I was far too early for the party while others were far too late

I was diagnosed with MS in the year 2000, I was doing my own investigation to my own condition which I believe is misalignment with small but positive results ………..I’ve always known that there was something wrong with my neck For 10yrs + I have managed my own mobility by constantly shifting my weight by tiny adjustments and movements keeping my head over my hips, I experienced slow and small improvements esp. to my dexterity or motor skills I could pick up an olive or a plum tomato that I had mastered, I was learning to put my fingers in my cup handle. If I pulled my 3 fingers in hand my index extended All of these benefits ceased when my chair was accidentally scrapped, and took best part of the year to get a suitable replacement and by that time I was unable to get into it and later furthermore when my bed was permanently removed and I could not follow, my unique to me regime. I am now displaying symptoms typical to MS which I NEVER had before because of the pressure in my lower back and being in this chair for 14 hours a day since • A shaky head • A loss of feeling in the groin area • Permanent neck pain • Sharp, shooting face pain • My hands have changed shape too • Now I experience pain in my knees and pain in my left hip my right curls in more and my hand is non-functional, pain/feeling now gone • And now my Legs wont straighten • And now my senses Also I believe that I have functional scoliosis because my upper torso twists to the right. And it is no wonder that we cannot stay on their feet. I know curve so far forward it is uncomfortable. I was gutted, as I was no longer in control. Others had intervened and taken decisions out of my hands. And I was winning. It is imperative that attitudes change for young people to get the correct diagnosis they deserve. For too long they have been barking up the wrong tree for those like me. I am now displaying symptoms typical to MS which I NEVER had before because of the pressure in my lower back and being in this chair for 14 hours a day • A shaky head • A loss of feeling in the groin area • Permanent neck pain • Sharp, shooting face pain • My hands have changed shape too • Now I experience pain in my knees and pain in my left hip my right curls in more and my hand is non-functional • And now my Legs wont straighten • And now my senses Also I believe that I have functional scoliosis because my upper torso twists to the right. And it is no wonder that we cannot stay on their feet. I feel locked in my chair by the weight of my head Now I’m stuck NHS can’t help me, in fact they done the opposite unint