MS Society has played a BIG part - SHAMEFUL!!!!!!!!

Its not about just medical science

Saturday, 2 April 2011

Havent helped the misdiagnosed like me

Because the MS Society has only concerntrated on a scientific solution to MS, they have failed to explore the alternatives as I have. If they had have they would have come up with the same conclusions, but many many years ago. I spent many months on their site promoting the attributes of acupuncture and chiropractic issues, explaining my own experiences, this took months for me to achieve gaining others trust, inducing questions and debate, which people need to do. For reasons beyond my control,  a group of users got together and managed with the help of others higher, to close ranks and get rid of me. this was very unfair and unjust. But I'm sure it was nothing personal.

This blog has been a brilliant vehicle for me to finally have my say. I was determined not to shut up and go away. And I havent. I'm still here.

Saturday, 19 November 2011

I posted this back in May

Monday, 30 May 2011

Cervical spine/neck area vulnerable = misdiagnosis

The following post is on MS Society message board. The cervical spine/neck in my case is 100% relevant. Many people consider either stress or having a car accident has triggered their ms. Their is an absence of a current American footballer being diagnosed and that is the have access to continued care making sure that they do not sustain injury in that area. I presume that it is the same for rugby players too, either a chiro or physio on stand by.

head trauma connections with ms??

nigel167
29 May 11
20:51

hi everyone me again ,well ive just read on a site that in more recent studies it has shown that trauma to the neck and head does indeed bear a relationship to the aggravation of /or creation of ms". i keep thinking back to my head trauma i had in oct and the symptoms which are now an ongoing problem ,b4 this i had no medical problems whatsoever. in the space of 6 months things seem to be getting worse ,and start to think back and can only pinpoint this as the cause of this condition? as nothing i have done since then have noconnection. had 2 mri scans and have a probable dx!! but still have to wait for more tests, still getting small numbness round heart area and was given ibuprofen for muclular pain ,but am conviced something more to it as it been there for 2 weeks and seemed to appear from nowhere.....thanks for reading ..any ideas?? take care nigex

Thursday, 15 September 2011

yes I am in denial

The worst piece of advice anyone can give to someone diagnosed with the condition ms, is to tell them that they must accept diagnosis.

This is the last thing that they should do, as it forces them to not investigate alternative possibilities for something that just doesnt make any sense at all, and that is because ms does not exist as it is discrided today.

Doctors Neuros and Nurses must not even suggest it. And on the ms society website it is constantly mentioned to others who are finding it hard to accept this unacceptable nonsense of a condition.

So I say DENY away.

posted sept 2011

I have today tried to reregister onto the MS Society boards at present unsuccessfully, using my old user name Fee001. I have asked them to confirm in writing that a lifetime ban has been levvied against me.

They wont reply, but at least I've asked. I find it frustrating when one poster has been told that he or she needs to accept their diagnosis, this is exactly what no should be advised, and is very dangerous to do so.

and I just have to watch, so wrong!!!!!!!!!

Sunday, 28 August 2011

posted aug 2011

I have very mixed feelings about the MS Society as for me they have done nothing, they actively banned me from their boards through fictitious and false claim, by members that use the board as a social network. I myself was only interested in gaining information and debating things with others of interest, plus having a bit of a laugh at the same time.

I didnt go quietly no, why should I, after such unfair treatment. But then on the other hand if they hadn't of tried to silence me (the users that is) this blog would not exist. So hey ho perhaps unknowingly they did me and others a big favour.

So thank goodness for the short sighteness, nice one.

posted aug 2011

 we the diagnosed have all the answers

 >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>
Over these last years I have had the privaledge to observe firstly the MS Societies message boards and now Thisisms boards I have gleened so much from those that have received a positive diagnosis, the real people caught up inthis whoe fiasco.

We have more if not all the answers that will ultimately make this manmade (medical profession mainly) condition nul and void

The MS Society has already spent 136million on futile investigations, when are they going to get it

MS does NOT exist, so therefore you cannot CURE it.

Monday, 25 July 2011

UAE4eva

I dedicate this blog to UAE4eva from MS Society young persons message board, who was diagnosed at the age of 14. She or he doesnt know me or I them.

They will get their life back I will make sure of it. When I walk I will search facebook bigtime.

Thursday, 14 July 2011

posted july 2011

The MSS message boards, are really worrying me now. There are to people one who believes in diet and another in HBOT, they have been on the boards for years, offering advice on both subjects which has been helpfull to others. and now for some reason in my eyes being desrespectfully treated.

An older group of users use this board as their alto ego, and if they dont like your ideas etc make sure you have a hard time, when what they should do is move on. people are entitled to their veiws, and personally can see exactly why these two members a pationate about these subjects, as I was regarding acupunxture ans the Atlas. A group didnt agree or like me, were unable to see the bigger picture and lied to get rid of me.

The older members take the younger ones under their wing, this in itself worries me as they are censoring what they are allowed to think, this is wrong and very manipulative.

I have written to MS Society politely requesting that my ban is lifted, but they totally ignore my request. no  reply nothing.

The board has definitely lost its reason. Its so sad as others desperately need it, but not as it is today. Shame on them for ignoring the problem

Monday, 4 July 2011

ignore the word cure as there isnt one needed

I cured myself of MS

By LISA SEWARDS, Daily Mail
Last updated at 09:52 04 July

Dermot O'Connor claims he has freed himself from MS

Conventional medicines says multiple sclerosis is incurable. This man insists he beat it with diet, ancient Chinese exercises and mind over matter. Wishful thinking - or truly extraordinary breakthrough?
In 1998, Dermot O'Connor, 36, from Dublin, was diagnosed with a severe form of multiple sclerosis (MS) - the 'incurable' and degenerative neurological disorder.
He left his job to dedicate himself to fighting the condition. Eight years later, in perfect health and symptom-free, he has written a book telling how he achieved this through nutrition, acupuncture and forms of mind and body medicine.
As an international banking consultant, Dermot O'Connor was chronically stressed, short on sleep and always running late. But he was used to being in control. Imagine his horror when he made the first phone call of the day from his office in 1998 and heard himself slur: 'Hello, itsch Dermoch O'Connor, can I schpeak with Carlosh?' His colleagues laughed. 'What have you been drinking?' they joked. 'I hadn't been drinking, so I put it down to tiredness,' recalls Dermot. But he spent the rest of the day trying not to speak, then got an early night.
'The next day I heard the words: "New Zealand had lost rugby's Tri-Nations Championship for the first time since its inception" on the radio. 'I put my speech to the test with that phrase. I certainly couldn't have said that the previous day. Now, after much sleep, I felt totally confident. "New Zhealand losht rugbysh Trinashions championshipsh for the firsht time sinsch itsh incepshion." My speech was even worse.
'I was terrified. No matter how hard I tried, I couldn't shape my mouth correctly to pronounce the words.' The next day, Dermot flew to Germany on business, only to find his health deteriorating rapidly. At one point during a presentation he was literally struck dumb. A colleague had to step in.
Back home in Dublin, he had a series of hospital tests. At first, consultants thought he'd had a stroke, as one side of his face had dropped. But an MRI scan showed lesions on his brain and a lumbar puncture confirmed the dreadful diagnosis: multiple sclerosis. 'I felt all the energy drain from my body,' recalls Dermot. 'I was familiar with MS. I would often say that I would take any health condition ahead of MS. And here I was at the age of 29 with exactly that.
'It seemed one of the cruellest of all illnesses. Once it got a grip on you, there was no release. You spent the rest of your life fighting a losing battle. I knew the comedian Richard Pryor had MS and was confined to a wheelchair and could barely talk.'
Multiple sclerosis is an 'incurable' degenerative disorder of the nervous system. Many symptoms first appear between the ages of 20 and 40. One in 600 people in the UK has it.
Nerve fibres are normally insulated with a protective sheath of fatty tissue called myelin. In MS, there is patchy loss and scarring of this myelin sheath, so nerve messages cannot travel normally from the brain to different parts of the body, leading to numbness, fatigue, speech or swallowing difficulties, loss of balance, blurred vision, muscle spasms and unstable walking.
'By the time I left the hospital my speech was back to normal,' Dermot says, 'so I convinced myself that nothing was wrong. Then, two weeks later, on a business trip in LA, I awoke and found that I'd lost sensation all over my body, except for a feeling of a tight band around my waist.'
Back in Dublin he saw a neurologist, who gave him a number of tests. One involved pushing and pulling against his arms. 'I was so determined to pass this test that I pushed him back so vigorously that he almost fell over,' says Dermot. 'To my mind I had performed all the tests admirably. But then he slowly took off his glasses, and said: "Listen, you have got MS." '
On average, an MS attack comes once a year. Two within two weeks suggested that Dermot had a very aggressive form. 'I was told to go away and cry and to come back the following week with any questions. As I sat in the waiting room, I could see the varying degrees of decline as people before me struggled on walking frames and in wheelchairs. I wondered how long it would be before I was wheeling myself in for my appointment.
'While medication can slow down the decline by 30 per cent, nothing can halt MS indefinitely and often this medication has side-effects and sometimes it doesn't work. The cause of MS is unknown, which makes it more difficult to come up with a cure. I thought it would be better if my life just ended.'
This feeling was reinforced when he bought books about MS: 'They seemed to be just guidebooks to decline - detailing all the ghastly symptoms including being wheelchair-bound and, finally, facing death.
'I developed a morning ritual where I would test each of my faculties to confirm which had declined and by how much. Sure enough, as each day passed, my legs got weaker, my eyesight seemed worse and I was developing pain sensations all over my body.
'I remember when my foot fell asleep and I was stricken with fear. Was I about to lose my ability to walk? As feeling and movement came back into my leg, I was momentarily relieved. But worst was the fear of the unknown.
'It was as if a giant was holding me in his palm, about to close his hand and crush the very life out of me at any point he chose.'
Dermot started to look at his lifestyle. He had been filling every minute of every day with work, lectures and study, then exercising by running or lifting weights well into the early hours of the morning, collapsing into bed around 4am.
For the previous seven years, he had worked in more than 70 countries, hopping in and out of time zones, fighting off jet-lag to perform under high pressure conditions.
He frequently gorged on junk food - colleagues called him 'the human dustbin'. He also felt 'emotionally' unhealthy: whenever he felt that he had suffered an injustice, he would harbour a huge amount of resentment - just as he did after being diagnosed with MS.
'I knew I needed quickly to make myself mentally stronger,' he recalls.
So he turned to various 'alternative' disciplines, including Neuro-Linguistic Programming (NLP), which 'reprogrammes' the brain to change negative thoughts. He also studied the work of Irish hypnotherapist Dr Sean Collins.
Dr Collins was researching the effect of the mind on the body and had just completed his first book Tipping The Scales. He argued that while making one change to your life might not be enough to conquer an illness, the cumulative effect of various changes could tip the balance in your favour.
The first change Dermot made was to take up Shengong ? a Chinese form of meditation. Then he changed his diet, cutting down on saturated fats and eating more whole foods and oily fish, an approach devised by American neurologist Dr Roy Swank.
'Within three weeks of changing my eating habits, I noticed some dramatic changes in my health,' says Dermot.
'My energy levels became higher, my thoughts were clearer, my memory improved and I started to sleep better at night. Critically, the numbness in my body from the previous MS attack waned and eventually disappeared.'
To Dermot, it seemed the original diagnosis had been turned on its head. He went back to his neurologist six months later and was told it was a temporary remission. Dermot never went back.
The next time he and his neurologist met, they were sharing a platform at an MS Society conference where they were clearly from opposite schools of thought.
'He came from the angle that MS sufferers can get temporary relief from drugs, but it is simply incurable,' says Dermot.
'I believe I didn't get into remission from rapid deterioration by chance. I believe I have actively created my remission. In just six months, I was measurably fitter, faster and stronger. My energy was higher than I had ever known it before, and I had increased mental clarity. Not only was I symptom-free, but I was in the best physical shape I'd been in for almost ten years.'
Dermot continued to study alternative approaches, training as an acupuncturist, dietary therapist and NLP master practitioner.
He also studied Chi Kung, a form of exercise, at Xi Yuan hospital in Beijing, the leading Chinese medicine hospital. 'I witnessed very sick people at Xi Yuan hospital move, breathe and meditate themselves back to health,' claims Dermot.
'From all this, I put together the pieces of the jigsaw to create the foundations of what I call the Healing Code.'
He has now left banking and opened clinics in Dublin and London. He claims success with illnesses ranging from serious conditions such as Parkinson's disease to chronic migraine.
It is now eight years since Dermot was diagnosed with MS. He claims his health has improved year on year and that he remains symptom-free.
Dermot appears to have confounded the prognosis. The history of medicine is full of stories of patients who defy expectations.
As Lucy Jeanes, of the Royal College of General Practitioners, explains: 'Self-empowerment and lack of stress is almost always therapeutic in chronic conditions.'
MS experts also point out that remission from the disease can last for many years.
And while Dermot himself was was not on medication, health professionals get worried when patients use alternative treatments to the detriment of conventional treatment.
'Inspiring'
Dermot's story is 'inspiring', says Matthew Trainer, spokesman for the Multiple Sclerosis Society. 'He has certainly found an approach that works for him. Every person's experience of MS is different.
'Seven out of ten people with MS have tried a complementary therapy. Some find benefits in them, but we recommend you consult your doctor to make sure these therapies are not to the detriment of any mainstream treatment.'
Lucy Jeanes agrees: 'It is essential that these treatments are used with conventional medical treatments and not instead of them.'
For Dermot, the first vital step is to understand and perfect the psychology of health recovery: 'So we begin implementing the Healing Code with a question: Is your mind ready to be well?'


Read more: http://www.dailymail.co.uk/health/article-393949/I-cured-MS.html#ixzz1RIObnV3C

Thursday, 30 June 2011

A non ms ramble so just ignore

After much deliberation and thought and because my son is going to the states in 3 years time. I have decided as I will be walking by then, soon hopefuly I've decided to go too.

I was hoping to make a difference here, help so to speak, but after hearing NHSs possible changes and not once hearing the words holistic medicine being included and considered, that is my first reason.

my 2nd is two organisations that have or could have if three years  agostressed me to the max by their total disregard of the trouble, inconvenience and disrespect they caused me, one being the MS Society. The other being the Child Support Agency or CSA.

Oh I forgot the misdiagnosis itself and the Candida thing. So I have no desire and no reason to stay in this country, none at all.

Now that feels better, I have got that off my chest.

Tuesday, 28 June 2011

posted june 2011-Many many young ones

Somebody today asked the question on the MS Societys  Everyday Living board.....what age at diagnosis?
He was very surprised how many young people there were.

Include those also in limbo and I reckon it will shock anyone. I think why this is, is because young people are subjected by consistant stresses which take their toll.

Hang on perhaps the MS Society has got some comprehensive statistics available as to lifestyles, relationship  and employment envvironments etc etc. You know the sort of statistics that build up a comprehensive picture. They have access to much info from users of their site. Perhaps they have deemed this a prudent thing to do. na!!!! perhaps NOT

Posted by my ms/mess at 10:28 0 comments