diagnosis issues
Hi
I have just joined the forum to try and get some idea of how to confirm diagnosis. Over the last 12 months I have experienced the following symptoms which have been gradually getting worse.
Fatigue, reduction in strength, muscle spasms which are sometimes severe, lack of breath, shuddering sensation, constant need to use the toilet, involuntary movements, visual twitching of muscles, followed by spasms, eyesight strain and on many occasions, confusion and sometimes lack of awareness.
I have had blood tests and an MRI which have come back clear and at this stage my consultant has said that I have myclonus and until my symptoms get worse, he won't be able to firm a clear diagnosis.
My wife is a nurse and is aware that MS does not always show in the first MRI, is this correct ? are my symptoms typical of the early stages of MS ? I just want to find out once and for all.
Advice would be much appreciated
Thanks
I have just joined the forum to try and get some idea of how to confirm diagnosis. Over the last 12 months I have experienced the following symptoms which have been gradually getting worse.
Fatigue, reduction in strength, muscle spasms which are sometimes severe, lack of breath, shuddering sensation, constant need to use the toilet, involuntary movements, visual twitching of muscles, followed by spasms, eyesight strain and on many occasions, confusion and sometimes lack of awareness.
I have had blood tests and an MRI which have come back clear and at this stage my consultant has said that I have myclonus and until my symptoms get worse, he won't be able to firm a clear diagnosis.
My wife is a nurse and is aware that MS does not always show in the first MRI, is this correct ? are my symptoms typical of the early stages of MS ? I just want to find out once and for all.
Advice would be much appreciated
Thanks
I know how you feel I have had issues for 6 months getting worse, Lhermittes, tingling, burning and leg pains, clear MRIs and lumbar puncture. I've had one neuro say can't rrule it out and another say it's not ma
have you had an LP? Many have that if their mri are clear? Also other tests like b12, esr, crp maybe even lymes if needed
Thanks for the replies.
I've had all the other tests, with exception to LP which i assume my consultant may ask for when i next see him.
So far just a diagnosis of myoclonus which as we know is just a symptom of an underlying problem. My wife is making a daily diary of symptoms and filming the issues when she's able to.
The spasms are quite severe and always start with an electric pulse going into various muscles, followed by strong pulses in the body. A bit like touching a live cable if that makes sense.
This in then followed by headaches and nausea
Nightmare and getting worse with the confusion, lack of energy etc
it may turn into something and your LP may help to diagnose what it is, have you had bloods to rule out other things like vitamins or more obscure neuro problems
I guess its a case of wait and see then is it ?
Something is wrong though and I do tick all the boxes for MS, with exception to the eyesight thing which as yet isn't causing me problems.
People who are 'in the know ' can be highly susceptible to functional neuro symptoms said a neurologist I saw . As your wife is in the know, you may be too. I read that doctors / medical students are more likely to think benign twitching is from motor neurones disease , which in turn leads to more twitching !!!
While you wait , I suggest you try to place less emphasis on your symptoms and see what happens . If it has an organic cause , you will find it
Best of luck
p.s im a psychology grad and for some reason psycho -somatic illness interests me