Replies to This Discussion
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Permalink Reply by Jana on - Global Alopecia Mission has a growing research archives, and its focus is the larger immune context as well as nutrition. Give their website a look. : )
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Permalink Reply by Michelle Bollinger on - Thanks so much for this information! How do you get tested, is it allergy testing or what? I'm willing to try anything! I have AA which has actually just recently went completely hay wire & I have more than 50% hair loss & am in a wig for the 2nd time. I've had AA for about 18 years & it's worse now than ever before.
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Permalink Reply by Ypsimama on - Hi Michelle! I was tested through a local doctor's office that is pretty progressive - they sent the test to Alletess Medical Lab - www.foodallergy.com. Best money I ever spent!
- Permalink Reply by Steph on
- My integrative medicine physician completed my testing. It was sent through NEurosciences. With the testing I received a packet describing the degree of each of my food sensitivities, hidden sources of the allergens and suggestions of dietary changes.
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Permalink Reply by Louis on - Thanks for sharing your stories! After reading the info you shared, I decided to do some research on G/F diet as well as anti-inflamatory diets. All i can say is "WOW", it makes total sense! When you think about the inflammatory condition inside the body and that alopecia is an autoimmune disease attacking inflamed hair folicles, etc..there's got to be a connection! I have already began eliminating caffeine, gluten and other inflammatory foods from my diet! Anyone that is undecided about trying, look up info on anti-inflammatory foods and alopecia! It only makes sense and it couldnt hurt to try but will require some adjustment and will power! Also a healthy pocketbook as I found most these gluten free products and organic foods are a little pricey but I found lots of options I was unaware of at my local grocery! I think i will document with a journal and pics!
- Permalink Reply by Louis on
- I also think I am going to follow up with some food sensitivity testing and anything else you all have suggested but i have no health insurance and limited financial assets at the moment which is making this even more difficult. Any other suggestions are appreciated!
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Permalink Reply by Tallgirl on - I just got clearance for charity medical care and labs for one year, so I immediately went out and got blood and cholesterol tests. All is okay...so I cannot even blame my AT on my blood or vitamins! Ask your local hospital for charity labs.
I think the genetic links are probably the right direction for the latest research. One side of my family had the links of diabetes and asthma that share some alopecia gene markers. Can't do anything about genes I was born with...so I am waiting to find out what TRIGGERS those genes to create hair loss!
Note: A European female doctor found 30% more hair loss for men who took body-building protein drinks as teens and young men. Their hair started falling out in the early 20s. I would also follow any research centered on proteins.
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Permalink Reply by Elaine on - I had all the blood work done to see if my AA was a food issue. My test came back not being sensitive to anything! That's good I guess but I was really hoping it was just a food change I needed to make. I did have a + ANA result. So I had more lupus tests done. I don't have lupus just AA which is nice to know. I have been taking all the vitamins you are taking plus some for years now. I don't eat meat so I take supplements for that too. I also cut out coffee and most sugar. Just started cutting out gluten about 2 months ago so we will see. In the last year not changing anything it is as bad as its ever been :( Add more biotin and it seems to have made it fall out more. Changing food may work for some people that are sensitive to it but for me I think I just have to let it run it's course. Good luck!
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Permalink Reply by kathy ferguson on - I saw a GI specialist who tested me for many allergies/issues including Celiac Disease. My results won't be back for another month, but I am going gluten/dairy free anyway. Why not give it a shot, right? I've only been on the diet, religiously, for about a month and haven't experienced any changes in hair growth/loss. Actually, it is coming out pretty heavy right now. I'd say I have lost about 30% of my hair (3 large spots). But, I am going to stick with the diet for at least a year to see what happens. My alopecia has come and gone over the last 30 years so I think it will be hard for me to pinpoint whether the diet is working or not. I do know that a lot of people get "false negatives" when tested for Celiac. I can say, that I feel better than I have in a long time! I don't have that heavy feeling after a meal and my energy levels are soaring, so that's a good thing. I fell off the gluten free wagon about a month ago and woke up to tiny blisters on my palm. I remembered having this on and off during my life but never really investigated it. As it turns out, I think this is Duhrings disease which is directly associated with gluten. Will ask my derm about it on Monday when I go in for my shots.
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Permalink Reply by Jaclyn on - I've noticed my hair stopped falling out (abruptly!) and started to regrow after adopting a Primal/Paleo diet. It was a hard adjustment at first, getting used to eating a new way, but now I love it. I don't miss grains at all, and I feel so much better eating this way. I'm *sure* there was something in my diet before that didn't agree with me. I don't think whatever it was "caused" my alopecia, but I think eliminating the inflammatory foods has just helped my body to work better and fight harder.
- Permalink Reply by kathy ferguson on
- So that means no bread at all, even if it is gluten free? No sugar? Meats, veggies, eggs, right? That might just be my next course of action.
- Permalink Reply by Jaclyn on
- Yeah basically no grains, dairy, soy, sugar, legumes or processed foods. (Sounds TERRIBLY restrictive, doesn't it?!) Just lots of meat, fish, eggs, veggies, fruit, nuts, seeds, and LOTS of healthy fats. If you decide you're interested in giving it a try, I'd be happy to share lots of resources, recipes and tips
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