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Hi Alan,
After 4 MRIs and three years of cervicogenic neck, ear, jaw and head pain and cranial pressure, I've learned that a number of things can add to the pressure, inlcuding citalopram, even small doses of doxycycline hyclate, and acetaminophen. Good luck to you. Like you, I've had all of the tests for eveything above the shoulders. I now work with a neurologist on trial and error to see what will help. I've been losing 3-4 days a week, and I'm convinced I'm in the 3% of those who have cervicogenic syndrome who have it long term.
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After 4 MRIs and three years of cervicogenic neck, ear, jaw and head pain and cranial pressure, I've learned that a number of things can add to the pressure, inlcuding citalopram, even small doses of doxycycline hyclate, and acetaminophen. Good luck to you. Like you, I've had all of the tests for eveything above the shoulders. I now work with a neurologist on trial and error to see what will help. I've been losing 3-4 days a week, and I'm convinced I'm in the 3% of those who have cervicogenic syndrome who have it long term.
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So Allen............along with the head pressure do u also have sinus pressure, dizziness and feel sick like u have the flu all the time? this is what i have
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Head pressure!! ask your doctor for Pregabalin, its giving me relief so far for the head pressure, I am suppose to take 2 a day, but they make me feel drunk so I have bin on 1 at night, feeling not too bad, bin on them for a week after ending up in the hospital. I am beleive its Migraines
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The relief I have from finding this thread is overwhelming! For months now I've been trying to explain to my gp/husband/friends the pressure I feel & how debilitating it is & all I get is confused looks. I like a poster above get pressure in my head, temples, jaw, nose & cheekbones! Sometimes I feel as though my head will explode & others I feel as tho I can't move my jaw properly which of course I can. I've convinced myself it's tension related as I've been taking kalms tablets as I read there main ingredient 'valerian' is a natural relaxant & it's absolutely made a difference.. I know only have 1/2 days a week with the pressure as opposed to 5/6. It all started for me back In January when my wisdom tooth started to come through & it's been hell since then. Once again so glad I found this thread, makes such a difference knowing I'm not alone & someone actually understands!
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new56862 siobhan 83186 Hi. Are to suffer with this dreaded head pressure, mine is behind the bridge of my nose sort of come from the ethmoid sinus area. I'm certain mine is not psychological. I'm pretty sure it's air that is trapped somehow and won't equalise without the outside air pressure. I'm looking to get interested people together who are interested in attempting to get better. Look to get this condition documented and doctors aware, might lead to some research. Let me know if your interested. Cheers
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Wow. I'm glad I found this. I've been having the same deal pressure in my head. It starts in my upper neck and goes around to my forehead. I've tried every medicine had ct scans blood work. x Ray. I don't know what this is and apparently none of the drs do either. I hope we can all get this figured out. I'd appreciate any advice you have.
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shesa2 tim13801 Tim, a lady on here told me her pressure was from having IBO AND SIBO, crazy as that sounds. I am gonna see specialist soon.
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new56862 tim13801 Hi. Are to suffer with this dreaded head pressure, mine is behind the bridge of my nose sort of come from the ethmoid sinus area. I'm certain mine is not psychological. I'm pretty sure it's air that is trapped somehow and won't equalise without the outside air pressure. I'm looking to get interested people together who are interested in attempting to get better. Look to get this condition documented and doctors aware, might lead to some research. Let me know if your interested. Cheers
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Hi Alan,
I have been experiencing the same symptoms as you are. Were you able to determine what could be causing it?
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I have been experiencing the same symptoms as you are. Were you able to determine what could be causing it?
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Very similar symptoms for over a year. I first went to the ER with so much pressure in my head and lightheaded-ness, incredible nausea, and lethargy. I've had a history of migraines, but these were like prodromal symptoms of an oncoming migraine, and no headache ever comes. I was told it was a panic attack...I know what that is and it is neither anxiety nor panic attacks. Had every test and scan done, inconclusive. A neurologist told me that I had a combination tension/migraine headache and put me on a drug that was horrible, nothing helped. Acupuncture seemed to help for a few weeks, then did nothing. So, since August I moved and had a new doctor who had me taking Verapramil 180 mg a day as a symptom precentative. For six months I had no pressure, it was gone! Now, in the last month, the pressure and nausea have returned, daily. I was told it's allergy related, was on every antihistamine to no avail. A homeopathic specialist recommended two things: Protease, a protein enzyme, for the allergens, and belladonna for the migraine symptoms. Keep in mind, I rarely get the headache, but always have the intense pressure in my head. The belladonna has helped, it has not give away entirely but helps slightly so at least I can feel like I can leave my house. Also, marijuana (vaporized) helps a lot, esoecially for the nausea. I have also heard that gluonine is a homeopathic remedy for the head pressure. I would love to hear from others anything that has helped! The feeling that my head weighs 50 pounds and the spacey feeling along with pressure and nausea causes me depression, no one seems to understand how debilitating it is. I take Wellbutrin already for depression, and adult ADHD medication, which I initially thought was the culprit, but after going off and on various ADD meds, I doubt that is the cause. My worst fear is that I have an aneurism because the symptoms are so similar, but I had a scan and MRI a year ago that was normal. Thanks to all to made it through this long reply!
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new56862 shari73741 Hi. Are to suffer with this dreaded head pressure, mine is behind the bridge of my nose sort of come from the ethmoid sinus area. I'm certain mine is not psychological. I'm pretty sure it's air that is trapped somehow and won't equalise without the outside air pressure. I'm looking to get interested people together who are interested in attempting to get better. Look to get this condition documented and doctors aware, might lead to some research. Let me know if your interested. Cheers
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A relief to see people suffering with the exact same thing as myself. I have literally been through hell this year with it, it brought on my panic disorder extremely bad again, and not the other way around dispite what the doctors say! I was close to just not living anymore, that's how bad it feels, I am sure some of you can relate to that. Suffering this unbearable head pressure, dizziness, heaviness, weird sensations, numbness, just crazy stuff you CAN'T ignore. Then having full blown panic attacks on top of it because the symptoms scared me so much, to the point that I literally couldn't move or bend my hand, fingers or legs, as well as hyperventialtting beyond belief.
Thankfully I have calmed the panic attacks down a lot now again, because I realised somehow that panicking about it is just making things worse, since the symptoms are there regardless of whether I have panic attacks or not. I am so upset with this happening to me again, and I say again because I actually had this once before in 2010, it lasted until early 2012, it simply wouldn't not go away. I had every test imaginable done, MRI's, CT scans, blood tests, all sorts. I even spent a week in hospital where they tested me for lots of things and everything came back fine every single time. Just like now all the tests I have had are coming back fine again. Clearly it's the same thing I had a few years ago, so hard to accept though because I honestly experienced it going away completely for a couple of years and I so badly want it to go away again!
I noticed it start to creep back earlier this year, around late January, I had a full blown major panic attack when it cam eback because clearly subconciously by body was thinking 'wow, no way not that again!' Anyway, over a few weeks it kept coming and going (the head pressure and dizziness) until one day I got it bed and said to my partner who I have been with for 7 years, guess what, she said what? I said the head pressure and tension is back again.... So up until this present day again here I am, countless A&E visits and ambulance calls later, sat at home living a miserable life and hardly wanting to stand up because the head pressure, tension and dizziness won't go away. So so so depressing, I want to do so many things and can't because I simply find standing up difficult sometimes.
I am 29 years old by the way for those interested, I have suffered with anxiety related problems since I was 19, extreme panic attacks, etc. I don't know if it's all linked or not, but it seems to be, although I will say time and time again to doctors it's the head pressure symptoms and what not that cause me my panic attacks, but they always seem to disagree and say it's th eother way around, even though I live in my body and only I know the truth! A&&holes sometimes.
I am going to say some positives now to those who may not have experienced the freedom of it going away again yet. Remember as I said above it once went away for me for 2 years, it was the best time of my life thinking back now because it's so easy to take for granted just feeling 'normal' physically. I do know this when it comes to being free of it, the time that it went away was when my life had absolutely no stress in it. Previous to that I had some very stressfull things going on and it seemed to fuel the tension and pressure constantly. When I had little stress and moved on over a period of time it went away, I can't remember the day it went away, more so I just remember thinking one day, wow wait a minute I haven't had the head pressure for a few days, then that was it I was free. I started playing football again, doing physical things, actually getting fit again.
Anyway, back to now. I have become very unfit again, because I simply have no energy with this and it's been a very, very hard few months, especially the last few weeks. I have seen countless doctors again, been to A&E with it around 8 times in th epast 3 weeks alone, seriously.... All to no avail, I just have to accept it's the same thing as before and it's no doubt related highly to stress and not being able to stop thinking about the pressure in the head. It's so hard to believe but it's true. I just can't stop thinking about it because it's there, but I know that sometimes even if just for a few minutes, sometimes I forget about it if I dunno, have a few beers, I just seem to feel more 'normal' even if just for a few hours. This week I have forced myself to try and do things, getting out of the house for a long walk (even if it did feel unbearable at first). I have had a couple of better days this week, not great days, but enough to make me have some hope that if I can actually stop thinking about this f**king head pressure then it might actually go away again.
Guys, I know it's so hard, but please believe me I know more than most just how disabling this is. So at least please maybe think of it like I do too, we are probably prolonging it by thinking about it all the time. Forgetting it is easier said than done, trust me I know! But honestly, somehow if you really could just eliminate that memory of having the pressure feeling I'd be interested to see how many of us still have it. Because I have so much experience with it and it's gone away before, I honestly do believe it is mainly from anxiety and stress as hard as it might be to accept. Our bodies react in strange ways.
I don't know anyway, just my thoughts. I am always open to ideas, but my personal experience with it leads me to my own theories. I hope we all get rid of it again I really do. I have it right now writing this, heavy head (insanely heavy), dizziness, pressure, blah blah blah.... It's so draining, sigh.... Let's get each otehr through it, because we will do it!
2 votes Report Share reply to sy-g
Thankfully I have calmed the panic attacks down a lot now again, because I realised somehow that panicking about it is just making things worse, since the symptoms are there regardless of whether I have panic attacks or not. I am so upset with this happening to me again, and I say again because I actually had this once before in 2010, it lasted until early 2012, it simply wouldn't not go away. I had every test imaginable done, MRI's, CT scans, blood tests, all sorts. I even spent a week in hospital where they tested me for lots of things and everything came back fine every single time. Just like now all the tests I have had are coming back fine again. Clearly it's the same thing I had a few years ago, so hard to accept though because I honestly experienced it going away completely for a couple of years and I so badly want it to go away again!
I noticed it start to creep back earlier this year, around late January, I had a full blown major panic attack when it cam eback because clearly subconciously by body was thinking 'wow, no way not that again!' Anyway, over a few weeks it kept coming and going (the head pressure and dizziness) until one day I got it bed and said to my partner who I have been with for 7 years, guess what, she said what? I said the head pressure and tension is back again.... So up until this present day again here I am, countless A&E visits and ambulance calls later, sat at home living a miserable life and hardly wanting to stand up because the head pressure, tension and dizziness won't go away. So so so depressing, I want to do so many things and can't because I simply find standing up difficult sometimes.
I am 29 years old by the way for those interested, I have suffered with anxiety related problems since I was 19, extreme panic attacks, etc. I don't know if it's all linked or not, but it seems to be, although I will say time and time again to doctors it's the head pressure symptoms and what not that cause me my panic attacks, but they always seem to disagree and say it's th eother way around, even though I live in my body and only I know the truth! A&&holes sometimes.
I am going to say some positives now to those who may not have experienced the freedom of it going away again yet. Remember as I said above it once went away for me for 2 years, it was the best time of my life thinking back now because it's so easy to take for granted just feeling 'normal' physically. I do know this when it comes to being free of it, the time that it went away was when my life had absolutely no stress in it. Previous to that I had some very stressfull things going on and it seemed to fuel the tension and pressure constantly. When I had little stress and moved on over a period of time it went away, I can't remember the day it went away, more so I just remember thinking one day, wow wait a minute I haven't had the head pressure for a few days, then that was it I was free. I started playing football again, doing physical things, actually getting fit again.
Anyway, back to now. I have become very unfit again, because I simply have no energy with this and it's been a very, very hard few months, especially the last few weeks. I have seen countless doctors again, been to A&E with it around 8 times in th epast 3 weeks alone, seriously.... All to no avail, I just have to accept it's the same thing as before and it's no doubt related highly to stress and not being able to stop thinking about the pressure in the head. It's so hard to believe but it's true. I just can't stop thinking about it because it's there, but I know that sometimes even if just for a few minutes, sometimes I forget about it if I dunno, have a few beers, I just seem to feel more 'normal' even if just for a few hours. This week I have forced myself to try and do things, getting out of the house for a long walk (even if it did feel unbearable at first). I have had a couple of better days this week, not great days, but enough to make me have some hope that if I can actually stop thinking about this f**king head pressure then it might actually go away again.
Guys, I know it's so hard, but please believe me I know more than most just how disabling this is. So at least please maybe think of it like I do too, we are probably prolonging it by thinking about it all the time. Forgetting it is easier said than done, trust me I know! But honestly, somehow if you really could just eliminate that memory of having the pressure feeling I'd be interested to see how many of us still have it. Because I have so much experience with it and it's gone away before, I honestly do believe it is mainly from anxiety and stress as hard as it might be to accept. Our bodies react in strange ways.
I don't know anyway, just my thoughts. I am always open to ideas, but my personal experience with it leads me to my own theories. I hope we all get rid of it again I really do. I have it right now writing this, heavy head (insanely heavy), dizziness, pressure, blah blah blah.... It's so draining, sigh.... Let's get each otehr through it, because we will do it!
2 votes Report Share reply to sy-g
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scottio19 sy-g Great post and sums up the agony that this thing (whatever it is) causes on our lives.
my symptoms have returned in the past 2 weeks and it's been hell. Once again I'm trying to work out what is causing this but I know I'll come up short as 2 years of searching has been futile.
Doctors and friends say anxiety but I say this Causes anxiety and not the other way around.
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colin681996 scottio19 Yes! I completley agree! This problem causes me great anxiety at times
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new56862 scottio19 Hi. Are to suffer with this dreaded head pressure, mine is behind the bridge of my nose sort of come from the ethmoid sinus area. I'm certain mine is not psychological. I'm pretty sure it's air that is trapped somehow and won't equalise without the outside air pressure. I'm looking to get interested people together who are interested in attempting to get better. Look to get this condition documented and doctors aware, might lead to some research. Let me know if your interested. Cheers
0 votes Report Share reply to new56862 -
tom70680 sy-g Sounds like my life...literally , actually shed a tear there buddy ...just dont know what to do
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I have this problem too! I also have tightness all the way up the right side of my neck, tenderness at the base of the skull, tight lat (right hand side) and tight trapezius (I think there could possibly be a pinched nerve there) It feels like a ball of energy that just wants to explode inside of my head. I have also began to develop this tic because of the muscular tightness and head tightness. Some days it isn't bad and some days its unbearable, where I find it even hard to communicate with people... I have been going physio for all the muscular tightness and it seems when my muscles relax my head tends to realx a bit too (but not fully though) It's great to know I'm not alone in this problem and it would be such a relief to get this problem sorted once and for all
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new56862 colin681996 Hi. Are to suffer with this dreaded head pressure, mine is behind the bridge of my nose sort of come from the ethmoid sinus area. I'm certain mine is not psychological. I'm pretty sure it's air that is trapped somehow and won't equalise without the outside air pressure. I'm looking to get interested people together who are interested in attempting to get better. Look to get this condition documented and doctors aware, might lead to some research. Let me know if your interested. Cheers
0 votes Report Share reply to new56862
I HAVE IMPORTANT INFORMATION FOR THE WOMEN HERE! I had a radical hysterectomy last month and since then my pressure is gone. Examination of uterus and ovaries after showed i hadsevere Endometriosis. I can't medically prove the connection but I had the pressure for the last 7 and it's been just a bit longer when I started having female issues. If you also have pmdd, painful sex, pain with ovulating, etc and brain pressure I hope this helped.
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Hey Alan,
Once again, I'm in a similar situation to most people here. Have had the routine investigations, scans etc.
Just curious as to how the last 3 months have been for you. Has there been any progress in your symptoms or any new treatments?
I would greatly appreciate any feedback you may have
3 votes Report Share reply to matt07572
Once again, I'm in a similar situation to most people here. Have had the routine investigations, scans etc.
Just curious as to how the last 3 months have been for you. Has there been any progress in your symptoms or any new treatments?
I would greatly appreciate any feedback you may have
3 votes Report Share reply to matt07572
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new56862 matt07572 Hi. What are your symptoms? Mine are pressure sort of behind the nose and between the eyes, this is made worse when moving head and especially when bending over. Constantly dizzy because of the feeling of something in my head.
Popping my eares helps which is why i think its connected to the inner ear and eustician tube. 3 weeks ago, whilst i had a lot of head pressure I was popping my ears and air released from my left ear. After this I felt great, no pressure, no heachaces, no dizziness. Sadly over the next few days it just built up again. I think a lot of poeple on these sites are experiencing very similar things. Doctors seem to think air can't come out of your ear unless you have a perforated ear drum. I however have proof it can and believe many on here are suffering from the same thing. Do you pop your ears by holding both nostrals and blowing and does this help with relieving the head pressure?
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Hopo34 matt07572 Hi all new to this site, and am experiencing same things as some. Had pain in my head and eyes now for about two years like a pressure/squeezing feeling makes me grumpy and agitated don't wanna do anything so went to drs when it first happened and fobbed me off with tension headaches and stress even though I'm not stressed. Was prescribed amitryptiline and naproxen and must say after few days felt on top of the world and continued on them for a while. Then dr wanted to stop it to see of was ok and was fine until little over a month ago and came bck went to dr said it was sinusitus and was prescribed the above again only coz I knew they helped and they did. Was great until a few days ago when ran out of amitryptiline and now bck again but worse I feel sick and was this morning yest I felt like I was gonna pass out my head feels heavy and still pressure feeling in my eyes and sides of my head. Just want to know how some of you had the dr send you for scans etc coz my dr never mentions it just fobs me off I live in uk so no private health care just nhs and was wondering how to get them to take notice and say a scan is fitting to be done coz I feel it does blood tests are no good and can't get in my drs for two weeks as full but gonna get an emergency appointment later can't wait two weeks like this it's horrible I just no my head ain't right and something is wrong and it's a bad feeling makes me down and miserable my kids talk to me and I grunt coz just not with it. And I don't wanna feel like that also been getting a pins and needles feeling in my left arm and leg when the pain comes onto my left side of my head so dunno what it is. Hoping someone here can relate and let me know what they did. Thanks
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new56862 Hopo34 Hi Hopo
I have had this pressure feeling from behind my nose for 4 months now. It leads to headaches the more active I am. It sort of builds up as soon as I get up on a morning. It's such an uncomfortable feeling. I have a theory of what might reduce the symptoms. A grommet put into the ear drum. This basiaclly lets air in and out of your head so it will reduce the pressure. I've found I can reduce the head pressure by chewing, yawning and performaing the Valsala manourver (popping ears). Popping ears is the best way. 6 weeks ago I popped my ears and I'm pretty sure I perforated my left ear drum, it must have only been a tiny whole as must have healed quickly. Ait then flowed out of my left ear, just as if you had a punctured tire. After this all of my symptoms were, no head pressure, noi heachache, no lightheadedness. Sadly over the next few days the pressure built back up again.
Do you find that when your ears pop it eases the pressure? I've tried amitryptiline, only for a couple of weeks, saw no effect but to be honest that's usually more effective for migranes of which I don't have. I've also been on loads of drugs doctors have tried to no avail. I've had an MRI, which came back clear, but was refused a CT scan. They just don't want to pay the money for it (I to live in the UK on NHS).
I saw specialist for the second time today and he basically said there was nothing he could do. I ran through my theory about putting in grommets but because there's no research out there that it might work he said no to putting in grommets. I have a second opionion on Thursday so going to push it to try see if it works.
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sy-g Hopo34 You definitely sound identical to me as regards how it feels. I totally understand the symptoms
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Hopo34 sy-g Yeah it's a right pickler ain't it, there's a part at the back of my head that feels tender when I yawn or move can feel the pain so been massaging it most of the day and dunno if its all in the head but seemed to have eased it a lot.
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new56862 matt07572 Hi. Are to suffer with this dreaded head pressure, mine is behind the bridge of my nose sort of come from the ethmoid sinus area. I'm certain mine is not psychological. I'm pretty sure it's air that is trapped somehow and won't equalise without the outside air pressure. I'm looking to get interested people together who are interested in attempting to get better. Look to get this condition documented and doctors aware, might lead to some research. Let me know if your interested. Cheers
0 votes Report Share reply to new56862
This reply has been deleted by a moderator. Why?
Omg I'm so happy I'm not alone I thought I was losing my mind, I've been having the same exact symptoms for months now & doctors can't figure out whats wrong I've just about lost all hope I know this hasn't been posted in in awhile but if anyone has had any positive solutions that help with all the pressure please let me know.
7 votes Report Share reply to amber0530
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Hopo34 amber0530 Your not alone amber, what symptoms do you experience? Ive found no real solution either and my drs are useless. Been like this for two years off and on amitryptiline and naproxen seem too work for me no other painkillers work. Yesterday was the worst day my head felt real bad and today wasn't the best but seems to have perked up tonight now not much pressure in my head and eyes but it still feels heavy as if it's being squashed from inside out. If you need to chat feel free to message me
0 votes Report Share reply to Hopo34 -
sy-g Hopo34 I wish we could all get some relief from this, I have it right now again as I type. Like yours mine varies too.
It's crazy and driving me insane. I feel physically ill with it too because it's so stressful, makes me feel like I am dying. Yet here I still am haha
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Hopo34 sy-g Same here as I'm writing this sat in bed watching TV I feel great like I was before it started. But no doubt tomorrow will be a bad day.
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amber0530 Hopo34 I've been on amitriptyline for about a week and a half now been to 4 different doctors, where they gave me bulb a tab or something (had no effect) cipro (in case of sinus infection, still nothing) was then put on baclofen same results and the immatrix and then topamax as always did nothing. My recent doctor put me on the amitriptyline and I feel like it somewhat helps but the pressure is always there mostly on top of my head, forehead sometimes the back of my head where my neck meets the skull and in between my eyes and eyebrows. I get random dizzyness, lightheaded throughout the day and lately it feels like im not even existent. Mind you I work for napa so all my garages know what's going on because I used to be the happiest perkiest person ever and now I'm always quiet in a daze going thru the motions so after having to explain what was happening to them a lot had different ideas which I tried they included ibuprofen 800mg, zertec, excedrine migraine tyenol, none have any effect, one garage tho told me about nasal buster it's a nasal spray what he failed to mention was it had peppers in it, so on one of my deliveries I stopped at cvs, spent 17 bucks on this little bottle went back to work and gave it a try, we'll it resulted in me practically yelling every swear word known to man because of the burning in my nose from the capicisian or w.e it's called in it, but it did give me 5 minutes of pressure free relief b4 the pressure came back. So burning sensation for 5 minutes of relief wasn't really worth it, and after all the forums I've read so many people with the same exact symptoms with no solution in sight is just making me feel worse.
0 votes Report Share reply to amber0530 -
sy-g Hopo34 Yep I have extreme symptoms in the back of the head too mainly, that's where I feel most of the pressure and strange feelings at times. My ears feel crazy, my legs feel all numb sometimes. I try and convince myself that it totally is not anxiety and then sometimes I try and imagine it might be, but then I just don't think it is because it happenes when I am totally not worried about anything sometimes. It's just a physical problem I truly believe, one that hasn't been diagnosed, yeah okay, it might not be life threatening which is what the doctors try and tell me, but it's very hard to accept that when the symptoms and the pressure is so bad sometimes
I want to go back to the gym and workout again, because I have lost loads of weight with the stress this has caused, but I can't do anything remotely physical because the pressure comes on so intense if I do. It's like I am truly trapped. Like you, I snap at people, grunt, seem in a bad mood, but because I can barely lift my head sometimes it feels like. Also worth noting, I have notice my neck cracking a hell of a lot lately too, mainly probably because I am constantly moving it because I try and 'shake' off the headache sort of thing. I just wish somethign could be done to make me feel normal again. It's literally ruining my life. I cannot do anything I used to do
0 votes Report Share reply to sy-g -
Hopo34 amber0530 I hear your pain nothing at all helps I do suffer from sinus I think as my nose is always blocked and alternates between each nostril all the time. And I no the sinus is located behind the eyes so may well be that but my doctors are so useless they can't come to a tidy diagnosis just feel like they think I'm a liar and making it up. I must say though the amitryptiline and naproxen work wonders together but soon as I've run out they are back again so will be getting a perscription of both again and see if it stops so that I can get back to being somewhat semi normal.
0 votes Report Share reply to Hopo34 -
sy-g amber0530 The dizziness is the worst part for me, the most frightening
I get random head rushes, like WOW, and everything just feels all randomly wobbly, like when you do a handstand (not that I ever could now), but it's that same feeling sometimes just randomly, but it happens every single day on and off. I have tried so many medications and I actually had all of this over 5 years ago and guess what? It went away for over a year, nearly 2 years in fact, which makes it so terribly distressing that it came back 6 months ago and won't go away. I cannot remember for the life in me how it went away before though and now I think I am seriously ill again all over again.... Sigh
0 votes Report Share reply to sy-g -
Hopo34 sy-g Yeah I been getting like a pins and needle like feeling practically all the time dunno if it's related or maybe a panic attack of some kind worrying about what the hell is wrong inside. But like I said been back now for about three days and tonight now I feel great but tomorrow now will be the same no doubt. Just hope I can get my tabs off doctor and return to my normal self, I still have naproxen left and take them but coz I've run out of amtryptiline the naproxen is not helping on its own.
0 votes Report Share reply to Hopo34 -
Hopo34 sy-g Yeah not sure how mine went the last time but it was nice and now back again so hope it goes.
0 votes Report Share reply to Hopo34 -
sy-g Hopo34 Yeah man I have had severe panic disorder before in my early tewneites and also when this all started again this year, but I have stopped having the panic attacks now, which only fules it more in my mind that it really isn't anxiety, because like you I get the pins and needles stuff going on, it's deeply uncomfortable and I cannot stop it from happening, no breathing technique works, it's juts a genuinely physical thing. Yep, and at this exact moment it feels bearable, to perfect but bearable to the point I can go on the computer for a little while.
Tomorrow it will work like this: Wake up in the morning, for around 5 minutes as I lay there I don't feel any pressure, it's like being normal again, then bamn, out of nowhere all the extreme symptoms come on as soon as I start moving around. Then it gets worse and worse all day and always reaches its peak at around 6pm, then I literally have to go and lie down every single day at that time because I genuinely think if I didn't I would faint and I don't fancy taking the risk. I never do faint by the way, but I always lie down when the dizziness goes terrible, so god knows if I ever would. Sometimes it feels like I am battling to stay conscious if that makes sense bacuse the feeling is so heavy on the head and eyes.
0 votes Report Share reply to sy-g -
sy-g Hopo34 -
Hopo34 sy-g Yeah same here it will be ok for five on the morning and within an hour or two it will be like it all day until I go to bed with the exception of today being not bad. But even a good day my head feels heavy and like a congestion feeling or that someone has wrapped an elastic band around my head and eyes. What ever it is is killing me mentally nearly passed out yest as that was worst day but I got up and went out and was ok came home and bam hit me again.
0 votes Report Share reply to Hopo34 -
amber0530 Hopo34 I get the pins and needles feeling in my hands sometimes, my arms always go numb and sore even my legs sometimes too, I feel like it's all related somehow I just wish I knew how. I used to get the pressure with a really bad migraine maybe once or twice a month and all it took was one ibprofen 800mg, but the last 3 months they become more frequent and the ibuprofen doesn't even touch the pain anymore. As for the stress & anxiety I have a million fears and am always stressing I have been like that all my life, but I've never been treated for it, and if anything my stress and anxiety has decreased the past year up until now cuz I'm petrified of needles and my pain tolerance is like negative a million and everything people have listed to get done scares me even tho everyone I've read pretty much has had normal mris and cts. But some people spoke of spinal taps and a few other ideas that are only making me freak out more
0 votes Report Share reply to amber0530 -
sy-g amber0530 Yeah it's made me wonder about MS and things like that sometimes. I suffered from extreme anxiety as a result of it, horrible panic attacks and stuff, but that obviously makes it worse because then when I get the symptoms totally unrelated the doctors just say 'anxiety' 'tension headaches' etc. I know for a fact it isn't, I feel ILL, like actually ill, it's just not normal. I have the exact same things in the arms and legs too, but is it constant worry and stressing about it that causes us to feel those other symptoms too. I think it is so unfair how we are left with no answers and we basically just have to hope nothing serious is wrong with us
0 votes Report Share reply to sy-g -
Hopo34 amber0530 I've never been referred for any scans as my doctors seem to think I'm not in a bad way to have them done even though I clearly am they just think I'm lying or it's all in my head. So dunno what to do will ring doctors tomorrow see if I can get a repeat perscription for my fav tabs lol and see if after a few days I feel normal again.
0 votes Report Share reply to Hopo34 -
Hopo34 sy-g Yeah makes you think how can you not be or feel anxious when you got this thing in your head and eyes you know just ain't right. Your bound to have some form of anxious feelings or panic attacks coz we always think the worst like my worry is it a Timor of some kind and the added worry is my doctors won't give me the scans to dissprove that theory just say no tension headache or sinusitus blah blah make you feel like the smallest person in the world. A great doctor told me once before you don't treat the illness you treat the patient and it worked if every dr was like that things would be great.
0 votes Report Share reply to Hopo34 -
sy-g Hopo34 I might have to give into my tablet phobia and try these tablets you take. When I had all these similar problems before 5 years ago I DID actually get some scans, which I think is important to add and maybe put some people's minds at ease. I was so desperate I paid privately myself to see a neurologist who agreed to get me a scan of the brain. Anyway, within the space of 2 years (the duration this hell went on for) I had 2 brain and neck MRIs and a CT scan, all clear, literally nothing wrong with them visually at all.
I was shocked to say the least. Anyway, yes the symptoms feel similar again now, but I just feel as though this time they are worse or that it's something else. I can't actually remember just how bad it was the last time because it's been so long, but obviously it's liek my anxiety is fuelling it saying 'yes but what if this time it is something serious' and so we have that viscious, horrid cycle
0 votes Report Share reply to sy-g -
sy-g Hopo34 That is exactly right and that is what my worst fear is too, amongst other things that I won't say to worry others. But as I say in the other response below, I had scans the last time I had this and they were clear, and what I have now is very similar symptom wise but I am still scared again because I always think again what if. I just want it to be proven again once and for all, give me all the tests and just show me nothing is wrong and I know I can move on from this, maybe the symptoms wont go straigth away, but at least I could try excersise again and stuff to try and maybe battle it a different way. Whereas now I worry so much that I honestly don't dare do anything to physical because I think what if it makes me faint because the pressure is so intesnse etc.
0 votes Report Share reply to sy-g -
Hopo34 sy-g Yeah like a viscious circle I would just like to be given the chance for a scan least then I can stop worrying and who knows by setting my mind at rest will make this pain somewhat easier to cope with.
0 votes Report Share reply to Hopo34 -
Hopo34 sy-g I'm the same tried exercising earlier and couldn't get myself into it coz of this thing in my head and just my concentration was focused on the pain and felt weak.
0 votes Report Share reply to Hopo34 -
sy-g Hopo34 Yeah man it's horrible You could always try and get a scan privately, I saw some for £290 just for the head, an MRI which is quite cheap compared to some. Also the excersise thing. My mate tried to take me back to the gym a few weeks back, well what a disaster, I was only there 5 minutes the first weigths I lifted made my head feel like it was about to burst so I had a full on severe panic attack and had to get him to take me to a&e. It's just unbearable what I have experienced these past few months.
I even tried to hand myself into the mental hospital as crazy as that sounds because I was basically saying, okay then if you think nothing is physically wrong with me then I must be mental then!!!!!!! because how the hell can I have such extreme symptoms if nothing is wrong with me, so it must mean I am crazy. ANyway, they turned me away because obviously I am not mental, but honestly the depression and isolation I felt after that made me feel hopeless, I had a nervous breakdown. My fiance couldn't believe what was happening to me, my mum had to move in for a few weeks to look after me, I couldn't eat, I couldn't do anything, I just started having 3-4 severe panic attacks everyday because I was so scared on the head symptoms and felt like no one would listen, no one would help, I rang about 9 ambulances in two weeks, went to the doctors every day for nearly two weeks and not one of them would recognise the severity of what I was feeling. I couldm't stop crying everyday all day, I would shake uncontrollably for hours and I literally couldn't control it. My head would go numb, my hands would stop working, I'd get so many horrible symptoms and I just had to lie there and cry and hope it would go. All hard to admit as a man, but in the end this has almost destroyed me again and I feel so let down by doctors. Somehow anyway, I have managed to come out of that state of severity but I am far from free of the physical symptoms, they just won't shift
0 votes Report Share reply to sy-g -
new56862 sy-g You could literally be me. I'm 40 years old, always been fit and healthy. Had loads of tests and I'm in great shape, all apart from pressure inside my head. For me it's always there when I move and causes headaches. I to have been very low and had panic attacks. I could bate the pain if I new what it was and knew I'd get better, problem is it seems we have something so far undiagnosed. When pressure feels heavy I pop my ears giving me temporary relief, this is why I want ENT specialist to put a grommet in my ear to see if this equalises the pressure. I'm 99.9% sure what we are experiencing is some type of air build up in our nose/head cavities. I've mentioned this before but 6 weeks ago whilst popping my ears, air came out as if it was a punctured tire. I must have made a tiny perforation in ear drum which released the pressure. I felt great after that, sad to say within a day or two it all came back. There def needs to be some research conducted about this as it's ruining peoples lives.
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new56862 amber0530 Hi. Sad to hear another person living with this.
I've been going through this hell for over 4 months, started gradually but now I seem about the same every single day.
Wake up some days with pressure, some days without, I think it's down to position I sleep. As soon as I get up and start my day it builds up.
I get the pressure from behind the bridge of my nose, this leads to headaches and feeling dizzy.
0 votes Report Share reply to new56862 -
new56862 Hopo34 Hi Hopo. I know what you mean. I tried exercising but that just builds up the pressure and gives me massive headache. It's the uncomfortable and painful feeling you get whenever you move.
0 votes Report Share reply to new56862 -
Hopo34 sy-g Yeah makes me feel like I'm mental coz doctors don't believe well morning time now here and already can feel it creeping up on me slowly so snother day of this pain. It's like I have a loose elastic band around my head and slowly it's tightening up and up till it squeezes my temples and make my eyes feel like they popping out.
0 votes Report Share reply to Hopo34 -
Hopo34 new56862 I'm starting to think if it's to do with our sinus coz they are little air pockets or holes behind our eyes and if like me your nose is constantly blocked then that could be it but just seems a silly diagnosis coming from a doctor you no what I mean.
0 votes Report Share reply to Hopo34 -
Hopo34 new56862 We'll like I said was on amtryptiline and naproxen and soon as they finished it came bck but I'm ringing the dr this afternoon coz we can ring lunch time and talk to them gonna tell him it's bck again Nd tell him I want a repeat perscription of the above and I will chronicle my journey on here so to speak and let ppl no if I return bck to normal. If so I'm sure it's nothing life threatning as the above tabs wouldn't work and see where I go from there
0 votes Report Share reply to Hopo34 -
new56862 Hopo34 So did amtryptiline work for you? I tried this but came off it because of side affects, probably didn't take it for more than 2 weeks.
If you bend your head down does the pressure increase? It does with me, it's as if there is trapped air in my head that doesn't equalise to outside air pressure.
I agree it definitely has something to do with sinus or nasal cavities within the head. I've had MRI scan and docs say it's normal, no sinus issues either. I've also had a problem with my eyes, they are more light sensitive and I'm seeing quite a few eye floaters when outside in the light.
The thing that makes no sense is how can there be pressure without anything physically causing it?
0 votes Report Share reply to new56862 -
Hopo34 new56862 No nothing when I bend down, but at the mo I feel very sick so not sure if it's related feels like it is. Trying not to think of it but it's hard when my head feels like it's being squeezed.
0 votes Report Share reply to Hopo34 -
new56862 Hopo34 Yes people keep saying to me just ignore it but because it's your head it affects everything. My eyes seem under pressure because of it and I seem to be more light sensitive to bright light or out side when the sky is white with cloud.
Are you from the UK? I'm thinking of rounding up people like us to try and take our symptoms to some research universities or hospitals. There are a lot of us out there or various sites like this one.
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beebert Hopo34 I hear ya about the doctors not believing. There have been a few who have told me it may be a psychological problem, or that I need to live with it, or that it's in my head.
0 votes Report Share reply to beebert
It's horrible but it's nice seeing that others are going through what I am. I can't work out or barely lift anything due to the pressure. I'm always dizzy, tired, weak. It's put my life on hold. I can't even work
5 votes Report Share reply to TheRoyalGeek
5 votes Report Share reply to TheRoyalGeek
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sy-g TheRoyalGeek Exactly teh same What the hell is wrong with us. Have you ever suffered with extreme anxiety or panic attacks? Or have you had some kind of bad flu type illness leading up to before all these symptoms started, I only ask this because I see a slight pattern in myself, and I wonder based on what others migth say if we can somehow come up with the answer. Since doctors really can't!
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Hopo34 sy-g Can't say I've had flu like symptoms but few weeks ago had tonsilitus and glandular fever. But can't see how that would trigger anything off who knows all I do know is it's doing my head in big time and would be nice to get back to being my old self again.
0 votes Report Share reply to Hopo34 -
sy-g Hopo34 Yeah, you see, it's crazy because we all experience the same sort of symptoms so in my mind it seems highly likely we are experiencing something similar surely. I mentioned the flu like stuff because I had bad flu a few years ago and straigth after I had all these terrible problems with head pressure, and all the symptoms we talk about, as a result I had severe panic attacks at the same time, it's hard to say if one caused the other, I really don't know.
Aanyway, as I said it all went away, for about 2 years, after lasting for more than 2 years! Urgh, can't believe it actually went on that long but it did. So just before xmas I got a serious case of Flu again, bed ridden, very poorly. What happens the week later, bang all the head pressure and all the terrible symptoms came back, BUT so did the panic attacks to an extreme level. Which one came first I ask myself, is one responsible for the other. It's worth noting I endured some extreme stress around both times this has happened to me. I am not blaming stress, but when nothing else logically makes sense and all tests come back fine, what else can we do
0 votes Report Share reply to sy-g -
Hopo34 sy-g That's right I've had no tests yet doctors won't do them just gob me off with a tension headache but I no it's not that.
0 votes Report Share reply to Hopo34 -
sy-g Hopo34 Yeah same here, what's absolutely crazy is this> I have a bad knee that I injured from football a couple of years ago, I told him about the symptoms etc at the same time I was saying about the severe symptoms I experience with my head and stuff. Now obviously you'd assume that the doctor would prioritise the head, but no, he sent me for an MRI of the knee with no worries at all. As it turned out I actually had a serious injury to my knee which I suspected and knew deep down all along. Anyway, I asked for a head MRI and he just won't do it. I totally don't understand why doctors are so reluctant to do brain MRIs and scans. It makes no sense.
Obviously with the knee MRI coming back showing that there was a problem and that what I suspected was right, I can't help but worry that I am suspecting something being wrong with my head correctly.
0 votes Report Share reply to sy-g -
Hopo34 sy-g No what you mean I don't understand why it's such a big problem to issue these scans the dr still gets paid lol and then there's peace ôf mind for the patient if all is ok as it rules out nasty things,, but no it's like a crime to ask for these things that are here to help and diagnose problems.
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sy-g Hopo34 It's almost as though sadly, if we were rich we would probably be cured now, as horrible as that sounds, it seems like the truth
It's all about saving money on the NHS I am sure, so unless they think we are literally about to drop dead they just don't really care or show any sort of urgency. Which to me says: if you have a progressive disease that kills you slowy you will have to wait until somethign urgent happens until we will help or you have something that is very uncomfortable to live with but it won't kill you, so live with it mate.
That's what I feel like they are saying to me basically, which actually makes me cry at times with frustration because it is so frustrating to have to live with such extreme symptoms
0 votes Report Share reply to sy-g -
new56862 TheRoyalGeek Hi. Sad to hear another person living with this. What are your symptoms?
I've been going through this hell for over 4 months, started gradually but now I seem about the same every single day.
Wake up some days with pressure, some days without, I think it's down to position I sleep. As soon as I get up and start my day it builds up.
I get the pressure from behind the bridge of my nose, this leads to headaches and feeling dizzy.
0 votes Report Share reply to new56862 -
beebert TheRoyalGeek -
beebert sy-g Yeah, tension headache or migraine is what they want to say.
Also, @sy-g: you were wondering what activities we did leading up to when symptoms started. I remembered that I started swimming a lot before this started. I also was an avid reader. I also used the computer a lot once it became popular - played a game.
I was able to get a brain MRI. I wonder if they would refuse doing a CT scan for me.
0 votes Report Share reply to beebert
So I made an ENT appt && orthopaedic appt both this thursday, I'm also right now taking amitriptyline and baclofen and as of today bcuz of what I read went and got sudafed in hopes it'll help.
But a few questions for anyone still on here:
Girls are any of u on birth control n if so what kind n did the symptoms start shortly after starting to take it?
Do any of you smoke cigarettes?
&& do any of you notice mold in your house cuz I heard that could cause our symptoms too but I haven't noticed any mold but it could be where it's not seen
0 votes Report Share reply to amber0530
But a few questions for anyone still on here:
Girls are any of u on birth control n if so what kind n did the symptoms start shortly after starting to take it?
Do any of you smoke cigarettes?
&& do any of you notice mold in your house cuz I heard that could cause our symptoms too but I haven't noticed any mold but it could be where it's not seen
0 votes Report Share reply to amber0530
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new56862 amber0530 Hi.
I don't, smoke, house isn't mouldy and I'm not a girl lol.
The closest thing I can find on mine and others symptoms is something called Sinus barotrauma.
How does it happen? Pressure changes when diving cause barotrauma. During descent, air spaces in the sinuses and middle ear must be able to equalize to the surrounding water pressure, which increases with depth. When pressure in air spaces can't equalize, the diver may sense pressure or pain from one of these areas. During ascent, if the expanding air can't be vented, the cavity pressure increases, resulting in discomfort. This type of injury can range in severity - from mild to extreme.
Yes I know this happens because you are under water but the air expanding in the sinus cavities seems to be what is happening to us. Could something have happened which hampers our bodies reaction to pressure changes?
0 votes Report Share reply to new56862 -
Hopo34 amber0530 Hi amber,
Not had mild in my house that I can see coz I'm a clean freak lol and use to smoke give up last Xmas just vape now which is much healthier.
0 votes Report Share reply to Hopo34 -
amber0530 Hopo34 I'm a clean freak too but I read that mold could grow in the walls where you can't see it n the spores move you breath them in and get some of the symptoms were all having. I don't know just a thought I'm willing to try anything at this point
0 votes Report Share reply to amber0530 -
sy-g amber0530 Clean freak here too, but, it can develop courtesy od damp around windows and walls, and funnily enough we did have damp proofing done again around xmas time because it had started to try and come back. Who knows if it's linked in my particular case.
0 votes Report Share reply to sy-g -
Hopo34 amber0530 Yeah suppose it could play a factor unfortunately don't think we will ever no. Had my tabs from doctors so got a fresh batch of amitryptiline and naproxen so will keep you up to date if I get better. At the mo don't feel too bad still there in the background but not getting me down at this mo.
0 votes Report Share reply to Hopo34 -
Thera amber0530 I don't smoke, and stopped taking birth control 2 years ago after this started to eliminate the possibility of it being that. I live in a brand new apartment complex so doubtful there is a mold issue if any at all.
Just woke up and head pressure is extremely bad today. Also woke up with head pains and pressure behind eyes. Strange how some days it's so much worse than others. Some days it's better, but it's always there, it's never gone.
0 votes Report Share reply to Thera -
beebert new56862 have you ridden in an airplane recently? The first time I started noticing this was when I flew overseas to Asia years ago - during the flight, the pressure was terrible... last year, I slept through parts of the flight so that it wouldn't worsen to that same level. Also, I don't know if I asked already - but when you ride in a vehicle and focus around, does it get worse?
0 votes Report Share reply to beebert
Hi everyone. What do you think of this idea, I know it's a bit left field but we have something that hasn't yet been discovered it seems so let's have a go at finding a possible answer.
The closest thing I can find on mine and others symptoms is something called Sinus barotrauma.
How does it happen? Pressure changes when diving cause barotrauma. During descent, air spaces in the sinuses and middle ear must be able to equalize to the surrounding water pressure, which increases with depth. When pressure in air spaces can't equalize, the diver may sense pressure or pain from one of these areas. During ascent, if the expanding air can't be vented, the cavity pressure increases, resulting in discomfort. This type of injury can range in severity - from mild to extreme.
Yes I know this happens because you are under water but the air expanding in the sinus cavities seems to be what is happening to us. Could something have happened which hampers our bodies reaction to pressure changes?
I know when I pop my ears it relieves the pressure feeling for a few minutes which could be related.
What do you think?
2 votes Report Share reply to new56862
The closest thing I can find on mine and others symptoms is something called Sinus barotrauma.
How does it happen? Pressure changes when diving cause barotrauma. During descent, air spaces in the sinuses and middle ear must be able to equalize to the surrounding water pressure, which increases with depth. When pressure in air spaces can't equalize, the diver may sense pressure or pain from one of these areas. During ascent, if the expanding air can't be vented, the cavity pressure increases, resulting in discomfort. This type of injury can range in severity - from mild to extreme.
Yes I know this happens because you are under water but the air expanding in the sinus cavities seems to be what is happening to us. Could something have happened which hampers our bodies reaction to pressure changes?
I know when I pop my ears it relieves the pressure feeling for a few minutes which could be related.
What do you think?
2 votes Report Share reply to new56862
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amber0530 new56862 That makes a lot of sense except I haven't been under water since last summer so I don't get why I'd be getting the symptoms now
0 votes Report Share reply to amber0530 -
new56862 amber0530 Neither have I but for some reason it actually feels like I'm living under water. When I walk up stairs I can feel the pressure build up, same when I bend over. It's as if my body has lost the ability to sense outside and inside pressure. I read somewhere that you can have a blocked cavity without having sinusitus. I've had an MRI scan which showed no sinus problems but it might not be able to pick up on trapped air?
0 votes Report Share reply to new56862 -
sy-g new56862 I think we should definitely arrange something, some kind of meet at a neutral place in the UK. Maybe come up wiht some ideas for getting research. Anything has to be better than suffering with it! I for one cannot put up with this for the rest of my life and it doesn't seem to be going anywhere
0 votes Report Share reply to sy-g -
sy-g -
Hopo34 sy-g Yeah mate that would be good idea pool our symptoms together etc and see what we can come up with.
0 votes Report Share reply to Hopo34 -
new56862 Hopo34 I'd be up for that.
I've just come back from a head massage, been trying a few things including acupuncture.
She did this ethmoid type pressure point thing and it def seemed to do something. It certainly seemed to help with my eyes and head feels slightly better. I'm going to persist for a few more sessions, had about 6 now. Mine def feels like trapped air in ethmoid sinus that isn't pressurising with outside so causing a pressure build up.
0 votes Report Share reply to new56862 -
Hopo34 new56862 As much as it sound such a simple diagnosis I think it's all to do with our sinus coz all things seem to point to that in some way.
0 votes Report Share reply to Hopo34 -
new56862 Hopo34 Has to be trapped air. If air doesn't circulate properly it pressurised and expand as it cannot regulate with the air outside. Same principle as when a diver goes under the water. I'm sat down and don't feel much pressure but if I got up walked around and bent down I would feel pressure behind the bridge of my nose, that's where ethmoid sinus cavities are. Any idea when or how yours came about?
0 votes Report Share reply to new56862 -
Hopo34 new56862 Not sure mate when it came around I have suffered with it all my life but never experienced the pain And feelings I have the last two years. It could be that because not been treated properly or even diagnosed by doctors all they have done for me is nasal spray and de congestion tablets none work. Nasal spray smells like cats urine being shot up your nose but to no avail nothing works.
0 votes Report Share reply to Hopo34 -
new56862 Hopo34 Hi mate. How does your head feel when you exercise?
When I try to do anything physical eg bike ride, run, weights, I can feel the pressure building up and I can terrible headaches. I only walk for exercise at the moment.
Not sure if I've asked you this but I find if I hold my nostrils and blow through my nose it pops my ears and that relieves the pressure slightly. That's why I think it's a build up of air pressure.
0 votes Report Share reply to new56862 -
new56862 sy-g Hi mate. How does your head feel when you exercise?
When I try to do anything physical eg bike ride, run, weights, I can feel the pressure building up and I can terrible headaches. I only walk for exercise at the moment.
Not sure if I've asked you this but I find if I hold my nostrils and blow through my nose it pops my ears and that relieves the pressure slightly. That's why I think it's a build up of air pressure.
0 votes Report Share reply to new56862 -
Hopo34 new56862 When I'm working out and got the pain in my head it agrivates it to a point my head feels like a bowling ball very heavy I have to stop.
0 votes Report Share reply to Hopo34 -
new56862 Hopo34 Have a look on the internet for
Vacuum sinus headache
See if it fits with you.
0 votes Report Share reply to new56862 -
shari73741 new56862 I am intrigued by the air/sinus idea, but I am not sure it explains the neck pain or nausea. I once drove across the Rockies (I am in the US) into Reno, Nevada and a bag of chips in my truck exploded because of the pressure. On the way back, I experienced this incredible facial pain that reminded me of the chip bag exploding...I felt like my skull was going to burst open right there. Upon descent, it improved. I only experienced this once or twice on a flight, but not as severe. And I do have constant cracking and popping in my ears which I have just gotten used to over the years. I have done lots of acupuncture and moxibustion which helped a migraine once, but not these symptoms at all. I really hate the idea of taking amitryptiline, I guess another med just makes me nervous. I already take Wellbutrin and Vyvanse for Adult ADD, but I am considering going off the Wellbutrin because I do not think it is so effective for me anymore, though I don't relish the idea of a new med and new side effects. Anyone get relief from amitrytiline and with what side effects? I heard it can make you very sleepy, which I can't have! I'm a college professor starting a new postion and I am wary of adding too many new things to the mix, though the pressure and dizziness are almost impossible to ignore. Chiropractic work for anyone?
0 votes Report Share reply to shari73741 -
Hopo34 shari73741 Hi shari,
I'm on amtryptiline and your right it does make you dosey but that's why it says to take one at night. Took my first one last night from a repeat perscription and this morning I felt great so looks like it works for me don't have any side effects apart from feeling a bit tired and taking naproxen with them makes a heap of difference in my own opinion.
0 votes Report Share reply to Hopo34 -
new56862 Hopo34 -
new56862 shari73741 Hi Shari
Good luck with your new job, I work in a college as head of department so I really need my full concentration and not this head pressure.
I took amitrypaline about 3 months ago as I was originally diagnosed with chronic tension headaches which was wrong. I took it for less than 2 weeks and stopped because the pressure was getting worse, also there were a few side affects but apparently these are worse in first 2 weeks. If you have a headache disorder it's supposed to be good.
I have genuine pressure that I can feel moving around in my head depending on my head position. If I bend over the pain increases and I can feel pressure moving forward.
I have a ENT second opinion tomorrow as first one couldn't find anything. I had MRI scan which was normal and showed no sinus issues but I'm thinking it might be that vacum headache I wrote about. I do hope they find what's wrong as it's so hard to do anything
0 votes Report Share reply to new56862 -
Hopo34 new56862 Yeah mate will do not too bad at the mo the pain is there but not as much.
0 votes Report Share reply to Hopo34 -
amber0530 Hopo34 I'm also on amitriptyline I take 2 every night but I feel it helps with my migraine pain but my pressure is still there
0 votes Report Share reply to amber0530 -
Hopo34 amber0530 I'm only allowed one amtriptyline not tried taking too. Weird thing is since this came on again keep getting either pins and needles in my left arm and leg or strange spasms. None occurred prior to this pressure in my eyes and head so I'm thinking it's all related some how.
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new56862 Hopo34 Unbelievable. I keep getting pins and needles in my arms from the elbow down. Not so much the last few days, but last week I kept waking up at 3am with it. I also can see my calm muscles spasm all the time. Maybe it's just because I'm anxious about what's wrong with me.
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Hopo34 new56862 That's what I think it is just worrying over this stupid pain. Was ok yest but this morning can feel it building up already behind my eyes.
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new56862 Hopo34 I wouldn't worry to much about the pins and needles.
I'm seeing ENT today for a second opinion, so hope they order to a CT scan on sinus area as they are often better than MRI's for this. There's definately some trapped air in my sinus cavities, trouble is I have no signs of sinusitus. As soon as I start moving around I can feel it. I bend forward, it moves forward in my head and that brings on headaches. Just looking down typing now and I can feel it pushing from behind my nose. I'm going to tell ENT today that I think I have some sort of vacuum sinus headache air is trapped probably in the ethmoid sinus cavity. When I move the air pressure inside the cavity increases causing pressure feeling as it pushes on the inside part of my nose. I think this could be why when I pop my ears it gives me temporary relief as it takes some area out of nasal cavity which could relieve the pressure.
The thing is, we all know how we feel, its trying to get this info to the doctors and specialists. I've looked at every headache ever defined and my symptoms don't fit any of them. I will let you know how I go, hopefully I might get some answers unless I get fobbed off.
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Hopo34 new56862 -
new56862 Hopo34 Well I've seen ENT. She was very nice to be fair but said she hadn't heard of these strange symptoms. Gave me a nasal spray and told me to come back in 6 weeks and if I'm still the same she'll order a CT scan. She did ask loads of questions about my work and personal life. I said before all this I had a great life, now this has ruined it. Pretty sure she thought I might be mental ha.
It is amazing that nothing is known about this. I'm pretty certain it's trapped air that can't pressurise so it's so frustrating that nothing seems to get done. Is this affecting anyone's life as much as mine, I feel like I don't want to do anything anymore as nothing's fun with head pressure and headaches all the time.
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Hopo34 new56862 Lol at the nasal spray that's their remedy for our pain that don't work instead it's like holding a cat up and having wee up your nose just as effective too lol. But no poor remedy don't work had it loads of times clears your sinus for a minute or two and that's it lets hope the scan picks up something.
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Thera Hopo34 Hello,
I too have the pins and needles feeling in arms and part of hand. Also get them on my head sometimes. Didn't have these before the pressure started either.
-Thera
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Thera new56862 I have noticed altitude changes make my head worse in some areas. I too get headrushes and pressure worsens when bending forward. I have mentioned this to doctors thinking it has to be a sign of something, if altitude and also barometric changes are affecting me but they seem to think it's nothing.
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beebert new56862 Does it affect your reading books too?
I will look up how to pop my ears. No idea how to (safely). I always thought it was blood rushing to my head when I bend down, so I never thought to see what sensations I should be feeling/looking for when I do that.
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beebert new56862 I only walk as well. It has been my main exercise lately. Several doctors as well as a weight training teacher (for a class last year) wanted me to do a lot more than just walking (doctors wanted me running or doing sit ups/push ups. I couldn't get through the weight training class because of all the pain.
Can you describe the pressure in the head - what it feels like? I want to make sure I'm thinking of the same thing (or in the same ballpark).
I'm sorry I have posted all over the place in this thread - I'm not used to this format and I really hope I am not breaking into any conversations at inopportune times. I wish there was a way I could quote multiple posts and make a post, all while staying in the same thread and not making it confusing. Sorry again!
Also, what do you mean by 'holding the nostrils?' Does that mean pinching the nose (like when you don't want to smell something)?
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Thera beebert Yes I cannot read anymore like I could. I just feel the pressure and fluid like feeling inside my head. It's pretty debilitating sometimes.
I still have not popped my ears I'm worried about injuring something. I'll try to find a safe way also. My doctors appointment this week got moved to the 18th. Was really anticipating it. The 18th can't come soon enough. Let me know if anything changes with anyone. Best wishes.
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beebert Thera I understand...I once tried pushing and pulling my eyeball muscles to see what it would do. Then, I thought about trying to massage my facial muscles (nose, cheek ones included) - I never got very far as I was worried about injuring something too. I used to read in bed a lot. I have a doctor's appointment today where I will be asked about changes I've felt from acupuncture, and that's it. The chiropractor (who wishes he could help) came up with sphenoid subluxation (which wasn't the case) when I first visited him.
This morning, I tried to pop my ears by pressing my nose, breathing in, and then swallowing hard...will look at some more online directions in a bit. Best wishes to you too.
The things I read about this morning about isolated sphenoid sinusitis - seems rare, and it looks like not many doctors look for it. What can be done to see if/when doctors will check that out - I'd like to know for sure. The nondescript, vague, dull headache part makes sense, but no idea.
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Hello all,
I have had the same exact symptoms as most of you for almost 3 years now. I am a 27 year old female, athletic, and extremely healthy up until this all started. A quick rundown, I have a 24/7 head pressure feeling. I will get random pains throughout my head as well. A strong pain and pressure feeling in the base of scull and neck. Ear pain and pressure also facial pain and pressure. The biggest issue is the head pressure tho. It's always there. I wake up feeling hungover every morning too. I don't drink anymore and haven't for over a year now. I have seen every doctor had every blood test and MRI and Scan. Lumbar puncture etc. I have 3 3mm disc bulges but not causing any pressure and not touching spinal cord. Multiple docs say it's nothing. Has anyone found any answers? I can hardly afford to see anymore doctors. All of my extra money goes to them. I go to a new doc whenever I have the extra cash. I have had steroid injections in neck with no relief. I had sinuplastu with no releof. My sinuses are perfectly clear. So are my ears. I am out of tries. Anyone still fighting out there? I'd like to hear your story and compare what we have tried and not tried. hope to hear back. Until then I hope everyone is doing there best to keep fighting.
3 votes Report Share reply to Thera
I have had the same exact symptoms as most of you for almost 3 years now. I am a 27 year old female, athletic, and extremely healthy up until this all started. A quick rundown, I have a 24/7 head pressure feeling. I will get random pains throughout my head as well. A strong pain and pressure feeling in the base of scull and neck. Ear pain and pressure also facial pain and pressure. The biggest issue is the head pressure tho. It's always there. I wake up feeling hungover every morning too. I don't drink anymore and haven't for over a year now. I have seen every doctor had every blood test and MRI and Scan. Lumbar puncture etc. I have 3 3mm disc bulges but not causing any pressure and not touching spinal cord. Multiple docs say it's nothing. Has anyone found any answers? I can hardly afford to see anymore doctors. All of my extra money goes to them. I go to a new doc whenever I have the extra cash. I have had steroid injections in neck with no relief. I had sinuplastu with no releof. My sinuses are perfectly clear. So are my ears. I am out of tries. Anyone still fighting out there? I'd like to hear your story and compare what we have tried and not tried. hope to hear back. Until then I hope everyone is doing there best to keep fighting.
3 votes Report Share reply to Thera
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new56862 Thera Hi Thera.
I have very similar symptoms. Mine def feels like trapped air in sinus cavities but MRI apparently didn't spot anything. Trouble is I haven't got sinusitis so it might be that they are physically blocked and not show up. Popping my ears helps reduce the pressure I get, generally from behind my nose, sometimes hurts my eyes.
Over 6 weeks ago I popped my ears quite hard and loads of air came out my left ear, must have made a tiny perforation according to one dr. Anyways after that happened I felt great with no symptoms, sadly it just built back up over next day or two.
I'm seeing second ENT today I'm just hoping they find something. I will let you know.
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amber0530 new56862 I have my first ENT appt today, && I feel all the pressure still, problem is I haven't been able to pop my ears in awhile && I can't yawn, I've tried quite a few times when I feel like I have to yawn but nothing happens. I've never even heard of an ENT b4 now any suggestions what to ask them to look for?
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new56862 amber0530 Hi.
Let us know how it goes. Mention that you know quite a few other people with these symptoms as well.
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new56862 amber0530 How long have you been on amatriplyne for? You said you thought it worked for the headaches. Did you have many side affects? I'm going to have to think of something to take as I've got pressure and headaches that go with it. I could maybe deal with just the pressure, well for now.
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amber0530 new56862 About 2 weeks now && no side effects that I know of I guess the sleepyness but I take it b4 bed, but I also was up for 4 hours after taking it one night n I didn't feel tired at all lol
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new56862 amber0530 Thanks for info, so the head pressure is still there but no headaches? Or does it just take the edge off them?
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Thera new56862 Hello,
I haven't tried to pop my ears I'm a little frightened to. I can feel trapped air and pressure when I plug my nose and blow. I will have to read up on a safe way to do it and give it a try. Let us know how your ENT appointment goes. I have been to 5 different ones and they are sure its not sinus or ear related. I have my doubts tho. Good luck!
-Thera
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new56862 Thera Hi, saw ENT today and she was baffled. Told me to use a nasal spray and booked to see her again in 6 weeks for CT scan. This is so frustrating as I know with me it's trapped air in my nasal sinus region, for some reason it doesn't seem to be equalising with outside so caused pressure. Mine builds up worse when I lean forward or bend over, also when I exercise. It's destroying my life and causing lots of anxiety.
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new56862 Hi everyone on here.
Please Google and have a good look at
Isolated Sphenoid Sinusitis
The symptoms I have are spot on, I'm sure you will probably agree.
I think I'm progressively getting worse, even small movements of my head hurt. Walking dog this morning was such a challenge.
Let me know what you think
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