my mess/ms

MissG · 02-27-2010, 03:55 PM

Can anyone share stories of dealing with autism or Asperger's Syndrome? Also I have read links that gluton/casein/Candida play rolls in triggering meltdowns/shutdowns.

We got an informal diagnosis for my stepson who is 8. We are awaiting a Dr's appt to confirm this. Although I stayed up all night and researched this senario, all things are pointing to it being correct.

I am just curious to see if there are any mothers or guardians who have a child with autism or Asperger's syndrome that have eliminated these 3 items out of their childs diets and have shown marked improvement.

All this is a bit overwhelming but it all makes sense now. I could never pinpoint what was going on with him. I've raised him since he was 2..spoke at a normal 2 yr pace and then didnt gain much more vocabulary by 3. He then just stopped talking all together and would mumble or grunt until the age of 5. He never was interested in playing with other children his age, he could not look at you in the eyes. Outright terrible tantrums and would literally go mute and not talk for minutes or hours if ovewhelmed. Covered his ears to loud semi loud noise, but wouldnt hear you if you spoke his name but would turn around and ask me if I can hear a birds chirping or a cricket outside. There are other things but those were always what stood out to me.

His Peds Dr said it was normal developement and that more then likely him not being around his mother (she gave up parent rights to his father) may have a factor in which he reverted back. Now if that wasnt an incling of some sort I don't know what is. I just thought I was something I would have to deal with and try to be there for him through.

I know this is kinda of off topic but just wondering if there are any links between diet and this disorder.

DelhiBelli · 03-23-2010, 02:26 AM

MissG,
I don't have a child with ASD but I when researching some of the causes of my own digestive problems, I kept running into mothers of ASD children that were dealing with the same issues. Have you looked into SCD/GAPS for ASD? Seems the low-carb version of those diets were best. Children who stopped eating grains, beans and legumes, dairy (unfermented), soy, sugar in all forms (including fruit), high starch veggies, additives, preservatives, nuts, table salt, etc and increased proteins and fats (sat fats worked the best- butter, tallow, lard, ghee, coconut oil) and sea salt did exceptionally well. It was hard for these parents (and sometimes the whole fam if they joined in the diet), but over time the good days far outnumbered the bad ones. Besides giving up all these things, introducing liver/kidneys and mineral-rich brone broth really helped as well. I can go on and on about how beef bone broth has helped me and my husband (fixed his problems with shellfish, dairy, beef, etc) so I can imagine what wonders it could do to a growing child. If you need more info, let me know and I can point you in the direction of some great sites and groups that focus on healing children and families as well.

Joyful111 · 03-24-2010, 09:01 PM

I have a child with autism and also have celiac disease myself. My son improved tremendously on the gluten free diet. Casein wasn't one of his issues, but they often go hand in hand. He was on a gf diet for 5 years. Then I read about Devin Houston and the enzymes that he created to help kids with autism properly break down gluten and casein. We started my son on the enzymes while maintaining the gf diet for 3 months and then challenged the enzymes by adding in gluten. The enzymes worked beautifully for him. This was a child who previously would exhibit many many symptoms from eating gluten, stimming, self injury, not sleeping, even gave the appearance of hallucinating. And with the enzymes he has been fine. I felt like I was handing him a crack pipe that first time I gave him some enzymes and gave him a bagel, but it all turned out fine. And we have continued to see a lot of improvement with him.

My son also reacted to soy, chocolate, tomatoes and bananas. These too were helped by the enzymes.

MissG · 03-24-2010, 09:56 PM

Thank you so much on that info!! I do notice alot of trigger foods since finding out last month. Things I never even 2nd guessed. I am now trying to slowly rid these things. I will have to look up the enzymes. Sounds very interesting. Thank you again!

Joyful111 · 03-25-2010, 06:40 PM

Good luck! I hope you are able to find some things to help him out.

lostfox · 11-21-2010, 10:13 AM

Hey MissG,

I'm dealing with this also, my child is turning three, and several months ago had quite an increase in unusual Aspergers symptoms - one thing was that extreme sound and touch sensitivity became pronounced.

I researched the candida and gluten/casein connection and in October, I gradually stepped down her dairy and gluten for 3 weeks before she became totally gf/cf free. And I have noticed a huge improvement. She still has a lot of ASD symptoms and difficulties, however, her sensitivities have really decreased.

One very interesting thing was a definite confirmation for me of what I had researched. Essentially, either candida, or even just the gluten, can cause the leaky gut, which allows the gluten and casein proteins to penetrate the stomach lining and effect the brain. These proteins actually act as morphines. My daughter was unusually non-reactive to bumps and bruises. After being gf/cf free, she really began to feel the pain of accidents and totally did not know how to react - she would really freak out when she bumped herself, which had never happened before. That proved to me that yes, these proteins can and do effect the brain as a morphine like drug, and removing gluten and casein from the diet stops this cycle - and hopefully helps to allow the gut to heal over time.

Some parents have found gfcf diets to be a cure, but for me, it has simply been a great improvement. I haven't had her on a program for candida, but eventually hope to help her with that in case it's a factor also - likely by simply adding water kefir, and possibly restricting starch and sugar from her diet for several weeks. Hope that helps... It must be really tough to deal with discovering a possible Aspergers diagnosis in an older child, but combining a good diet with behavioral therapists and other therapies will probably really help a lot.

lostfox · 11-21-2010, 10:17 AM

Quote:

Originally Posted by Joyful111

I have a child with autism and also have celiac disease myself. My son improved tremendously on the gluten free diet. Casein wasn't one of his issues, but they often go hand in hand. He was on a gf diet for 5 years. Then I read about Devin Houston and the enzymes that he created to help kids with autism properly break down gluten and casein. We started my son on the enzymes while maintaining the gf diet for 3 months and then challenged the enzymes by adding in gluten. The enzymes worked beautifully for him. This was a child who previously would exhibit many many symptoms from eating gluten, stimming, self injury, not sleeping, even gave the appearance of hallucinating. And with the enzymes he has been fine. I felt like I was handing him a crack pipe that first time I gave him some enzymes and gave him a bagel, but it all turned out fine. And we have continued to see a lot of improvement with him.

My son also reacted to soy, chocolate, tomatoes and bananas. These too were helped by the enzymes.

This is great info, thank you! I have to look into these enzymes! I just wanted to add that I modified the gfcf diet - mainly in the area of dairy. I eliminated cow's milk and cheese, and instead give her goat milk. Butter is ok, and ghee. They are mostly casein-free. Goat's milk has a different kind of casein than cow's milk and is extremely digestible - she's doing really well on it, and it does have the protein and vitamins and minerals that growing kids need.

lostfox · 11-21-2010, 10:32 AM

Quote:

Originally Posted by DelhiBelli

MissG,
I don't have a child with ASD but I when researching some of the causes of my own digestive problems, I kept running into mothers of ASD children that were dealing with the same issues. Have you looked into SCD/GAPS for ASD? Seems the low-carb version of those diets were best. Children who stopped eating grains, beans and legumes, dairy (unfermented), soy, sugar in all forms (including fruit), high starch veggies, additives, preservatives, nuts, table salt, etc and increased proteins and fats (sat fats worked the best- butter, tallow, lard, ghee, coconut oil) and sea salt did exceptionally well. It was hard for these parents (and sometimes the whole fam if they joined in the diet), but over time the good days far outnumbered the bad ones. Besides giving up all these things, introducing liver/kidneys and mineral-rich brone broth really helped as well. I can go on and on about how beef bone broth has helped me and my husband (fixed his problems with shellfish, dairy, beef, etc) so I can imagine what wonders it could do to a growing child. If you need more info, let me know and I can point you in the direction of some great sites and groups that focus on healing children and families as well.

Hi Delhi - yes, please do post more for us

I'm interested in this bone broth/healing connection! I don't think I can get my preschooler to eat broth yet, but perhaps in a year or two... sounds like it heals the stomach?

lostfox · 11-25-2010, 10:20 AM

Quote:

Originally Posted by Joyful111

I have a child with autism and also have celiac disease myself. My son improved tremendously on the gluten free diet. Casein wasn't one of his issues, but they often go hand in hand. He was on a gf diet for 5 years. Then I read about Devin Houston and the enzymes that he created to help kids with autism properly break down gluten and casein. We started my son on the enzymes while maintaining the gf diet for 3 months and then challenged the enzymes by adding in gluten. The enzymes worked beautifully for him. This was a child who previously would exhibit many many symptoms from eating gluten, stimming, self injury, not sleeping, even gave the appearance of hallucinating. And with the enzymes he has been fine. I felt like I was handing him a crack pipe that first time I gave him some enzymes and gave him a bagel, but it all turned out fine. And we have continued to see a lot of improvement with him.

My son also reacted to soy, chocolate, tomatoes and bananas. These too were helped by the enzymes.

Joyful111, I'm at the Houston site right now. Can you help me?? What enzyme product did you start your child on? I'm new to this Houston info - thanks to your tip - and am very hopeful. I would private message you but I don't think I can as I'm still a new member.

Joyful111 · 11-26-2010, 07:58 AM

Hi,

We use Trienza. I typically give him two capsules along with any gluten, soy etc. They have a chewable version if your child won't swallow pills. I twist to loosen the capsules a little before giving them to him. We used the the enzymes for a couple of months before actually challenging them with gluten foods. The idea behind that was that the enzymes help heal the gut.

I am happy to help with any questions that I can. Also the folks at Houston are incredibly helpful. I have emailed them, called, etc. and they are always lovely. I hope that your child experiences the same benefits that my son did!

lostfox · 11-27-2010, 08:05 AM

Quote:

Originally Posted by Joyful111

Hi,

We use Trienza. I typically give him two capsules along with any gluten, soy etc. They have a chewable version if your child won't swallow pills. I twist to loosen the capsules a little before giving them to him. We used the the enzymes for a couple of months before actually challenging them with gluten foods. The idea behind that was that the enzymes help heal the gut.

I am happy to help with any questions that I can. Also the folks at Houston are incredibly helpful. I have emailed them, called, etc. and they are always lovely. I hope that your child experiences the same benefits that my son did!

Thanks Joyful - they had so many different enzyme products that I wasn't sure exactly where to begin, so that really helps. I won't be starting immediately, but fairly soon. Healing my DD's tummy (and mine too) is what I'm all about. I'd like to come back and post in this thread with more questions if I have some, but for now, I'm so grateful for the tips you've put in here.

Joyful111 · 12-02-2010, 07:26 PM

I am happy to help. I hope that you they work as well for you as they did for us. They have been nothing short of a miracle really for my son. We saw so much improvement in language, socialization etc. etc. even above and beyond what we saw on the gf diet.

lostfox · 12-03-2010, 02:11 PM

Quote:

Originally Posted by Joyful111

I am happy to help. I hope that you they work as well for you as they did for us. They have been nothing short of a miracle really for my son. We saw so much improvement in language, socialization etc. etc. even above and beyond what we saw on the gf diet.

That's awesome! Great to hear from you today also, I was just thinking of this thread and the tip you gave on the enzymes! I'll be ordering a couple of bottles so hopefully will be able to start DD on them within a few weeks! How do you manage snacks?

I need to investigate it further, but I'm wondering if enzymes are used on the main meals every day, if the healing effect will cover any small snacks also. I understand that's how gentian root is supposed to work in healing the digestive system, eliminating candida, and supporting complete digestion of foods that the system found intolerable before - gentian works by eliminating the toxic byproducts of incomplete digestion, which contributes to both yeast, and the food intolerant reaction to incompletely digested gluten and casein proteins penetrating the stomach lining. Essentially, by healing the digestive system, food intolerances can be reduced and eliminated - and I believe this healing is accomplished over a few months of taking gentian with two meals a day.

So I'm wondering if the enzymes work this same way also. The problem with gentian, for a younger child and a picky eater, is that it may be hard to administer. It's one of the most bitter substances on the planet, and it can be put on a spoon with honey before or soon after meals. That won't work for my DD at this age, but the chewable enzymes most likely are something she will enjoy eating as much as she enjoys her vitamins!

I'm so glad to hear how great this intervention has been for your son and am looking forward to getting started.

Joyful111 · 12-03-2010, 04:48 PM

I will have to do some research on gentian root. I love learning about that sort of thing.

I only give him the enzymes if he is going to have one of his trigger foods. He does not eat them at every meal so he typically ends up getting the enzymes twice per day. In the beginning I gave them to him a few times a day for three months without introducing the offending foods to give the enzymes time to help repair his digestion.

I am lucky because he is a champion pill swallower and doesn't mind taking them.

It has been a long time since I read up on the science of why the enzymes work. I read a book about it back in the day called "Enzymes For Autism and Other Neurological Conditions". If I remember correctly they basically break the offending proteins down to small enough particles that they can be properly digested as well as contributing to the healing of the gut lining.

lostfox · 12-29-2010, 10:48 AM

Joyful - thanks again for the tips. It seems enzymes work the same way gentian is said to work.

It's great your son will take the pills. And it makes sense how you give them to him - especially considering the expense. I had my DD off her diet for 2 weeks for her assessment - things obviously got worse. I was excited to start her on the enzymes immediately after, but she really dislikes them, they're just chalky and not sweet enough to be enticing to a 3 y/o - she loves vitamin C, for example... but refuses to take the enzymes. I may end up dissolving 1 tab in her morning milk, and that would at least cover the fruit phenols, providing some benefit, but sadly I can't give them to her along with her favorite chicken nuggets... chicken nuggets are the only meat she eats, and so far, she does not like the gf versions.

My DD was diagnosed with AS/PDD-NOS - meeting the criteria for both. As I had suspected. I'll probably be starting with 10h/week of ABA and hopefully will have room in the budget for a bit of behavioral help in the home as far as self-care goes, and a few other problem areas.

So I'd heard of DMG - vitamin B15? I'd read of it in one of the good books I was reviewing months back, and had sort of forgotten, but it popped up again for me recently. Apparently these can be in a form of small, sweet tasting tablets, and are really helpful for autism and other disorders. Have you tried it? I'm going to get it ASAP and start her on it... if she won't eat them, in the goat's milk, they go!

I like goat's milk for her because it's high on some of the minerals that help with autism, as compared to cow's milk. And when I had her off the diet, the cow's milk and cheese made her hyper and unable to sleep - so it's great that goat's milk has been totally good for her, and a healthy replacement for the cow's milk that was aggravating her. Goat's milk has a different kind of casein in it... and is easily digestible.

I just wish I could get her on those enzymes, but without that, it's just a matter of staying strict with the diet until she's able to take them properly, and trying other natural remedies to help in the meantime, like the Focus Formula, and homeopathic calming remedies, and the DMG.

02-27-2010, 03:55 PM	#1
MissG Major LCF Poster! Join Date: Aug 2009 Location: Riverside,Ca Posts: 2,936 Gallery: MissG Stats: 273/ 254 /170 WOE: Olivia's WOE Start Date: Jan 6th 2014	Links between Gluten/Casein/Candida and Autism/Asperger's syndrome Can anyone share stories of dealing with autism or Asperger's Syndrome? Also I have read links that gluton/casein/Candida play rolls in triggering meltdowns/shutdowns. We got an informal diagnosis for my stepson who is 8. We are awaiting a Dr's appt to confirm this. Although I stayed up all night and researched this senario, all things are pointing to it being correct. I am just curious to see if there are any mothers or guardians who have a child with autism or Asperger's syndrome that have eliminated these 3 items out of their childs diets and have shown marked improvement. All this is a bit overwhelming but it all makes sense now. I could never pinpoint what was going on with him. I've raised him since he was 2..spoke at a normal 2 yr pace and then didnt gain much more vocabulary by 3. He then just stopped talking all together and would mumble or grunt until the age of 5. He never was interested in playing with other children his age, he could not look at you in the eyes. Outright terrible tantrums and would literally go mute and not talk for minutes or hours if ovewhelmed. Covered his ears to loud semi loud noise, but wouldnt hear you if you spoke his name but would turn around and ask me if I can hear a birds chirping or a cricket outside. There are other things but those were always what stood out to me. His Peds Dr said it was normal developement and that more then likely him not being around his mother (she gave up parent rights to his father) may have a factor in which he reverted back. Now if that wasnt an incling of some sort I don't know what is. I just thought I was something I would have to deal with and try to be there for him through. I know this is kinda of off topic but just wondering if there are any links between diet and this disorder. __________________ *Follow Me on This Journey* **~~~~~~~~* First Goal 220**

11-21-2010, 10:13 AM	#6
lostfox Senior LCF Member Join Date: Nov 2010 Location: Vancouver Posts: 104 Gallery: lostfox WOE: hhcg rogue	Hey MissG, I'm dealing with this also, my child is turning three, and several months ago had quite an increase in unusual Aspergers symptoms - one thing was that extreme sound and touch sensitivity became pronounced. I researched the candida and gluten/casein connection and in October, I gradually stepped down her dairy and gluten for 3 weeks before she became totally gf/cf free. And I have noticed a huge improvement. She still has a lot of ASD symptoms and difficulties, however, her sensitivities have really decreased. One very interesting thing was a definite confirmation for me of what I had researched. Essentially, either candida, or even just the gluten, can cause the leaky gut, which allows the gluten and casein proteins to penetrate the stomach lining and effect the brain. These proteins actually act as morphines. My daughter was unusually non-reactive to bumps and bruises. After being gf/cf free, she really began to feel the pain of accidents and totally did not know how to react - she would really freak out when she bumped herself, which had never happened before. That proved to me that yes, these proteins can and do effect the brain as a morphine like drug, and removing gluten and casein from the diet stops this cycle - and hopefully helps to allow the gut to heal over time. Some parents have found gfcf diets to be a cure, but for me, it has simply been a great improvement. I haven't had her on a program for candida, but eventually hope to help her with that in case it's a factor also - likely by simply adding water kefir, and possibly restricting starch and sugar from her diet for several weeks. Hope that helps... It must be really tough to deal with discovering a possible Aspergers diagnosis in an older child, but combining a good diet with behavioral therapists and other therapies will probably really help a lot. Last edited by lostfox; 11-21-2010 at 10:15 AM..

my mess/ms

Monday, 26 May 2014

Autism/Asperges Syndrome Gluten/Casein/Candida!!!!!!!!!!very interesting

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03-23-2010, 02:26 AM	#2
DelhiBelli Senior LCF Member Join Date: Aug 2009 Location: The land of the not quite right. Posts: 123 Gallery: DelhiBelli Stats: maintaining at my current size WOE: High Fat/ Mod Protein/ Low Carb Start Date: September 2009	MissG, I don't have a child with ASD but I when researching some of the causes of my own digestive problems, I kept running into mothers of ASD children that were dealing with the same issues. Have you looked into SCD/GAPS for ASD? Seems the low-carb version of those diets were best. Children who stopped eating grains, beans and legumes, dairy (unfermented), soy, sugar in all forms (including fruit), high starch veggies, additives, preservatives, nuts, table salt, etc and increased proteins and fats (sat fats worked the best- butter, tallow, lard, ghee, coconut oil) and sea salt did exceptionally well. It was hard for these parents (and sometimes the whole fam if they joined in the diet), but over time the good days far outnumbered the bad ones. Besides giving up all these things, introducing liver/kidneys and mineral-rich brone broth really helped as well. I can go on and on about how beef bone broth has helped me and my husband (fixed his problems with shellfish, dairy, beef, etc) so I can imagine what wonders it could do to a growing child. If you need more info, let me know and I can point you in the direction of some great sites and groups that focus on healing children and families as well.

03-24-2010, 09:01 PM	#3
Joyful111 Senior LCF Member Join Date: Dec 2003 Posts: 96 Gallery: Joyful111	I have a child with autism and also have celiac disease myself. My son improved tremendously on the gluten free diet. Casein wasn't one of his issues, but they often go hand in hand. He was on a gf diet for 5 years. Then I read about Devin Houston and the enzymes that he created to help kids with autism properly break down gluten and casein. We started my son on the enzymes while maintaining the gf diet for 3 months and then challenged the enzymes by adding in gluten. The enzymes worked beautifully for him. This was a child who previously would exhibit many many symptoms from eating gluten, stimming, self injury, not sleeping, even gave the appearance of hallucinating. And with the enzymes he has been fine. I felt like I was handing him a crack pipe that first time I gave him some enzymes and gave him a bagel, but it all turned out fine. And we have continued to see a lot of improvement with him. My son also reacted to soy, chocolate, tomatoes and bananas. These too were helped by the enzymes.

03-24-2010, 09:56 PM	#4
MissG Major LCF Poster! Join Date: Aug 2009 Location: Riverside,Ca Posts: 2,936 Gallery: MissG Stats: 273/ 254 /170 WOE: Olivia's WOE Start Date: Jan 6th 2014	Thank you so much on that info!! I do notice alot of trigger foods since finding out last month. Things I never even 2nd guessed. I am now trying to slowly rid these things. I will have to look up the enzymes. Sounds very interesting. Thank you again!

03-25-2010, 06:40 PM	#5
Joyful111 Senior LCF Member Join Date: Dec 2003 Posts: 96 Gallery: Joyful111	Good luck! I hope you are able to find some things to help him out.

11-26-2010, 07:58 AM	#10
Joyful111 Senior LCF Member Join Date: Dec 2003 Posts: 96 Gallery: Joyful111	Hi, We use Trienza. I typically give him two capsules along with any gluten, soy etc. They have a chewable version if your child won't swallow pills. I twist to loosen the capsules a little before giving them to him. We used the the enzymes for a couple of months before actually challenging them with gluten foods. The idea behind that was that the enzymes help heal the gut. I am happy to help with any questions that I can. Also the folks at Houston are incredibly helpful. I have emailed them, called, etc. and they are always lovely. I hope that your child experiences the same benefits that my son did!

12-02-2010, 07:26 PM	#12
Joyful111 Senior LCF Member Join Date: Dec 2003 Posts: 96 Gallery: Joyful111	I am happy to help. I hope that you they work as well for you as they did for us. They have been nothing short of a miracle really for my son. We saw so much improvement in language, socialization etc. etc. even above and beyond what we saw on the gf diet.

12-03-2010, 04:48 PM	#14
Joyful111 Senior LCF Member Join Date: Dec 2003 Posts: 96 Gallery: Joyful111	I will have to do some research on gentian root. I love learning about that sort of thing. I only give him the enzymes if he is going to have one of his trigger foods. He does not eat them at every meal so he typically ends up getting the enzymes twice per day. In the beginning I gave them to him a few times a day for three months without introducing the offending foods to give the enzymes time to help repair his digestion. I am lucky because he is a champion pill swallower and doesn't mind taking them. It has been a long time since I read up on the science of why the enzymes work. I read a book about it back in the day called "Enzymes For Autism and Other Neurological Conditions". If I remember correctly they basically break the offending proteins down to small enough particles that they can be properly digested as well as contributing to the healing of the gut lining.