always protruding, tender and always centered. . Xrays, CT, and MRI all came back normal, aside from a noted “shift” that they didn’t really go into, said it was consistent with a the diagnosis of a sprain….
After finding this site I am finding myself basically screaming on the inside. If this is something most doctors don’t even recognize as being real, how the hell do I get someone to listen? They say everything is normal….and I’m telling you it is most certainly not considering I’m young.. with severe symptoms (pick any from the list above…I’ve had it, or have it. Including a recent diagnosis of ADHD). The worst part? This blow to he head… well, lets just say these doctors aren’t exactly on MY side. I am literally, lost for words.
I can only empathise. It is probably worse for me because I am a doctor and I am quite frankly embarrassed at the entrenched, systematic, deliberate ignorance of my profession.
It is worse than negligent.
I now regard my chiropractors as my primary care providers.
Have been living with vertigo for the last 20 years in the Bay Area California. Probably seen at least 30 chiro’s who claimed they could help me. Would appreciate any recommendations
for how I should approach healing. It’s been a very frustrating process. Wishing you all wellness..
Lil
he can recommend the kind of help you need in your area. My atlas was out!
ealourenco@cox.net. Blessings & good luck, Earlene
L DeBernardi 4692 Carpinteria Ave #38 Carpinteria CA 93013 925-487-6700
>
Screwed up back at work with no initial pain or issues just gradual progression of symptoms. Began being unable to fall asleep by getting brain-like jerks (similar to being startled when relaxed) just before drifting to sleep. Made sleep nearly impossible.
Adding to this next came extreme upper thoracic pain on the left side as well as left side of ribcage. Following this with chiropractic care (which made it worse), the instability spread to the chest and became very similar to costochondritis.
Adding to the above, and still experiencing the brain twitches; came a new odd jerking issue in my legs, which became extremely exacerbated when trying to enter sleep. Very much like Restless Leg syndrome. Adding to this came twitching in arms, thighs, buttocks, etc. Adding to this came leg tingling. Adding to this came leg numbness. It then proceeded to cycle through these symptoms sporadically.
Adding to all the above, the next thing in conjunction with the extreme back pain was cracking, popping, and occasional back spasms. Deep cracks in the thoracic area (more cracking when sitting or pinching back) and terrible pain following. Making any static movement (sitting or standing) terrible. Could feel the rib in my back, side and chest popping in and out as well.
Got prolotherapy to this area many many times which somewhat helped. After a year when pain, cracking and twitching, numbness, etc were still there, got neck prolotherapy as a recommendation from the specialist.
After neck prolotherapy, (the night of injection) immediately got a huge electric shock in throat and proceeded to sleep for 16 hours a night from this point on. Symptoms gradually creeped in within the next month.
Started becoming unable to ever feel more or less tired; it began to feel like my body was always in a sleepy overly docile state. Could not get to sleep until 10 am the following day everyday.
Became extremely weak, cold, body somewhat numb like it was in shock/fight or flight response, legs wobbly, super anxious, depressed and scared for no reason. Became unable to think clearly, started reading dyslexic and skipping words, and could stare into space in a near vegetative state for hours. Lack of internal dialogue or ability to think properly. Short term memory loss, etc. Got lost in a grocery store trying to remember where I parked for an hour.
Daily consciousness felt like overtraining coupled with low testosterone coupled with excessive marijuana use burnout coupled with watching a loved one die in front of you (being in shock/shaky legs/numb body).
Alleviating stress on neck aka lying sideways on a pillow would help alleviate symptoms and I would be able to think more clearly.
Neck began making grating sounds when rotating when in sleeping position. Neck began cracking and popping in c1 area and halfway up the back of my head would snap badly. Hotness in feet and hands occured and were followed by intense bone squeezing aches from the knees down or ankles down depending on my daily luck.
Both eyes started to burn red and water constantly (would wake up to left eye crusted shut). Eye lid muscles began to weaken and eyes began looking like that of a drug addict/zombie. Left side of face would go numb, as well as entire head would go numb at times, headaches too. As well as sinus issues, clogged ear sensation (like in plane) and popping in eardrums when opening jaw. As well as extreme sensitivity to light, making exposure unbearable and feeling sick and nauseous from it. Couldnt stand much in light.
Pupils will dilate under low-light or darkness almost entirely covering iris. In sunlight pupils will contract so small that they look like a snake and are almost completely gone.
////Potential Conditions I Have / Relatable Symptoms;/////
Slipping RIb Syndrome
Snapping Scapula
Costochondritis
Brain Jerks (Unknown)
Restless Leg Syndrome
Leg/Body Twitching/Numbness/Hot Sensations (Unknown)
///Following Neck Injection////
C1/Atlas Instability =/= Barrie Louie Syndrome
Low Testosterone (Resulting From Above)
Pregnenalone Deficiency (Resulting From Above)
Any tips/advice?
99% of doctors are unaware of any of this because it exceeds their medical book from uni. Typically can expect a “i dont know” response followed by suggesting a muscle relaxant or a anti-depressant. Aka worthless help.
Fixing these problems is difficult when they are that entrenched. I too have had huge issues with the thoracic spine and ribs, with associated racing heart.The trouble is that the spine is affected at multiple levels and problems at lower levels cause postures that continually destabilise the atlas.
My approach has been to seek neurological rehabilitation from a specialist chiropractor and have a second chiropractor work on the alignment issues.
I have done a great deal of Vipassana body scanning and apply the better body awareness to achieve a correct upright meditation posture – and to hold it while on the computer. I have also done a great deal of work learning self massage, trigger point massage, and done yoga and now QiGong. Now five years after the initial treatment I am defintely well advanced on an improving course. It is a really tough journey, but it is good to be feeling well again.
I continue to not sustain with exception of lower extremities – having successful alignment for several months to a year at a time. I now have a dislocated mandible (left); repetitive costochondral separation – 1st and 2nd rib in persistent unstable condition; unstable clavicle – shifts into unstable left shoulder; C1 & C2 Sub. – unstable; C3,4,7 – periodic; thoracic rotation persistence. Vagus nerve impacts from head on down persistent as well.
After years of being told everything from I “don’t have enough meat on my bones”, to “the only thing wrong with you is mental” … I began finding help, although no success in sustained improvement after 30+ years on no care …However self-pain management has increased significantly. My greatest limitation is insurance and disability determination limitations.
Enough about me … I was devastated when my athletic, food conscious, non smoking; no-drugs; minimal-alcohol son described the pain and other symptoms I knew all to well. With a great chiropractor now, the concern is that he is not sustaining either. He has double-mandible dislocation; CI – persistent; costochondral (1 episode); rib2 – persistent – front and thoracic; persistent lower misalignment. His chiropractor is more than accommodating to him both in care and economic awareness – and a bit frustrated himself.
I don’t know how to give him hope when my limitations are so enormous and continue to exasperate. Our rural location and depleted resources are definitely a factor. He lives a block from me – to help me, and now I’m pulling back on this as he is impacted by my needs.
I do not know where to go from here … For me, kanesio taping was highly beneficial until recently. My skin and my muscles are fighting it now.
Any idea on how long these take to improve?
Am I supposed to feel better right away or not?
Could these issues be causing my brain fog, constant fatigue, low libido, depression, anxiety etc?
Improvements can be fairly quick when the alignment is correct- but adjusting to the shift in alignment takes a little time- and you can feel a little fragile for a few days after.
I felt immediate improvement after atlas profilax, and usually feel immediate improvement on the day of an adjustment.
Certainly when my atlas slips out of alignment I develop clumsy speech and blurred vision within 1/2 an hour.
The worst case was accompanied by an abrupt loss of thermoregulation and one sided vasodilation- and flushing of my face.
I couldn’t not leave without telling you my story and my experiences. I have recently re aligned my own atlas / c5 after doing a lot of research.
Ever since I was a kid my head was tilted, i remember closing each eye and looking at my nose with the open eye (alternating), it was like my nose was twisted but little did I know it was my head! Strange how nobody else noticed / pointed it out either.
Anyway, had pretty much all of the symptoms above apart from headaches, and wow am i impulsive (or used to be). All the way through my life (28 now) people have said I seem to lack common sense, I’ve been a moderate/ heavy social binge drinker for years and was always doing stupid things (even when sober) i thought impulsiveness was just my personality, it’s crazy!
I always thought my jaw was bigger on one side (then came the anxiety!) but it was actually underdeveloped sternocleidomastoid, levatator scapulae and trapezius on one side so yep my head was also twisted.
For years I’ve not ACTUALLY known the problem, too shy to seek prof. help, it’s not until I started working out (which I thought would cure any imbalance) that I realised the problem was a lot more serious. Basically one side of my body was developing unevenly/ slower which after research (and watching Elliott Hulse on Youtube) I realized my atlas / c5 mis alignment was sending bad signals out throught my nervous system.
Some of my personal symptoms on the effected side: (even though I was stretching like crazy) 1. could only turn my head (opposite to affected side) about 30deg, 2. Extremely tight trap – felt like it was gripping onto the ribcage when moved, 3. Deep breathe caused strange sensation (again, ribcage tightness), 4. Lower back was extremely tight (pelvis almost frozen, hardly any anterior/posterior movement), 5. Trapped nerve on trap/upper back, 6. Sharp Pain in mid back next to spine (trigger point maybe). 6. Impulsiveness, 7. Major anxiety, 8. feelings of hopelessness and depression, 9. Crunching when hitting the 30deg mark mentioned above, 10. ALMOST FORGOT – Major jaw pain (but on the opposite side)…the list goes on!
Anyway here’s what I did:
First started stretching following this video (do the affected side twice as much):
1. https://www.youtube.com/watch?v=Hxar8p0WcIM
2. Next go for a walk and focus on tensing the lower abs and the squeezing the glutes while tilting the pelvis forward (flattening your lower back) – this will release the tight pelvis muscles in your lower back. (I find walking and doing is easier – You may even feel your walking posture improve)
3.Next do these exercises to re align the c5/atlas: https://www.youtube.com/watch?v=WhflOZe4YKA
(AND LIKE HE SAYS DO THEM EVERY HOUR TRUST ME!)
I also roll out my mid back / s.blades on a foam roller.
I can’t explain how I feel now I’ve fixed mine, it’s amazing… All my symptoms have gone, my anxiety is non existent, my pelvis is free, my neck looks even and healthy, head posture is excellent and I feel so much more switched on and connected to myself and my body. I know it’s not going to be the same for everyone but after more than 10 years of having these weird cervical / alignment / imbalance problems and now after a just a few days of rehab it’s gone! got to give hope to others! I really hope this helps you :)
Also might be worth mentioning I eat a plant based diet but with protein (fish, chicken only) and also drink home made milk Kefir (the stuff is holy water!) Peace and Longevity!
thank you for your reply.
Those exercises you referred to really are excellent- and I will be referring my own patients to those links.
The emphasis on doing the scapular/cervical ones hourly really is of critical importance, as we have to de-activate an abberrant postural and muscle activation pattern that has been persisting for years- and that cannot be achieved overnight.
I personally have recently commenced Qi Gong- and find that the increased subtlety of body awareness that that gives me has vastly improved my alignment.
I have been closely inspecting the skull on which I learned anatomy- and have actually identified that it has a small defect on the base of the skull that would make the atlas much more likely to slip out of place with minimal movement.
I suspect that the individual whose skull I possess had a birth injury, and that atlas was misaligned from birth, while the bones were still remodelling. Consequently the labrum of the occipital condyle is deficient on one side- and he would have had an unstable atlas.
I have had to work at multimodal treatment for years to get good progress with this problem.
As I see it the issue is that this is usually a longstanding injury (very often a birth injury) and it leads to very deeply entrenched aberrant patterns of posture and movement – which leads to secondary issues with orthopedic problems such as stretched ligaments and osteoarthritis. The bottom line is that our bodies have learned as default a posture that involves a twist running through the entire spine, and unless the whole crooked posture is corrected it will set up a situation in which the atlas is inclined to re-displace.
I suspect that many of us who are coming to treatment later in life will require ongoing treatment and an ongoing commitment to exercise and work to maintain posture. None of this is easy in a culture which requires us to spend so much time sitting at the computer to work.
I personally have had to spend quite an amount of time working at learning self massage and trigger point therapy techniques.
I have not had specific experience with ankylosing spondylitis- and in the case of that particular problem results will be limited by the degree of rigidity of the spine.
I really can’t give specific medical advice as to which treatment you should have except to say that there are non manipulative treatments available. For instance I see a chiropractor who specialises in Sacro-occipital technique. She gets great results simply by using the activator to release the tense muscles that hold the neck out of place.
The comment by John dated 11 June 2014 gives links to some helpful exercises that are certainly safe and I have found very helpful- but they must be maintained.
In terms of mechanism of your symptoms- I do need to update the blog.The biggest contributions to the symptoms are likely to be direct mechanical stretch on the brainstem and also related to a degree of upset of the regulatory systems of the autonomic nervous system caused by confused information input to the brain. As best as I can understand from my own researches the malalignment at the upper cervical spine causes a distortion of body position awareness which means that your body is not in the exact place your brain thinks it is- and there is a different mismatch of the information on the left and right sides. Your autonomic nervous system is meant to stabilise your blood pressure,pulse and other basic functions so that they are appropriate to your posture. Equally the subtle imbalance caused by the problem causes stress responses as well.
This video gives some demonstration of the problems involved when your balance system is not functioning well but you need to pay for a 1 month subscription to the site:
http://www.psychevisual.com/Video_by_Ian_Niven_on_Light_induced_suppression_of_the_vestibular_system.html
Also of note- excessive curvature of the thoracic spine and forward head posture can be contributory. The thoracic spine issue is probably related to hyperstimulation of the sympathetic nerve chain – at the point where it crosses the base of the rib at its attachment to the spine.The sympathetic nerves at the level of the upper thoracic spine stimulate the heart.
My chiropractor (Ian Niven- featured in the video) disagrees- but I do personally think that direct vagus nerve irritation can be a problem if there is forward head posture- and particlarly if one “leads with the head” when standing up. It used to cause me marked dizziness when I stood up too quickly. Alexander technique, Pilates or Feldenkrais can be very beneficial in correcting these habits.
I personally have made great stides through QiGong (which has good evidence in improving balance and in falls reduction).
The video is really excellent and Ian is very skilled at working with aberrant reflexes in a new branchof chiropractic called functional neurology. Looking at your blog I am sure you would find it valuable.
I do not think the conservatism is really primarily driven by economic factors- but it is certainly driven by information overload and the difficulty of learning and thinking within a new paradigm for most busy practitioners. I would love to learn some kinesiology- but am flat out doing what I am doing.
The alignment exercises are most important. I am getting great benefit from doing QiGong.
As I previously mentioned- it is likely that the mechanical traction on the vagus nerve is a lesser factor and the bigger problems relate to distorted input information into the brainstem and traction on the brainstem.
My son, who was very crooked and clumsy, had Atlas Profilax 6 years ago. Thanks to that treatment and some follow up chiropractic he is now so well aligned and fit that he has been competing in the Henley Rowing Regatta. That would not have happened without Atlas Profilax.
AtlasProfilax is not perfect, but it is a great way of reducing a severe C)-1 malalignment.
The issue is that it does not address other levels and sometimes the atlas is unstable. The Atlas Profilax team are ironing out their presentation of their valid and helpful technique. If I see any further comment of this sort I will be forwarding it to their legal team. It is slander and should be addreesed in a court of law. I am sure that as my site is based in Australia that our defamation laws apply.
I have been suffering horrendous symptoms as above for 10 years including terrible brain fog and ear problems. A had Labyrinthitis 10 years ago which is where my symptoms became obvious and I’m still battling with deafness, balance, anxiety, headaches, high heart rate, depression etc. but my gp has pretty much passed it off as depression the whole time.
I have just seen someone and they say I do have atlas and cervical spine problems after an x ray! So a glimmer of hope!
The problem is, I’ve been told it will take 6 months to a year to fix with 10 minute appointments twice a week each costing 40 pounds.
Obviously hearing people have sorted this in a matter of hours has gotten me thinking. Do you think I’m being taken for a ride and should I seek help elsewhere?
If so, does anyone have any advice on where to go in the uk?
Any advice would be greatly appreciated!
Many thanks
Quick fixes are possible in infants and in childhood- but not later.
That is clear from Biedermann’s work.
This You Tube clip shows just such a quick fix in an infant:
As a rule the older we are and the longer we have been out of posture and operating a crooked body, the more engrained our problems with spinal alignment are. By adulthood most of us have malalignments at multiple levels and aberrant movement patterns adapted to moving that crooked body.The movement patterns tend to re-displace us back into old postures and we are back where we started.
When you get into your 30s or 40s there will be addtional issues with secondary osteoarthritis- so everything feeds back.
I would agree that for most people an extended period of treatment will be needed and the course of progress is not even- there are setbacks and leaps forward.
Progress is much faster if you are able to commit to a regular exercise program with a variety of different activities, plenty of emphasis on coordination and balance and to also work with continuous mindfulness of posture– correcting any forwards head posture or upper and/or lower crossed syndromes.
It is worth the effort though.
I posted here a while ago, pretty lengthy post somewhere up there. Anyway, I’ve found a great exercise to restore head posture (which is what I think the reason for my sublaxation was) Here’s a link:
Some of the videos I posted above helped me but ultimately this one has done it for me. It restores thoracic extension. Back in the day as hunter gatherers climbing, running etc this was never ever a problem but obviously these days many of us sit down at desks all day so certain muscle groups tighten so in my mind some kind of maintenance is essential.
Since I’ve been doing this multiple times a day I’ve noticed I’m just so much more relaxed as it’s helped release my problem neck muscels / trigger points, my head rotation is pretty much back to normal (symmetrical at least) but the main thing is my mood, my anxiety has gone and my mind is settled and I can process thoughts properly again, it’s weird everything seems relaxed, I feel my mind to body connection is much better plus a whole load of other stuff but I won’t list them here now. I also workout and do cardio which also helps loads.
Basically (for me at least) this exercise helped release the tense muscles on the left side of my neck so I think my sublaxtion was caused by tight neck muscles pulling my head of centre so ultimately this exercise has allowed thoracic extension so I could go ahead and do stretches on my neck which before I just couldn’t do because they were SO tight and was actually making them tighter.
Now, my head is aligned how it should be, I look better – not so hunched up even my walk is better, still working on it as there is still much improvement to be made, lucky for I’m young I guess so it came easy.
Prior to my own research, nothing the doctor said ever helped, he didn’t even see a problem with my head / body posture CRAZY it seems to me doctors aren’t educated in the right way for the modern world at least for these types of issues! maybe I should have just seen an osteopath from the start! but self help is the best help if you prefer!
BTW I would also recommend researching rounded shoulders, pec minor stretches etc, but remember EVERY bone has muscles EACH side so in order to retain balance you must keep things symmetrical.
Don’t take my advice as gospel I’m just a 28 year old web developer who had all the symptoms of atlas sublaxation. This blog has helped me loads btw so thanks!
Live long, live strong!
I have been doing the exercises you previously recommended and am very pleased with the results.
I have just added in a couple of “Chin tuck” exercises – one unresisted and one with a Theraband, to help increase extensor strength in the neck muscles.It appears to me that one of the big issues we face is related to anterior slippage of the atlas on the skull when in forward head posture- so increased strength in the neck extensors is essential. This is an example of a chin tuck exercise:
http://www.spineuniverse.com/wellness/exercise/neck-pain-prevention-chin-tuck-exercise-video
The obvious qualifier is always not to force through pain, and to seek proper qualified review if not progressing well or if there are any unusual or troublesome symptoms.
Incidentally, I agree with you 100% that the medical profession is inexcusably ignorant in this area. We spend way too much time listening to and being influenced by drug reps and going to education events hosted by pharmaceutical companies. Sometimes it seems to me that we have forgotten about any forms of treatment other than drugs and surgery.
We probably do need to eat meat to function in a healthy way.
I would recommend you read “Go Wild” by Dr John Ratey.
The basic issue is that our upright posture requires a trim waistline in order to maintain the strength of the core muscles, which, in turn, maintain upright posture and that in turn keeps the atlanto-occipital joint in correct alignment.
So- a trim waistline requires a short gut- and that means we struggle to maintain sufficient energy input unless we eat meat, or high density carbohydrate. High density carbohydrate, however, is not part of our ancestral diet and predisposes to insulin resistance and all its associates illnesses.
In addition the movement patterns associated with upright posture are far less mechanically efficient than the postures associated with 4 legged gait- and that also increases our energy input requirement.
I won’t bore you with details but after a bad case of Labyrinthitis 10 years ago I have been suffering with many if the above issues horrendously including balance and ear problems and severe brain fog.
I have just seen someone and they say I do have a misaligned atlas and cervical problems but it will take 6 months to a year of 10 minute appointments twice a week at 40 pounds a session to potentially sort it.
After reading some people have it fixed in a matter of hours I am now concerned and confused. I’m desperate to sort this and sort it properly. Am I being taken for a ride?
I am based in the uk. Should I see someone else?
Any advice would be greatly appreciated.
Atlas Profilax, in my experience, works well in Children and if only one level is involved. In people with worse posture, multi level maalignments or TMJ problems or flat feed there are multiple different feedback loops involved and the problem is more difficult to manage.
I have requires atlas profilax, standard chiropractic and neurological rehabilitation.
I won’t bore you with details but after a bad case of Labyrinthitis 10 years ago I have been suffering with many if the above issues horrendously including balance and ear problems and severe brain fog.
I have just seen someone and they say I do have a misaligned atlas and cervical problems but it will take 6 months to a year of 10 minute appointments twice a week at 40 pounds a session to potentially sort it.
After reading some people have it fixed in a matter of hours I am now concerned and confused. I’m desperate to sort this and sort it properly. Am I being taken for a ride?
I am based in the uk. Should I see someone else?
Any advice would be greatly appreciated!
Thank you for the reply regarding regular treatment. However, I read a lot of people saying they can ‘fix’ the initial problem within an hour. Do you think it is advisable to go for one or 2 longer sessions to correct the misalignment and then go for regular checkups to insure everything is staying corrected?
My concern is that 10 minute appointments twice a week at £40 seems a lot for not a lot of work. I have been to 3 appointments and they use a ‘electric hammer’ type device to massage around the spine but they use the device for merely a matter of minutes.
Obviously, if slow and steady is the best way to do it I ok with that but I don’t want to wasting any more time and money if I can get it sorted quicker.
On a separate matter, a couple of years ago, I had my mandibular jaw broken and it healed slightly wrong. I have been having a few issues with this and my ear, balance and hearing has gotten worse that side (whereas it was mainly bad the other side before). Will this break mean that I cannot get fully better with re-alignment of my C1, C2 etc?
Many thanks
The trouble with any neck adjustment is that they cause a shift in the information coming into your brain. That causes a period of confusion and feeling worse.
Equally- just as there are good and bad doctors- there are good and bad chiropractors– I have always found the best way to work with any practitioner is to keep on bringing my complaints to them until they can either sort me out or have he sense to ask for a second opinion.
Dr Heiner Biedermann in Germany is one of the few MDs I know who works with this problem- though no doubt there are other European ones who can do so.
Re risk of stroke– this is extraordinarily rare- and the risk of a serious complication due to a medical treatment is vastly more likely.
I will comment that there are techniques in QI GONG ( a bit like Tai Chi) that can help unknot these neck problems- but these take time to learn.I have been working with Qi Gong for 9 months now- and it really helps the effect of the chiropractic work that i have been having.
I note that it can be of value in sacroiliac joint dysfunction – so it may have a place.
The recovery from the postural distortions associated with a spinal malalignment is often complicate by local tendinous pain- so, logically it could well have a place. You would need to discuss it with someone adept in the therapy.
seem like you know what you’re talking about!
Thanks
Personal experience counts for a lot- especially when combined with an education that allows one to process the information.
I guess that I was fortunate in that my own medical care was so stuffed up by my fellow doctors that I have learned that the rule is
“Make your own observations and your own formulations– or die”.
Do not rely on authority- or the opinion of specialists- especially not clowns like Harriet Hall or Stephen Novella.
If I had not become so disrespectful of medical authority I would already be 6 feet under.
Please be patient with your treatment and keep coming back to your health care professsionals until it is fixed.
I started treatment in late 2009. I have had to use a combination of chiropractic, trigger point massage, therpaeutic massage, movement mindfulness (Qi Gong) and sitting meditation.
I believe it is possible that I may heve the problem fully resolved before 2014 is out.
You need staying power and you need to be determined to get well. You have got this far, so that is a very good sign.
Professor Rothbart
In any adult patient with acquired upper cervical birth trauma we will probably not get a good stable result until all levels have been identified.
In fact I never walk any distance in shoes without my foot levellers. I have well learned that lesson.
However, in terms of primary causation there is an acknowledged issue in getting babies born with the combination of a small enough head and a brain sufficiently mature to sustain life, even with an attentive mother. This is a true evolutionary bottleneck.
In addition the rate of trauma to the upper cervical spine at birth is acknowledged to be high by those obstetricians who have looked seriously at the problem.(See Manual Therapy In Children ed Heiner Biedermann).
I am familiar with your work and the abnormalities you have described. However, I doubt that these are primary abnormalities- as they are too common. In evolutionary terms it makes no sense for a primary inherited tendancy to a problem that causes such pathology to be as prevalent in the population as you have observed.
However, when one considers the neurological disruption caused by an acquired birth injury to the upper cervical spine (starting with the inappropriate persistence of multiple primitive reflexes including the Asymmetric Tonic Neck Reflex) the idea of the abnormalities you are describing as secondary deformities due to abnormal descending nerve tone (ie a soft neurological lesion) causing foot distortion seems more plausible.
This is a tricky problem, as it is clear that the malalignment in the upper neck causes a distortion in proprioceptive data entering the brainstem. This leaves us in a position where it is extremely tricky to manage our body movement. The end result– we do not know where we are in space- and our body clicks, crunches and grinds. It is clear to me that the full resolution of this problem requires not only skilled chiropractic treatment but a commitment to learn a movement mindfulness technique. The one that has worked for me has been QiGong- where Pilates and Yoga failed.
Now – re anxiety– the real problem here is that when our upper cervical spine is malaligned we suffer from disturbed balance and from difficulty in achieving the upright posture that is required to ensure adequate brain perfusion. Both the imbalance and the low blood flow to the brain bombard our brains with threat signals. It is a very common mistake to call these threat signals “anxiety”. Through my meditation practice I have learned to appreciate that my thought is biassed by the body based stress state- and that I have to learn to not take my anxious thoughts about the outcomes of real situations seriously. If one can learn to recognise the body based symptoms of anxiety as a simple stress state, and then understand that every single unconfident or negative thought that one has while in that state is very likely to be at least an overreaction– then one gains enormous freedom– and “anxiety” ceases to exist as a real force. That is not medicine– that is entry level Buddhism.
I am ALWAYS in search mode to heal my birth injury (Suction Cup) and associated symptoms, which rather unsurprisingly get worse with every passing year.. (I am currently 45)… I started complaining about headaches and tension at around 10 years old, my well intentioned Mother took me to the local GP, who had me look side to side and announced that there was “No more investigation to be done!”… even at 10 years old I was insulted and puzzled by the lack of interest the doctor showed.
I’ve been getting weekly chiropractic adjustments for about 20 years, which last me about 2 days before I’m back to locked up, dizzy, nauseous, digestive issues, and generally foggy headed and yucky…my nemesis does seem to be C1 and C2.. Always out !!! .. and my neck and shoulders are very tight…. it is a time consuming, frustrating, exhausting and expensive past-time, and sometimes I frankly can’t imagine hitting 60 years old..
I’ve also done cranial sacral therapy with better but still limited results, massage, applied kinesiology (still going!), and a whole host of other modalities… Also a big fan of Bikram (hot) Yoga which seems to peel back a layer of tension, but can’t get there more than once a week… I am very curious about the AtlasProFilax and have found a practitioner fairly close to my parents in England so will go ASAP! I currently live in Florida and there is nobody !
Any more progress to report? Doing better?
I think we have very similar injuries by the sounds of it
Thanks again for putting yourself “out there” !!
Best wishe
Debbie Allen
(USA)
Honestly– the improvement I had from Atlas Profilax was so dramatic- that not being open about it would be unethical, even though being open was, and remains, risky.
There is much more progress to report.
Over the last 12 months I have done 2 rhythm meditation workshops (Ta Ke Ti Na) and lots of Qi Gong. Both of these involve very intense body awareness while moving- and both have produced ongoing improvements.
The issue is that with an upper cervical malalignment there is distortion of body position information, and disruption of balance- so the trick is to get it all straight then do enough mindful movement work to train our minds that this is the correct way to hold our bodies.
Re the neck and shoulders- I often see jam ups in the thoracic spine and the joints involving the ribs as driving these. They need specific work to help them.
For yours and others interest.. this is Dr Ross McCulloch (UK).. I’ve only had a handful of treatments with him as we live on different continents but plan to go back for more.. he is too interesting for me NOT to interview !!
Been worrying and trying to self diagnose for the last 3 years! any bloods or X-rays I’ve had (very few on UK NHS) come back clear, but have experienced literally all off the above symptoms and more, all down my right side, literally could draw a line and right side of body is in pain and ready for the scrap heap, left side feels perfectly healthy! Could this problem be caused by hypermobile joint syndrome rather than an injury?
I’ve always been rather bendy and that’s the only reason I’ve ever been given for my pains. A physio said my head is too far forward and I have a slight curve at the top of my spine. When I look in the mirror I see my right shoulder is slightly lower than left and my right hip is slightly higher. Some days I just have to lie on a heat massage pad to get through the day.
I would like to go private to have some tests and scans done etc does anyone have any recommendations for Midlands UK?
The hip and shoulder posture you describe is the typical postural adjustment to an atlas malalignment- it has been documented in numerous books.
The forwards head posture that you describe is also typical- a review of the literature clarifies that chronic hyperextension occurs in the upper cervical spine and that a compensatory forward head posture then develops as reflexes ensure that the gaze remains in the horizontal plane.
As for therapy in England- I have no connections there.
This website is very helpful:
http://triggerpoints.net/
as is the parent site:
http://www.myorehab.net/articles/article-archive.htm/
as is this book:
The Trigger Point Therapy Workbook- by Clair Davies
All valuable sources of self help information.
Additionally, balance is very important- as it helps inform the body how to hold itself.
It has taken me a long time to really make headway on those issues- but i have found the balance training provided by Tai Chi to be the source of the greatest improvement long term- and various forms of trigger point therapy the best for short term relief.
I’ve told my practitioner about it and he just told me to do some stretches. I’m only 22 years old and I’ve been experiencing constant pain/tensions since 17 years old. it has affected me so much in every aspects of my life. regarding the anxiety part, i experience occasional speeding up of everything, I don’t really know how to explain this feeling, like everything starts speeding up. it’s a really weird feeling and I just wonder if it’s linked to this condition.
thanks so much for your help and reply. it’s horrible to suffer from this for so long.
I started a most needed Massage therapy regiment to alleviate the muscle tightness that was even pulling my jaw and back ear muscles, also shoulders and arms. The massage therapist said that I did not have muscles but bricks. The pain has been improving by now but it has been almost 7 months with once a week treatment. I must denied myself of many things to be able to afford massage care. It was something my chiropractor had me do as the adjustments were not keeping and I was there continuously. Now my adjustments are not as frequent. Both chiropractor and massage professional are taking to each other to help me recover as I almost went into disability due to pain and other ramifications like vision blurriness, poor concentration, hopelessness; just to mention a few. I am on a wellness path thanks to God and this professionals.
I would highly recommend it even though seems something only for the elite, it has made a huge difference!
The only reason I am is due to the failings of my own doctors in working out what was going on with me.
Re Atlantotec, I understand it is virtually the same as Atlas Profilax, and was developed by a group of Atlas Profilax practitioners who were dissatisfied with the failure of the Atlas Profilax organisation to produce enough research and market their technique in a scientific enough manner.
As I have said elsewhere- I cannot give specific medical advice- so maybe the best thing to do is reflect on my own personal experience – and you can consider those observations in the light of your own experience.
Your situation sounds very similar to mine- and I found that with the degree of functional leg shortening and twist on my rib cage I had I ultimately got the best result from a long course of care from chiropractors who specialise in “sacro-occipital technique”. They also had me get proprioceptive insoles- to correct the pronation and flattening of the feet associated with a long term “atlas posture”. That was expensive, but worthwhile.
Re instability- that degree of instability at C0-1-2 is similar to what I am still working with. It is responding slowly but surely to ongoing postural correction via sitting meditation and QiGong, and by extensive movement retraining via QiGong/Tai Chi.
It seems to me that the big triggers for re-displacing an unstable C0-1-2 area are related to forward head posture- so I work towards maintaining an upright posture (similar to formal meditation posture) when at the computer, and I have had to learn to train myself out of any gestures that project my head forwards- ie if emphasising a point or if acutely anxious/angry. As you can see- that is a big undertaking- and since I grasped what was really needed it has taken me about 2 years to get near the results I am wanting. I am approaching being painfree and in good posture maybe 3/4 of the time, and the improvements are ongoing.
Given that you mention Kaiser- I would guess you are in the USA.
That would suggest that the website nucca.org might be a good place to start looking.
thank you!
My teacher is a recently qualified TCM practitioner who is an old friend of my partner.
As a rule – look for someone who has had formal training in China.
This is a difficult problem to settle completely- it impacts on many levels.
However if the body does get into correct alignment it can do remarkably well at learning and adapting to the new alignment. I would be interested to know of the professional background of the woman who was so helpful for you.
the ankle issues suggest that you have had an alignment issue for some time. The fall sounds like it displaced the sacroiliac joint and the lastest events suggest an increased shift in the upper cervical spine.
The “brain fog” is what many ADHD people have to endure for decades. Mine is all gone now. The Jaw joint and tooth grinding thing relate to the upper cervical malalignment. A chiropractor friend of mine has told me that the driving mechanism there is probably irritation of the trigeminal ganglion– which lies in a very vulnerable position and is easily compromised by minimal shifts in the relations of the cranial bones.
The foot and calf twitching is interesting- and I am still asking as to the specific mechanism, but when my atlas comes out of alignment I get restless leg syndrome- which settles when the alignment is corrected.
The ankle injuries may relate to either a mild pelvic tilt (functional leg length anomaly that occurs due to the unilateral muscle spasm that occurs on the side of the misalignment) or to impaired balance.
I not myself that misalignment on the right upper cervical spine translates to imbalance and difficulty standing upright on the LEFT foot. Often that imbalance is accompanied by the sensation of pain in the lateral ligament of the left ankle.
It is of note that that tenderness switches off as soon as my atlas is back in alignment. The abrupt switching on and off of the tenderness is most intriguing.
I have had to work for years to get the level of symptom control I now have and needed a long run of sacro-occiptal chiropractic work. The professional groups I am noting are good with this are craniosacral osteopaths or physiotherapists and chiropractors with an interest in upper cervical work. I have noted that many chiropractors are not persistent enough at achieving really good realignment at the atlanto occiptal joint.
The big issue is that the alignment needs to be corrected at multiple levels ( TMJ, upper cervical, sacroiliac and sometimes the feet, and in worse cases thoracic spine). Then the alignment needs to be maintained long enough for your body to learn (or re-learn) that that is normal.
What truly angers me about this is the way in which the medical profession has evaded the evidence provided by the chiropractic profession.
The evidence is there.
However, the Medical Profession has acted to preserve its monopoly rights as the premier source of reliable information.
The role of one Dr Morris Fischbein, the former editor of the JAMA (Journal of the American Medical Association) in coordinating this anti- competitive campaign was pivotal and is well documented in the book “The Medical War Against Chiropractic”.
You need to be aware that your current state of disability could have been prevented if my profession had been more honest and even handed in its dealings with other professions.
This attitude continues in the dishonest and anticompetetive activities of organisations such as the paradoxically named “Friends of Science in Medicine” in Australia and the crew of organised pseudoskeptics on sites like “Quackwatch”.
It still boggles my mind when I understand how much pain and distress I could have been spared (and the rest of my family) if my mother had known to take me to a chiropractor after my traumatic birth.
Unfortunately too many heads in the medical profession are still ruled by love of prestige and money.
At first I only had a mild pain behind the left ear. i thought it was ear infection. Later I learned it was TMJ. Then came emotional issues with symptoms like anxiety, insomnia, depression, panic attacks at night and day. then, food allergies, intolerance for coffee, gluten intolerance, fatigue, constant neck pain, mainly on the left side, back of the eyes pain, brain fog.
i decided to change my eating habits. cut coffee, cut most gluten, eat clean, exercise more, get therapy, spiritual help. I saw improvement, but still had some symptoms, specially constant neck pain and back of the eyes pain.
i tried NEAT, chiro treatment, meditation, acupucture, adjustments, biofeedback, neurofeedback. they all helped with many symptoms, but still, stomach discomfort, neck and eyes pain and TMJ never left me.
because of this blog, i went after a upper cervical care specialist (It was interesting that when searching the web, upper cervical care rarely popped up, and they have quite a few options in America). I discovered I have a misalignment on my atlas and axis as well as btw my C4 and C5 and btw C6 and C7.
not sure when this happened but i am sure all of the above was triggered by stress and bad posture working with computer all day. i still remeber the evening a few years ago when i really felt the pain in the neck which never went away til this day.
I decided to try NUCCA since there was a doctor close by. I went for 2 months and I felt no change. Doctor saw measured changes in my hip, neck and leg. But I felt no change. Doctor wanted me to go see a TMJ dentist specialist since I still had neck pain, eyes pain, TMJ. That’s when I decided to stop going there. I guess since he mentioned in the beginning that i would really feel improvement on the first visits (and my regular chiro also said that) and I didn’t see changes, i felt discouraged to continue the treatment. not sure if I should seek another technique or just go to his dentist friend and continue with him since i already paid the package (of course it is extra $ to go see the dentist). also because i am not done with my own aligner treatment with another dentist whom I brought the TMJ issue up and didn’t see that it is a dental issue at the moment.
i really dont know what I should do next.
my question would also be, will the misalignment on c4 5 and 6 7 also cause pressure in the medula, right? would them also cause all the other symptoms or only from C1 and C2?
another question: Do you think it is possible to “reshape” back the”C” curvature on ones cervical thru PT and exercise or even upper cervical treatment? thank you for your post and time.
There is feedback between the subocciptal,region, the TMJ, the thoracic spine the sacroiliac joints and the feet.
Once we are past late adolescence – all need separate attention except for people who have acquired the injury late in life.
Then there is the subtle re-moulding of brain function that drives us back into those harmful postures. The best defence is to learn to sit straight in the 7 point meditation posture– but choose a strict master- who will hit you if you slouch.
Thee are big interactions at the levels of the trigeminal ganglin, the TMJ. the upper cervical spine, the SI joint and the feet.
I had spine surgery, diseconomy at L-5 S-1 in 2012 , 8 months later I decided that spine health was important and decided to follow up with chiropractic with adjusting the thoratic and cervical only since I’ve already had surgery at the lumber spine I did not want any manual twisting in that area, after the 6 ajustment I had a ton of pain SYMPTOMS “right side only” that included –
NECK- tightness while upright, and laying down on a pillow was extremely painful ,blow drying hair was difficult,could not bend head/neck downward forward without a large amount of pain in cervical spine.
ARM- pain down arm ,forearm,wrist, palm of hands ,fingers,and tips.
Nausea
FACE- face pain that included TEETH, SINUS ,under EYE,above EYEBROW, TEMPLES , JAW pain ,I started to clench teeth at night and through out the day ,NOSE pain – nostril would whistle while breathing in left nostril only, right nasal drainage for no apparent reason,just when ever it felt like it.Scan found a deviated sacrum,not sure how a whistle and nose pain can come from a chiropractic manual ajustment? also Neck throat pain,
EYE watering at times for no reason except while pain levels were high “inflammation”?
Theoretic pain into shoulder blades, and up back of neck into brainstem , remember this is right side only
HIP- Poping at Hip right side , right foot cracking while getting out of bed in the morning
pain at right foot that seems to be stemming from lumber hip area.
Now my sinuses are clogged for the past 2 monthes , a month ago my ear became plugged,clogged so I went to the doc, she said a upper respiratory infection and sent me off with the Zpac my ear is not clogged anymore but my sinuses are with clear mucus at the top of nose.
one test Ive had showed mucasal thickening with a possible cyst at the maxilery sinus which my doctor threw out the window stating many people have this and it would not be causing my symtoms
I had spine surgery on left side from left side sciatica,all my pain is on the right since that adjustment, Ive been afraid to see another chiro but have recently looked in to NUCCA thinking this could help except for I have not found any ratings Dr. Marshall Dickholtz Jr. certified NUCCA professional,because of this I have not followed up with the doc to get my first adjustment he does not except insurence and consultation fees are 600.00 .
Im 36 and for the past 2 years my focus has been to figure out what broke, with also my family suffering from My injuries since I’m always in pain and focus on fixing the cause of all this, it sucks :(
Seeing this site,and what I’ve been able to take in , I’m tossed to try out the NUCCA or Atlas Orthogonal Board Certified doctor.
Ive spent a fortune trying to figure it all out so far seeing countless amount of doctors,test,MRI’s,CATS, with also seeing chiropractors but not receiving adjustments only for consultations since I’m afraid for anyone to munipulate my spine since the first time didn’t turn out very well.
I did have one chiro talk me into it though, he is a Neuro Chiro , 3rd chiro seen after the bad adjustment, but after he ajusted me I was Nauseous so I never had another chiro adjust me.
I was pain free after my sergery until the adjustment,but because I have so much face symptoms including my teeth,which I did have a root canal on a tooth that looked good on X-ray but because of the sensitivity / pain I was in , I decided to go forward with the canal with no change .
I did have one chiro talk me into it though, he is a Neuro Chiro , 3rd chiro seen after the bad adjustment, but after he ajusted me I was Nauseous so I never had another chiro adjust me.
Any advise , and do my symptoms seem to match the atlas misalighnment ?
Is it possible a chiropractor can cause the misalignment from the first place?
I hope this post isn’t too much, if you have any sort of advise that you think could help please please share and thank you so much!
Most of the symptoms are consistent with Atlas malalignment with multiple secondary issues with other unstable and probably arthritic joints from the chronic posture carried as a result of the postural correction to compensate for the original malalignment.
This is well covered in KerkErikssen’s Book Upper Cervical Subluxation complex.
I would be extremely surprised if a chiropractor caused the subluxation. Mind you I have seen surgeons cause much more serious problems- like amputating the wrong leg or causing serious complications through grossly incompetent surgery..I have seen good and bad practitioners in every discipline.
As a rule the incidence of serious adverse effects from any of the modalities known as complementary medicine in the West is about 10-100 times less than the risk of common medical or surgical therapies.
Re Chiropractors and their alleged lack of criedibility.
Firstly- I have seen good and bad practi
It is of note that in Germany and the USSR- allied health practitioners such as chiropractors start with an MD- then do their subspecialisation. It is also worth observing that the smear campaign against chiropractors started not long after World War One when they were accused of practicing medicine without a licence when it was noted that their patients were dying of the Spanish FLu at about 1/10 the rate of conventional doctors. That campaign was initiated by the then Editor of the JAMA ( journal of the AMA) Morris Fischbein- a man who championed the advertising of cigarettes in the USA. The final result in the US was a substantial loss in court for the AMA.
Wilk et al,Vs AMA et al:Trial 1 1976, appeal and then final retrial in 1983
This was run as an antitrust suit and was a serious loss for the AMA.
It is of note that the concluding remarks on the Chiropractic side commented thatthe AMA had confused their trade union resonsibilities with their responsibilty to healthcare.That is undeniably true.
It is not zero.
Nausea after an upper cervical adjustment is a common, expected side effect. It should not persist and if it does you should return to the treating practitioner.
That is the same what ever sort of health professional you see. Also common is being very over-emotional for a few days.
If I were doing adjustments I would give a patient an information sheet about it and instructions about what to do if it was an issue and make sure that that was recorded in my notes.
It is also common for the pain to swap sides as the body shifts and weight distribution changes with each improvement in alignment.
So to answer the broader direction of your questions- it is best to refer to my own experience.
The issue is that when this problem has become entrenched we have to not only correct the alignment at the top of the neck, we have to make major changes to our sitting and standing posture and to our gait. We have to overcome tight muscles, stretched muscles and loose ligaments and learn to live with joints that may be anatomically damaged so that they may never be stable without extreme mindfulness of our posture and gait right through the whole day.
Following a major L5 S1 disc prolapse at age 23, and 2 years of relentless low back pain and right sciatica- I gradually progressed to chronic low back pain at night, then increasing neck stiffness, with worsening alertness and visual clarity. I had some spinal pain issues pretty much every day from about age 32- to a peak at 47- when I had the first atlas adjustment.
Folowing that I tried Pialtes to correct my posture and after time I have found that I do best when use as the backbone of my management Sacro- occiptal chiropractic and functional neurological rehabilitation ( A field developed by a remarkable chiropractor Prof Ted Carrick). It has needed expensive orthotics, and intervention from physiotherapists and myotherapists. It has also required me to become proficient at meditation- so I can remain mindful of posture. However the biggest single thing that has helped tie all this together is adding Qi Gong/Tai chi into this mix.
So now- 5 and 1/2 years later I am rapidly approaching a stable state in which I expect to be flexible and probably nearly pain free in the next few months.
This problem should have been prevented by chiropractic intervention at birth- but my profession suppressed the chiropractic profession.
It could probably have been resolved within 18 months of the first intervantion, but the greedo f my profession has kept from public view the key information that should make accessing integrated and informed care possible.
I was more upset at the time about being rear-ended so I did not focus on the current that I had felt? After all, despite a little post-collision grogginess, I felt fine. As such, I did not believe that I had sustained any
injuries. After all, there was no damage to my car.
Ten or eleven days following the accident, I was sitting on my couch with my laptop, looking down, when all of a sudden I felt an electrical vibration in the center of my head. It
lasted for roughly three or four seconds, and it caused me concern. At the time I did not connect the vibrations with the current felt during the accident because it had been a week and a half and I had largely forgotten the incident.
I did, however, think to myself that if the vibration happens again that I was going to see the doctor.
It did happen again, three days later. I was sitting
at the back of my classroom stapling packets for my students. I was looking down while performing this task when, out of the blue, an electrical current moves from the top of my neck into the center of my head. One it reached the center of my head, the current changed into an electrical vibration. The vibration lasted about seven or eight seconds and nearly brought me to my knees. I almost blacked out, but the vibration stopped just before I blacked out and I was able to stand and walk to my desk chair.
Following the vibration, I felt sick. I was so light-headed and disoriented. I felt so out of it, spacey. I knew that I needed to go home.
When I got home, I scheduled an appointment with my general
practitioner for the following day. I still felt light-headed and it did not seem to let up.
The next day I go to the doctor, have a number of tests done, and I am basically told that there is nothing wrong with me. I figure that perhaps this will let up on its own since I have been told that everything is fine.
Over the next week I continued feeling light-headed. I felt like I was going to pass out when on my feet for an extended period of time. I became so concerned that I made a couple more trips to the the doctor. My blood was tested
revealing a low vitamin d count, like the previous year, but nothing else abnormal. Upon my second visit which I went to following a very hard day in the classroom, in which I thought I might be having a stroke or an aneurism, I was laughed at by my doctor and told by him in a jokingly manner, ” I can tell you this, you’re not going to die today”. I left feeling as though he felt it was psychological. It upset me, though it did comfort me for a few hours that I wasn’t dying.
All in all, over a twenty two day span I felt normal for only five days. Then, at the end of twenty two days, I broke out of it and felt normal, minus a slight intolerance to the fluorescent lights in the school, but that was minimal. I had developed a strong dizziness to the lights through the disoriented days.
Over the next two months (late April-late June), I felt
normal. Then while on our road trip while driving over a long bumpy concrete stretch with thumps between each concrete section, I developed such a headache and light-headed ness. These episodes did not last as long, only about eight days, but it was significant enough to put a damper on about eighty percent of our visit with the in-laws, as I was consigned to the bed or couch, doing very
little walking or interacting with the family.
After the episode ended, I had a month and a half of normalcy (early July-late August 2014).
However, in late August while standing in the cafeteria and watching my students, my peripheral vision went away and the room began to spin. Knowing that I was going to pass out, I quickly found a table and sat down. This prevented me from passing out, but I was left with light-headedness again.
For the next week or so I was very light-headed. I decided to see a neurologist. She chalked it up to migraine and dismissed my questions as to whether these issues were the
result of the accident. She said the spinning was due to dehydration. She prescribed sumatriptan for migraine and that was it. I took the sumatriptan and found it did nothing for the headaches or light-headedness. In fact, ibuprofen at least helped minimize symptoms, if only a little. Sumatriptan did nothing. I might as well been given a placebo sugar tablet, it would have done the same.
After the week of light-headedness, I felt normal at all times, except under the fluorescent lights while working and in Walmart and grocery stores. However, the intolerance and light-headedness that the lights brought on were
not as bad as the week before. It was tolerable and I could easily work, standing lots in front of the classroom, writing on the white board, and teaching the kids. This period of “normalcy minus slight disorientation under
lights” lasted nearly three months from late august to mid November 2014.
Starting in mid-November, I began to notice hearing problems, in which it seemed like I lost fifteen percent of my hearing. However, the intolerance to the fluorescent lights completely vanished. I found myself turning up the volume for the radio in my car, as well as turning up the volume on the tv. My wife kept telling me that it was too loud. I found that background noise prevented me from hearing all words in conversations when around large crowds.This period of normalcy with slight hearing loss lasted from mid November 2014-early February 2015. During this period I truly thought my light headed issues were behind me as I went nearly three months without the problems. The neurologist pretty much declared “resolution” to the migraines when I visited her in early December.
This is where the symptoms came back, starting in early February. Not only that, they’ve become chronic and worse.
In early February while teaching, I, all of a sudden, felt clammy and faint. I began sweating and became disoriented. Me eyes couldn’t fixate on the walls of the classroom. I think my heart rate was elevated. I quickly sat down. I tried to teach but I could not do it, I felt as though I was going to pass out. I was so light headed. I had to
leave work.
Ever since, I have had a strong intolerance to fluorescent
lighting. I have been light-headed about every day. During February-April
migraines were a regular occurrence. My eyes have increasingly gotten where I feel as though one eye is viewing from a different level than the other. One good thing happening is that with this onset all of my hearing returned, yet the rest has been brutal.
Light-headedness under fluorescent lighting and while
standing got so bad that I consulted another neurologist. I also went to an ENT doctor to rule out an inner ear infection, given the dizziness and earlier loss of hearing. The ENT doctor ruled out an inner ear issue through the use of an ENG test. The new neurologist spotted a problem after viewing my MRI, MRA, and CT scan images do my head and neck from my previous doctor and emergency room visits. Never mind that two times I had gone to the emergency room I was almost treated with contempt, told nothing was wrong with me, as though I was making it up, and quickly dismissed.
All this said, the neurologist, from viewing the CT scan noticed my atlas bone at the top of my vertebral column was out of place. He asked me if I had been in an accident. I tol him yes, about ten or so days before I first started having symptoms. He said that I had likely displaced my atlas in the accident which was the cause of dizziness, electrical currents I had begun to have along my scalp starting in February or March, as well as the cause of migraines. He also said that my peripheral nerves were likely stretched in the accident. He gave me a prescription for noratriptalin for dizziness/lightheadedness and told me to see an ortogonal chiropractor to reset the atlas bone.
My symptoms did improve while taking noratriptalin. Although I was still light-headed it became more tolerable where my eyes seemed to be on a more even plane with each other.
Chiropractic has helped, although it took three
or four neck adjustments for the atlas to stay. This has eliminated most scalp tenderness, migraines, and electrical currents on my scalp, yet disorientation,light-headedness and now issues with accelerated heart rate, which could have been a problem all along, are noticeable.
Things I have found helpful is staying hydrated, eating
regularly, getting lots of sleep. Without much sleep, symptoms are horrible. I also noticed back in February, after drinking Gatorade, that it helped with the headaches. Laying down helps, but sitting is better than standing. When teaching, I found it helpful to regularly sit down on a stool. If I felt like I was going to pass out, I would immediately sit down or drink water or Gatorade and my symptoms would improve. I also found it easier to teach by turning the lights out and using the wall mounted projector instead of the white board. The only thing that has made me feel completely normal, and only for one day since February, was a steroid given to me by the neurologist.
Are all of my symptoms the result of an atlas subluxation, or do I have other issues from the accident?
Thanks,
Paul
I have found myself that issues at C2/3 (which are more hypomobility and impaction of the C3 facet into the angle of the C2 facet- and often are driven by the counterrotation necessary to keep the head straight with a crooked atlas)), cause profound problems. These are being dersribed as ‘Cerebellar Cognitive Affective Syndrome” ( See wikipedia for a brief description- unfortunately the evidence for the excellent work being done by chiropractors specialising in Functional Neurology is being systematically removed from Wikipedia by zealots who describe themselves as “skeptics”:
https://en.wikipedia.org/wiki/Cerebellar_cognitive_affective_syndrome)
It is also common to get a compensatory rotation in the chest- which leaves one of the upper ribs out of place and causing segmental stimulation to the sympathetics to the heart. My heart rate goes up 20 bpm every time that damn 4th right rib gets jammed.
I have a couple of comments about the care you have recieved:
The next day I go to the doctor, have a number of tests done, and I am basically told that there is nothing wrong with me.
This is a common experience of many people who have atlas subluxations. The symptoms are intermittent and subtle, and they also impair our ability to describe them They are impossible to correct unless you are aware of the root cause and knowledge about atlas malalignment has been systematically excluded from mainstream medicine. This is inexcusable.
Addressing the corrupting effect of the system of medical licensure on our access to proper health care is a bigger task, but I will say one thing here. You presented to your doctor with serious symptoms and were told to go away and that there was nothing wrong with you. Your subsequent course proves him wrong. What that doctor did fits in every way the definition of malpractice. I work as a GP myself and I know that when I am stuck with a patient who has serious symptoms it is my responsibility to persevere until they are resolved- not to dismiss and ignore complaints of a serious nature.
Getting satisfaction with complaints about this sort of thing is almost impossible- but I would at least write to him tell him what happened and tell him off for being so dismissive. He needs to know that his practice is substandard. Pushing it further will probably just cause unnecessary paperwork and stress and make your condition worse.
The neurologist who diagnosed your condition as migraine was technically correct but did not understand that spasm of the subocciptal muscles secondary to an atlas malalignment is a (probably THE) major driver of migraines.
I am delighted to hear that there was one neurologist who recognised the problem AND referred you in the right direction.
Almost NO doctors understand the existence of this problem, let alone its gravity.
Write him a letter too and thank him.
Now my experience is that this sort of problem is hard to fix permanently,as the secondary malalignments, the loss of proprioception, the mental dullness
the pain, and the forgetfulness all combine together to produce one hell of a mess.
I am going to write more on this soon, as I am getting a better grip on a holistic approach to dealing with the problem.
However the broad appraoch must have the following elements
1) Work to maintain correct alignment at all levels long enough for the new alignments to be learned as normal.
2) Work to develop perfect posture both at rest and while active. ( I use the combination of sitting meditation and TaiChi- and find that hard to beat).
3) Neurological rehabilitation to restore normal reflexes in the brainstem, normal regulation of eye movements, and restoration of healthy cerebellar and basal ganglia function. The Carrick Intitute is the premium source of information on this approach in my experience:
https://www.carrickinstitute.org/
4) Commitment to a healthy and balanced way of life with plenty of exercise and healthy food and enough sleep.
5) Development of emotional equanimity: when angry or fearful most of us will instinctively hunch and thrust our chin forwards.This can re-displace the atlas r other facet joints.
6) Enhancement of awareness of physical sensation.
I have found that dedicated meditation practice, with major focii of practice being stability of attention, bodily awareness and compassion and equanimity has been the one indispensable tool that has allowed me to tie all this together.
There are a range of different approaches that an be used- and all the best ones are gentle.
While I have disagree that Atlas Profilax produces a once only cure (and have seen many cases where the correction has not held) the reason I chose it was that it is a gentle approach emphasising mobilisation of tight muscles. Equally I have seen extremely impressive results produced by chiropractors using activitor techniques and by a physiotherapist using a simple massage technique derived from craniosacral therapy. I have not directly seen any results from Atlas Orthogonal- but it is clearly not a high velocity thrust.
There are some significant confounding factors in managing upper cervical malalignments. The big ones are the marked muscle spasm that sets in at the subocciptal region and the impairment of proprioception and vestibular/cerebellar function that confuses our system and causes recurrent malalignments.
I am very clear though that a persisting upper cervical malalignment will cause ongoing compromise to health through a diverse range of mechanisms.
The confounding factors in managing