Sunday, 1 September 2013

part 3

would like to meet people of a similar age to me

VinceA

16 Apr 2013 at 7:18AM

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Are there any meet ups in the North Manchester area that happen, maybe for a face to face/dicuss worries/family/let your hair down where all have the same diagnosis without sitting round with cups of tea?
I muted this on the other forum and wondered if the younger generations would appreciate something like this. Found there was one for females in Bolton but is there any others? Would people appreciate one?

bitesochou

26 Apr 2013 at 9:40AM

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Hi Rebecca, i'm John, diagnosed MS 1,5 yers. I'm 24 years old and olways happy to talk

[Edited]

Anonymous

25 May 2013 at 11:53PM

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I'm 25 if that helps?! I have secondary progressive ms n know no1 with ms! I only got diagnose 2yrs ago n it has gone from 0-60 in that time! Careers 4 prety much everything!
I lost my sight aprox 6yrs ago which they r now saying was my 1st symptom where as wen I was going 2 the drs at the time all i got was its psychosomatic and stress i mean how degrading!!!!!!
Now I'm wheelchair bound in and out,pins n needles,spasms swallowing difoulties, lots of pain n fatigue just to name a flew! But it wide be nice 2 get 2 knw sum1 who is also batling this horrid disease even if it is just 2 know we rnt alone in this!!!

lemon_cupcake

27 May 2013 at 3:24PM

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Hi everyone xxx

VinceA

06 Jun 2013 at 7:37AM

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Hello Lemon_cupcake, hope you are well?
Vince

Claysoh

24 Jun 2013 at 10:02PM

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Hi Rebecca and everyone else (1st time posting on here)
I'm 25 if that helps ? I was diagnosed with RRMS in February this year after waking up xmas day to a, wha i now know was a horrendous relapse of double vision, numbness in left side of body, drop foot, muscle spasms (I don't do it by halves!) And am currently using a walking stick. The diagnosis was an absolute shock to me as at no point when I was having the MRI, seeing the docs, neuro etc, no one mentioned MS to me. A family friend has it, which has been a great comfort, but like you, I don't know anyone in my age group with and would really love to talk/meet. You're not alone :)

Angel J.A

16 Jul 2013 at 8:41PM

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Hi Rebecca...
I hope you are feeling better. Umm.. I'm 17 years old and diagnosed recently with RRMS. If you need to talk to someone I am willing to listen eventhough I'm not the same age as you..Be Positive and Stay Strong.

--Angel

chris_travis

16 Jul 2013 at 8:52PM

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Skype??
Travis020985

Bonniescotsgirl

17 Jul 2013 at 5:39PM

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Hi, I'm 40, had my first symptoms at 34 and have been taking high strength vitamin D and Omega 3 every since. First relapse 6 months ago, after a stressful time, still very mild thankfully.
Happy to talk to anyone with any questions.
K

sparkle184

03 Aug 2013 at 5:05PM

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Wow, its nice to see so many people in the same boat (not nice that so many of us have ms i know).
I'm 23 and have RRMS, i'm not sure how the private message thing works on here but i'm sure i can figure it out is anyone fancies a chat :)
Emma x

sus983

08 Aug 2013 at 2:32AM

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Hey, I'm Susie, 31, not been diagnosed but have initial signs with lesions on my brain. I'm finding it all very difficult and confusing, even though I know and hope that my next MRI will be clear, and would also really appreciate talking to someone of a similar age! I don't know if it goes against the rules of the forum so I've not posted it, but have just written a blog (not something I have ever done) to try and work through my thoughts a bit. If it is ok, and anyone is interested I'll give you the address. I would welcome any connection and chat whether it is there or here!! x

ellisamanda

09 Aug 2013 at 12:38PM

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hi
im ellis i got diagnoised in march im 22 but would love to talk to someone with ms.
i dont no anyone i feel wquite alone and would love to hear other stories how they cope.
i dont understand how these work but i want to give it ago.

Princesspinkipie

13 Aug 2013 at 7:31PM

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I'm 23 and jut diagnosed I'd like to chat and make friends! (: xx

Anonymous

14 Aug 2013 at 1:37PM

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Hi all! X

Vintage_Red

14 Aug 2013 at 9:58PM

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Hi Rebecca (and all) - I am Ami, 30, live in Bristol and diagnosed 2 weeks ago and am reeeeeeeeeeeeeeeally struggling so I would love to chat, even coffee with anyone to try and find some support and hopefully in turn be of support to you x

tenaka07

01 Sep 2013 at 8:14AM

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Hi Rebecca

I'm Kate was dx 5 months ago and i'm 34.
Whereabouts do you live? im in hastings (south coast)
Talking to others on here has really helped me!!!
Kate x x x

Karina1980

01 Sep 2013 at 11:05AM

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Many years ago someone brought me something called a soul catcher which is a journal - it's really good and is useful to use to write down feelings - it has different sections in it and you can put pictures in it etc. thought I'd mention to anyone that wants something to write their feelings and thoughts etc as I found this to be the best one. Think it's Kathy and Amy Eldon that designed it. It may help some people so check it out - think its only on amazon as I haven't seen it in stores anywhere.

part 2

hris_travis

08 Nov 2012 at 11:59PM

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Hey trina
Chris here
Im 27 and have a 5yr old girl,single
Ive got rrms and over past 12 months have had no symptoma
Luckily
Currently on copaxone aswell
I have had ms for 5 and half yrs now

x_xtrinax_x

09 Nov 2012 at 2:14PM

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Hi chris
Thanks for the reply, I also have rrms. I'm on avonex. Currently relapsing, but they won't put me on steroids due to the type of relapse. I'm 5 months into it so i shouldn't be much longer.
Do you manage to work ok?

chris_travis

09 Nov 2012 at 6:55PM

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Work seems to be ok so far,get quite tired lata on in the afternoons but thats all.
Used to play football but gave that up due to haveing like jelly like legs after the heat i think
I only go to the hospital now every 12 months
When i first started on rebiff when 1st diagnosed my daughter used to do injections for me,jus to get her involved with it, these days she lost intefest though i do explain things to her x

Treek

10 Nov 2012 at 11:10AM

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Chris_Travis. I have serious concerns about you letting your daughter (aged 5!) do your injections!
I am a little gob smacked to be honest!
What are you thinking?
I am an oldie (41) and dont usually come on the young persons forum but this has shocked me!!!!!!!!
I have 2 children and i don't feel this is an acceptable thing to do. My kids know i have ms and it has been explained carefully to them. They know i inject Rebif.
I dont inject in front of them but they have walked in the room when i have been doing it. I have not hidden anything from them as i feel it is important that they understand.
Your daughter should not be involved in this way.
I AM MORTIFIED!!!!!!!!
Teresa

chris_travis

10 Nov 2012 at 2:17PM

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To be honest if i wanted ur opinion id ask for it
She is involve so she understands
+ its the machine aswell not the actual needle holdibg so keep ur opinion to urself
Thanks

x_xtrinax_x

11 Nov 2012 at 12:18PM

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O dear, do things like this happen a lot on this site?
I'm assuming you don't let her hold the injection on her own etc! Or walk around with it! Lol
I'm too on a machine, I don't know whether I'd let my son do it, but he's not old enough to understand yet. If he was old enough and took an interest in, it's something I may have to consider and judge at the time.
Hope you're keeping well anyway.

chris_travis

11 Nov 2012 at 12:40PM

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She only helped me when it was the machine i was usig
Jus this nosey woman gettin involved,
Needs keep her opinions to herself.haha
Apart from her annoyin me ye im fine and feel fine,jus tired late afternoons
Hw r u?

Anonymous

12 Nov 2012 at 9:05PM

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Hi I am 26 and got diagnosed in 2009. Symptoms were tingling in hand and feet and an electric shock on neck flexion. After being diagnosed I realised that tiredness must have been something to do with it. Since I was diagnosed I have got married and had a baby who is now 11 months. I took pregabalin at first but I think the symptoms just resolved by itself and pregabalin was just making me more tired. I now don't take anything for it and am enjoying life! X

purple-haze

24 Nov 2012 at 9:56PM

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i'm joanne. 29 at dx now 30. not been given a type but it's all weird n stupid. cos it comes from no where! 7 months ago i ran 5k 3 times a week.!

cmcb85

29 Nov 2012 at 12:48PM

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25, dx in MAR12 but held off to have lumbar puncture done - results yday +ve so starting Avonex. they can start me before xmas but getting married 6wk on sat to starting a couple days after i'm home from honeymoon in Jan... anyone else on Avonex? symptoms? weight gain? x

Jemma

01 Dec 2012 at 8:07PM

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Hi everyone,
I’m 28 and was diagnosed about 6 weeks ago now. I don’t really know how bad it is but I have quite a few lesions in my brain and one that’s fairly big on T7/T8 of my spine.
So far I have experienced the tiredness and have had tingling in my hands but mainly on my left side and numbness in both my legs.
Have any of you had numbness in your face?! It’s the same feeling that you get after having a filling at the dentist, when the numbness is wearing off.
Thanks
Jem x

x_xtrinax_x

02 Dec 2012 at 12:01AM

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Hi Jemma,
I've not had it in my face, but I had a spinal cord relapse on my T4 area and that felt the exact same. It hurts but is numb at te same time! It's a very strange feeling. Your explanation is how I explained mine to the MS nurse.
Have you mentioned this to your nurse or dr yet?
Trina xx

Jemma

02 Dec 2012 at 2:54PM

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Hi Trina,
I have an appointment with my gp on Tuesday so will mention it then. I don't have a MS nurse yet, I suppose i'll get one soon.
Don't really know what to think of it all. I've been married almost 6 months now and we were thinking about starting a family before. But now I don't know what to do or even if I'm going to be any use as a parent. Pretty much sucks!!!
Jem x

x_xtrinax_x

02 Dec 2012 at 6:29PM

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Jem,
I was diagnosed at 23 and I felt the exact same, I married at 21. I'm now 27 with a 22 month old.
How I figured is that if I was to have a family, best to start sooner instead of my mid 30s, which was my original plan. Im not going to lie, it can be difficult at times, but the sure start centres are a blessing and really help out. I wouldn't change my son or decision for the world.
But on the same note we've made a decision, because of my MS not to have any more.
Now every ones MS is different and your decisions have to be yours based on your own personal circumstances, but I personally don't think having MS should stop you having a family. Discuss it with your husband, GP and MS nurses (when you get one) and see if that helps aid your decision.
I hope this helps.....
Trina xxx

Jemma

04 Dec 2012 at 6:41PM

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Hi Trina,
Thank you for your comments they have really helped.
It's nice to be able to speak with other people going through the same thing.
Jem xx

Nicole21

11 Dec 2012 at 2:16AM

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Hi, I'm Nicole. I'm 21 & was diagnosed just befofe my 21st birthday this year.
I don't know anyone else with MS who are young, yet close to my age.
Xx

HazelRobson

13 Dec 2012 at 2:08PM

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Hi,

I am Hazel and have been diagnosed on the 07/12/12. I am 29 years old. I went and meet the Neuro Nurse yesturday for the first time and I was crying my eyes out because someone came straight out of her room in a wheel chair. That was unlucky but she had other issues that put her in the chair so I calmed down a bit. The nurse told me I had RRMS and drew a picture to explain how MS works. It is very fasinating how it all works, wish I could see it under a microscope. Anyway, I'm to be put on a medcine which "I can't remeber the name" but it's being put on a drip for 2 hours every month at the hospital. I get my med start in January and hope I get get no side affects.
Please excuse any spelling mistakes "I can't spell very good"
Hazel x

Anonymous

18 Dec 2012 at 8:59PM

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Hi, I'm 27, diagnosed in October. First attack in April, numbness on right side which resolved after about 2 months. No symptoms since then except occasional tingling and slight difference in feeling of some fingers. I have felt very tired for last few years but thought I was just pushing myself too hard in my job, maybe the fatigue is also due to ms. Haven't really got my head around diagnosis, some days I'm ok and others I'm a mess, crying at any opportunity. Trying 2 be positive but finding this all very difficult, especially the uncertainty of my future. Would appreciate a chat anytime :-)

hollydrewry123

22 Dec 2012 at 1:38PM

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Hi everyone. New to the forum but so interesting to hear how people are going through the same as me. Im 23yrs old and was diagnosed in may 2011. Its tough to get my head around it all but managing well. I gave birth to my beautiful daughter 11wks ago and have struggled since then with this relapse. Steroids not worked and now having plasma exchange. Noticed slight improvements but may take few wks. Anyone else had problems after having a baby? And anyone had plasma exchange?
Thanks
Holly

Fade

09 Feb 2013 at 10:34PM

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Hi
I have been diagnosed for 8 months and am 31. I don't know anyone around my age with MS and haven't told many people I know ( I don't really mind if people know but can get a bit tearful when talking about it).
This site has been really useful for advice. Thanks, everyone!
Fade

kellixbean

10 Feb 2013 at 10:18PM

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Hey.... I have rrms going well over be 30 this year just had another attack....gutted

calIBIZA

10 Feb 2013 at 11:19PM

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Hey, I was diagnosed at 19, im now 21, nicole your not alone :)

darren28

12 Feb 2013 at 6:19PM

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Hi,
Im Darren and Im 27 and 364 days old (hint hint). I have had ms since last april and was in limbo for 6 months. I think i was dx quickly because my first attack was pretty bad, and my neuro believes the sooner you start dmd's the better.
Iam at the mo taking avonex once a week pens. Done six so far.

catcatcatcat

13 Feb 2013 at 11:22PM

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H everyone............im cat, im 31...diagnosed not far off 6 years ago.......still humming the rocky tune to myself as i walk up the stairs so i must be ok.
Im really surprised at how many people have responded in this age group.....maybe we should have our own 25-35 room??
Happy to chat anytime :-) xx

catcatcatcat

13 Feb 2013 at 11:24PM

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oops.....20-35 sorry about that x

catcatcatcat

13 Feb 2013 at 11:25PM

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Happy birthday!

darren27 wrote:

kittydml

02 Mar 2013 at 2:28PM

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Hi Rebecca, I'm 32 and was dx in 2008 at 28. Here if you wanna chat xxx

chocolat-e-fudge

28 Mar 2013 at 12:03AM

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Hi rebecca
i am newly diagnosed this year and i am 26.would love to chat as just coming to terms with it myself.
X

Medic

01 Apr 2013 at 11:25PM

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Hey everyone,
I was diagnosed 4 years ago at the age of 19! I am currently 22 and a medical student...I wanted to become more active in the MS World...I wanted to talk to anyone that has been active in research or just generally active in MS causes, so to speak!
Look forward to hearing from you guys! :-) Also if anyone wants to chat about anything, then feel free to message me! :-)
Rosh x

chocolat-e-fudge

02 Apr 2013 at 11:25PM

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Hi rosh
well done you for going through medical school! I was a med student till six months ago when i had to stop.it wasnt the ms so much as i was awaiting my diagnosis, but the med school really didnt support me. I wish you the best of luck :-) i was in a clinical trial for ms in london.msg me if interested :-)
Chocolat-e-fudge

this is nothing more than abusive

would like to meet people of a similar age to me

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Rebecca xx

01 Apr 2012 at 10:00AM

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Hi
I was diagnosed 2 years ago now and would love to chat to people with ms who are a similar age to myself. I have just turned 30.
I have struggled to come to terms with it and feel chatting to other people will help. X

folksongs19884

02 Apr 2012 at 2:32PM

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Hi Rebecca, i'm Bex, i was diagnosed with MS 2 and a half years ago. I know you said you want to talk to people of a similar age, and I'm only 23, but would love to talk to you if you want xx

Rebecca xx

02 Apr 2012 at 5:40PM

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Hi Bex, thank you for replying and I would love to chat with you. Xx

daisy1984

02 Apr 2012 at 7:05PM

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Hi Rebecca, my name is Diane. I was diagnosed with MS last wednesday. Dont think it really has sunk in as yet!! Im 28 and have a 6 year old and a 1 year old. Would love to chat to people in the same situation as me xxx

Twinklejelly

03 Apr 2012 at 2:06AM

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27 and diagnosed for 3 years - always happy to talk :) Ginny

carly111222

03 Apr 2012 at 9:30AM

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hey im 23 was diagnosed in january i have a little boy whis is 22 months pm me if u wanna chat
carly xx

chris_travis

13 Apr 2012 at 7:05PM

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Hello all
Im chris,26 and have had ms for 4 and a half years now,
I have rrms, started on rebif and now on copaxone
I act like everything fine but when im at home on my own it gets me thinking and glad there people to talk to on here
I have a cba attitude these days which isnt good,just lack the energy i used to have az i was out playing football non stop and golfing,now i feel i get home and jus want to chill,
How do u all feel?

Iolanda82

14 Apr 2012 at 7:29PM

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Hi Rebecca , I'm Anna and I was diagnosed 16 months ago.. Happy to chat it you want to.. I will be turning 30 this summer . Was meant to be sorting out invItations to my party but the fatigue has hit me hard today .. So it's a duvet day xAx

Jazz-1978

29 Jul 2012 at 11:59PM

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Hi all, I'm Martin. I was diagnosed with relapsing remitting ms in 2009 aged 32. I've just had my first relapse recently and been prescribed Prednisolone and Rinitidine by my ms nurse. I'm always happy to chat with others.

mrsp83

05 Aug 2012 at 4:35PM

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29 next week... with a 6 month old baby...
diagnosed jan this year - feel free to pm me :-)

Shadowking

07 Aug 2012 at 4:47AM

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24 nearly 25, was diagnosed about 6 years ago in my first year at uni, always happy to chat so drop me a message :)
Q

Astyanax

07 Aug 2012 at 2:19PM

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Hi,
I am 26 and have just been diagnosed with relapse remitting. I'm about to go on the Beta Interferon after two attacks in the last year. Pretty scared about future attacks (two so far have been 95% corrected by steroids) but what can ya do? Talking it over with some friends has helped. Hope you're feeling good at the moment.
O.

MAKS

10 Aug 2012 at 6:02PM

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Hi Rebecca,
I'm Kerry and was also diagnosed 2 years ago. I know what you mean about struggling to come to terms with the diagnosis and hearing from others really does help as well as attending the MS events.
I'm happy to chat anytime you want.
Kx

MAKS

10 Aug 2012 at 6:02PM

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Whitey

27 Aug 2012 at 4:18PM

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Hey, I was diagnosed with definite rrms a couple of months ago, the consultant wants to start me on disease modifying injections but as I am trying for a baby the drugs will have to wait. was a tough choice. feel free to message me too, I could do with the chance to speak to others who understand as feeling pretty lonely when it comes to the diagnosis. (I'm 26 and live in Yorkshire by the way :-) ) x

chris_travis

03 Sep 2012 at 6:17AM

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Hello all im chris,26 and have had ms for 4 and a half years now,I have rrms, started on rebif and now on copaxoneI act like everything fine but when im at home on my own it gets me thinking and glad there people to talk to on hereI have a cba attitude these days which isnt good,just lack the energy i used to have az i was out playing football non stop and golfing,now i feel i get home and jus want to chill,
Im from the preston area,love to chat,can message me if you like aswell

Poppet

05 Sep 2012 at 7:13PM

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Hi everyone I'm Sarah got my Dx of RRMS in 2010 age 33 .
I have struggled with the slowing down of my life and getting my head around the whole thing . Have felt talking on here has been a great help .
Nothing like a good old moan sometimes to make u feel a bit better. :) lol.
Sarah x

marcus1

11 Sep 2012 at 6:50PM

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Hi, My name is Marcus and I am 56 and was diagnosed about 14 years ago. Maybe I shouldn't be on here but WHAT DO YOU THINK is 'CAUSING' all this 'MS'?

moracruz

23 Sep 2012 at 7:07PM

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Hi Rebecca,
I am Mónica and I was diagnosed in 2008 with RRMS. I will be happy to talk with you everytime you will need. I will turn 40 next December....( I am getting older...!!)
Monica
Xxx

Levi

27 Sep 2012 at 8:00PM

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hiya im Levi and im 23, i was diagnosed with relapsing remitting MS 2 weeks ago. ive had a course of steriods some of the symptoms have eased off, iv been told it could be a few months. still taking it all in really, hoping talking to people on here will help.
xxx

Levi

27 Sep 2012 at 8:00PM

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beket

04 Oct 2012 at 11:43PM

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Hi,
I'm Mel, aged 32 with Ms diagnosed 7 years ago. i'm just about starting to get my head round the diagnosis properly now - sometimes have sessions of wanting to scream and cry still but have to get on with life. i live in sunny sheffield and find that going to my local ms therapy centre helps - people know where your coming from and you don't have to explain everything. most of the therapy centres are online and i can recomend them as a good source of information and support. Feel free to pm if you need to chat.
Mel.

alixmarie

09 Oct 2012 at 11:01PM

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Hi, i'm alix and i was diagnosed in 2009 with rrms. I have, up til now tried very hard to ignore the fact that i have ms and to be honest have been kinda scared of being in touch with others who have ms...almsot like i'd have to fully admit to myself that i do in fact have it. I just started copaxone last Friday and joined this forum so i could ask a question about the injections and reading the replies i have realized that talking to and hearing from other ms-ers is actually quite nice, its good to hear from folk who have an idea of what its like having this horrible disease. I'm 28 and was 25 when diagnosed. I knew no other people my age who had it (still dont). Would be nice to hear from people.

mcmillar00

10 Oct 2012 at 10:32AM

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Hi, I'm 23 with RRMS and was diagnosed at 16. I'd always be willing to chat about it.
Ross x

Kevin1986

10 Oct 2012 at 6:55PM

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Hey becca (hope u don't mind me calling you that) i'm 26 and was diagnosed almost 2 years ago i'd gladly listen if you wanted to chat since tbh it would be helpful on my part too

Char84

17 Oct 2012 at 5:35PM

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Hi Rebecca
My name is Charlotte and am 28, I was diagnosed with MS 5months ago so fairly new to all this.
I just started my Refib treatment today so fingers crossed all goes well. I am happy to talk whenever as we all need a little support.
C xxx

Anne28

28 Oct 2012 at 3:13PM

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HI everyone,
I know I am on the wrong Forum as I am in my 50's, early 50's thankyou!
Please don't turn off.
I just wanted to say something and hopefully give you something to think about.
I was only diagnosed 4 years ago. However, I have had severe problems since I was 14 years old. The neuros think I have probably had MS for at least 20 if not 30years.
I am still upright. I got married, I have a wonderful life.
I just want all those of you are scared at being diagnosed at such a young age and worry about the future to try and stop worrying so much. Your particular MS may not progress quickly.
I wish that I had been diagnosed at an earlier stage in my life, It would not have stopped me from doing anything I have done. I may however, have changed certain things, eg. diet, lifestyle, so that the fatigue did not impact so much.
So please, enjoy your lives.
x

VinceA

01 Nov 2012 at 10:08AM

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I consider myself young at 40! Does this count? Diagnosed at 39, first known relapse at 36. I say known due to being used to living with different sporting injuries from mountain biking/fell running so they all do not help pinpointing a start. Look forward to what you can acheive, not back at what you did not acheive.

Gareth 1987

03 Nov 2012 at 2:20PM

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Hey I'm Gareth, 25 years old, had MS since I was about 17-18. Would be happy to talk to you if you have any questions. xx

ShyStar

03 Nov 2012 at 4:07PM

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Wow... its so weird seeing that im not alone ... as most of the time I feel I am... especially seeing ppl younger then me with it. All people I've met have been 20 years older then me (Minimum)...
I was diagnosed when I was 23... I had a relapse with roughly 20 legions... I read somewhere that the average person has 1 or 2 relapses a year... I've had about 7/8 (I try not to keep count) in the first year... I was on Rebif for a lil while... but it didnt seem to help so my docter and nurse wanted to try me on Tysabri... Anyone else on that ...?
I guess I'm here posting as I do feel li got diagnosed at 23 and ike I'm alone with this.... I have my family ofc... and they are wonderful... but they don't quite have the insight I'm craving...
I turned 25 yesterday... it would be great if people would pm me for a chat... it doesn't even have to be about ms... just wanna make some friends who know about ms and understand it...

x_xtrinax_x

08 Nov 2012 at 11:46PM

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Hi I'm brand new to the website,
I'm 27 diagnosed at 23. Would love to talk to younger people. This thread got me to join.
I have a 1 year old and a husband, who is very supportive, but it's hard to find people of our age who actually understand.
I don't quite understand how these forums work, so if some kind person could help as well, that would be much appreciated.......

They need to STOP misdiagnosing the young

Young and Newly Diagnosed

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vanis1

31 Aug 2013 at 6:07PM

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I found this forum through google. I am 22 and just received my diagnosis of MS two weeks ago. I am only on steroids for now. I meet with my neuro again Sept. 12 to hopefully start treatment with DMDs. I have had symptoms of tingling in both my legs, loss of coordination and balance, and my right dominant arm is having major problems writing and typing. I am most scared I am not going to get better. I just started PT last week and I cannot even do simple tasks. Everyone has told me things will get better but I am afraif they will not. I guess I am writing to find people who have learned how to deal with this disease. It is very overwhelming and I am just scared that I will be this was for the next 50 years of my life.

Spudz

31 Aug 2013 at 11:54PM

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We all had that moment worrying about our future.my diagnosis came out the blue so had all the same thoughts and worrys as you.ask your gp to send you to an ms nurse.neuro,s are the start but its the nurses and their team who helped me through those difficult times.
Spudz...

01 Sep 2013 at 12:49AM

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Hi vani
You will be fine don't worry to much X

LISALOU

01 Sep 2013 at 8:13AM

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Hi hun I was exactly 24 when diagnosed. Sensations were my main symptoms although I relapsed which caused also ON, poor coordination and increased sensations. Like you I worried for the future. I'm now 33, slightly worse since my last relapse which was beg this yr in that my left leg is weaker so I limp after walking about ten mins but I continue and rest when needed before continuing again. Still enjoying life doing the things I have always done almost. Only almost as I have a four year old now so priorities change but my worry was I might not have children because the diagnosis might change these plans but it doesn't have to hun.
Try not to worry too much and be positive which isn't easy at the beginning. You will get used to certain things. I'm used to permanent sensations in my hands as they've been there since 2011. I forget them now. And even getting used to walking a lil different. What I'm saying is for the last nearly ten years I've been relatively well and although I've deteriorated slightly I still feel fine most days. We all have good n bad days. It's important to listen to yiur body too. Also exercise and a good healthy diet is advisable. That doesn't mean no more treats however. My weekends are my treat times. Also I've not been on medication up until this year. I'm now on rebif.
Good luck and chin up hun xxxx