Newly Diagnosed
09 Jun 2014 at 10:15AM
Hello everyone,
This is my first post so hopefully i'm doing this right. As you probably guessed, my name is Fiona and I am 28 years old, hopefully this counts as young lol. I have just been diagnosed at the start of May after nearly 2 years of problems. I have noticed they dont seem to be in a hurry even now i've been diagnosed, have been told I could be waiting up to 12 weeks for my next Hospital appointment.
Just thought I would say hello, nice to know i'm not alone and people know what it's like to live with MS.
This is my first post so hopefully i'm doing this right. As you probably guessed, my name is Fiona and I am 28 years old, hopefully this counts as young lol. I have just been diagnosed at the start of May after nearly 2 years of problems. I have noticed they dont seem to be in a hurry even now i've been diagnosed, have been told I could be waiting up to 12 weeks for my next Hospital appointment.
Just thought I would say hello, nice to know i'm not alone and people know what it's like to live with MS.
Hi Fiona and welcome,
Sorry about your Dx but pleased you have decided to join our happy band. Yep 28 is young (well compared to me) but you could post on Everyday Living where there are a lot more people who can answer any questions you may ask.
12 weeks for your next neuro app't is good I had to wait 6 months. Have you got a MS nurse as they are very good. Have they put you on any medication yet?
Best wishes
Janet
x
Sorry about your Dx but pleased you have decided to join our happy band. Yep 28 is young (well compared to me) but you could post on Everyday Living where there are a lot more people who can answer any questions you may ask.
12 weeks for your next neuro app't is good I had to wait 6 months. Have you got a MS nurse as they are very good. Have they put you on any medication yet?
Best wishes
Janet
x
10 Jun 2014 at 10:07PM
Hi there Janet,
Thanks for the advice, I will post in Everyday Living :)
6 months? I feel bad complaining about the 12 weeks now. Have spoken to a nurse on the phone but still to meet her, no medication as yet. That's what's worrying me a bit at the moment.
Thanks for your reply :)
Fiona
Thanks for the advice, I will post in Everyday Living :)
6 months? I feel bad complaining about the 12 weeks now. Have spoken to a nurse on the phone but still to meet her, no medication as yet. That's what's worrying me a bit at the moment.
Thanks for your reply :)
Fiona
Hi Fiona,
The nurse will help you with the medication so try and stop worrying. I'm trying to remember about my medication and I recall speaking to the nurse, but having said that you could a lpay a visit to your own gp who could help you.
Trouble with MS is that patience is something we all have to learn, it always takes a while before things start to happen.
Wish you all best of luck and hope you don't feel quite so bad.
Janet
x
The nurse will help you with the medication so try and stop worrying. I'm trying to remember about my medication and I recall speaking to the nurse, but having said that you could a lpay a visit to your own gp who could help you.
Trouble with MS is that patience is something we all have to learn, it always takes a while before things start to happen.
Wish you all best of luck and hope you don't feel quite so bad.
Janet
x
Hi Fiona,
I'm sorry to hear about your dx. I should think it takes a long time to come to terms with.
I am 28 too. I am still on the long and rocky road to diagnosis after problems since Oct 13. Have a neuro appointment this Friday, so hoping to find out more then. It's all taking a long time.
Hope you're ok and have people to talk to at home. The forums are a great place to come and chat, ask questions and generally get to know others in the same boat
PG xx
I'm sorry to hear about your dx. I should think it takes a long time to come to terms with.
I am 28 too. I am still on the long and rocky road to diagnosis after problems since Oct 13. Have a neuro appointment this Friday, so hoping to find out more then. It's all taking a long time.
Hope you're ok and have people to talk to at home. The forums are a great place to come and chat, ask questions and generally get to know others in the same boat
PG xx
26 Jun 2014 at 10:03AM
Hi Fiona,
I was diagnosed in March this year and was hospitalised with what I thought was a stroke. I am having a great deal of trouble coming to terms with it all.
I'm finding not working and trying to fill my days very tricky!
I'm am now 29 and have felt as though I need to start all over again.
I have a very dear friend who has been a huge support in helping me move forward and not wallow in my own melancholy.
I have recently changed my diet, stopped drinking and enrolled with a charity called MSAction. I'm going to start using a hyperbaric chamber which hopefully will aid my recovery! With help I am starting to be a little more pro-active as like you in a bit fed up of waiting for UCLH to pull their fingers out!!
Sorry to keep bleating on about myself but I have found finding similarities with other peoples problems is helping me feel not so alone.
Kind regards,
George
I was diagnosed in March this year and was hospitalised with what I thought was a stroke. I am having a great deal of trouble coming to terms with it all.
I'm finding not working and trying to fill my days very tricky!
I'm am now 29 and have felt as though I need to start all over again.
I have a very dear friend who has been a huge support in helping me move forward and not wallow in my own melancholy.
I have recently changed my diet, stopped drinking and enrolled with a charity called MSAction. I'm going to start using a hyperbaric chamber which hopefully will aid my recovery! With help I am starting to be a little more pro-active as like you in a bit fed up of waiting for UCLH to pull their fingers out!!
Sorry to keep bleating on about myself but I have found finding similarities with other peoples problems is helping me feel not so alone.
Kind regards,
George
26 Jun 2014 at 12:41PM
Hi
Please see that you dont actually have mercury poisoning . My mum was diagnosed with MS but was actually mercury poisoning from her silver dental fillings in her mouth. Please check it and remove them if you have it. I know so many people taht have recovered after removing them.
PLEASE READ ABOUT THIS
Please see that you dont actually have mercury poisoning . My mum was diagnosed with MS but was actually mercury poisoning from her silver dental fillings in her mouth. Please check it and remove them if you have it. I know so many people taht have recovered after removing them.
PLEASE READ ABOUT THIS
06 Jul 2014 at 9:34PM
Hi Fiona. I am awaiting diagnosis and have found that nothing is moving fast at all lol! I was supposed to be on an urgent referral to see the ms specialist that was 2 weeks ago I am having to hassle them everyday about it else I feel I will just be forgotten about lol!
08 Jul 2014 at 1:40PM
Hi everyone,
Thank You so much for all your replies. I was actually not doing too good last 2 weeks or so but feeling better now. It is so nice to see all the replies and know that i'm not alone.
Thanks again,
Fiona
Thank You so much for all your replies. I was actually not doing too good last 2 weeks or so but feeling better now. It is so nice to see all the replies and know that i'm not alone.
Thanks again,
Fiona
08 Jul 2014 at 11:29PM
Hi Fiona,
I too am recently diagnosed, got my confirmation in June and I am 22.
Still haven't heard anything about a specialist and getting increasingly frustrated!
I guess it just takes a while to get the ball rolling, but it doesn't mean it isn't hard.
I too am recently diagnosed, got my confirmation in June and I am 22.
Still haven't heard anything about a specialist and getting increasingly frustrated!
I guess it just takes a while to get the ball rolling, but it doesn't mean it isn't hard.
10 Jul 2014 at 11:30AM
Dear Fiona
Forgive me for stepping into this conversation but one needs to start somewhere! I am 55 and found myself with MS when I was 17 (1976 when people knew a lot less about MS and its ways). I have therefore really had it all my adult life. It has not prevented me from doing anything – degrees, professional qualifications, marriage, children, divorce, new relationships etc etc . Some things have worked out differently from the way I thought they would, some things have worked out worse, some things have worked out better. This makes it much like real life which it is. Just remember that you can do anything you want with your life, the MS may make it more complicated but it will not prevent it happening. Try not to get frustrated by the slowness of people/operations, it is energy wasted which you can better use elsewhere by focusing on and making happen the things which are really important to you. Good luck
Forgive me for stepping into this conversation but one needs to start somewhere! I am 55 and found myself with MS when I was 17 (1976 when people knew a lot less about MS and its ways). I have therefore really had it all my adult life. It has not prevented me from doing anything – degrees, professional qualifications, marriage, children, divorce, new relationships etc etc . Some things have worked out differently from the way I thought they would, some things have worked out worse, some things have worked out better. This makes it much like real life which it is. Just remember that you can do anything you want with your life, the MS may make it more complicated but it will not prevent it happening. Try not to get frustrated by the slowness of people/operations, it is energy wasted which you can better use elsewhere by focusing on and making happen the things which are really important to you. Good luck
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