Monday, 7 July 2025

My Opinion is...

Until the NHS and government understand that our everyday health should be treated holistically and NOT with medicines, our hospitals remain FULL indefinitely.

Correct alignment is crucial. If the C1 and C2 are out even by 1mm it can have consequences anywhere in the body

The Vagus nerve is also so very, very important and is not afforded the respect it deserves.

There are meridians, pressure points, these too are affected.

Gut health is also important as one can affect the other

I am a product of that oversight, that I am 100% certain and I am my only witness.

its probably too late for me to benefit from anyone changing their attitudes or opening their minds to this possibility.

For 10yrs + I  have managed my own mobility by constantly shifting my weight by tiny adjustments and movements keeping my head over my hips, I experienced slow and small improvements esp. to my dexterity or motor skills I could pick up an olive or  a plum tomato that I  had mastered, I was learning to put my fingers in my cup handle again. Most of these benefits ceased when my chair was accidentally scrapped, and took best part of the year to get a suitable replacement and by that time I was unable to get into it and later furthermore when my bed was permanently removed and I could not follow, my unique to me regime anymore with chair and bed that I was accustomed

I was gutted, as I was no longer in control. Others had intervened and taken decisions that have been to my detriment without my approval. It was a case of telling me what I needed instead of asking me what I wanted.

It is imperative that attitudes change for young people to get the correct diagnosis they deserve. For too long they have been barking up the wrong tree for those like me.

Through several well intentioned events and changes to my routine in the last 14 Plus months I am now displaying symptoms typical to MS which I never had before because of the pressure in my lower back and being in this chair for 14 hours day.

These symptoms include;

·       My neck protruding and my head leaning forward.

·       A shaky hand

·       A shaky head

·       A loss of feeling in the groin area

·       Permanent neck pain

·       Sharp, shooting face pain

·       My hands have changed shape too

·       Now I experience pain in my knees and pain in my left hip my right curls in more and my hand is non-functional

·       And now my Legs wont straighten

 

 

Also I believe that I have functional scoliosis because my upper torso twists to the right. And it is no wonder that we cannot stay on our feet.

it is not 'if I'm wrong it is 'If I'm right………………… then the consequences will be massive

















Friday, 4 July 2025

The Correct Balance We need to have our heads on straight.

 

Until the NHS and government understand that our everyday health should be treated holistically and NOT with medicines,  our hospitals will remain FULL indefinitely.

Correct alignment is crucial. If the C1 and C2 are out even 1mm it can have consequences anywhere in the body

The Vagus nerve is also so very, very important. And  is not  afforded the respect it deserves.

There are meridians, pressure points, these too are affected.

Gut  health is also  important as one can affect the other

I am a product of that  oversight, that I am 100% certain and I am my only witness.

its probably too late for me to benefit from anyone changing their attitudes or opening their minds to this possibility.

For 10yrs + I  have managed my own mobility by constantly shifting my weight by tiny adjustments and movements keeping my head over my hips,  I experienced slow and small improvements esp. to my dexterity or motor skills I could pick up an olive or  a plum tomato that I  had mastered, I was learning to put my fingers in my cup handle again. Most of these benefits ceased when my chair was accidentally scrapped, and later furthermore when my bed was permanently removed and I could not follow, my unique to me regime anymore with the chair and bed that I was accustomed to.

I was gutted as I was no longer in control.

But it is imperative that attitudes change for young people to get the correct diagnosis

Through several events instigated by an OT and changes to my routine in the last No 14 Plus months I am now displaying symptoms typical to MS which I never had before and what little strength I had managed to maintain in my centre this was an area as it included my lower back, my bottom, groin area, and btwn hips. I now have issues that only I seem to know of,  it’s not because of MS. These include but are not limited to

My neck protruding and my head leaning forward.

A shaky hand

A shaky head

A loss of feeling in the groin area

Permanent neck pain

Sharp, shooting face pain

My hands have changed shape too

Now I experience pain in my knees and pain in my left hip my right curls in more and my hands are now non-functional but if the open

And now my Legs wont straighten And painfully spasm when I awake  and My hand flexes also.

it is not 'if I'm wrong it is 'If I'm right………………… then the consequences could

be massive.

Spoken me The system that should care for me has actually made me more disabled than I need to be. And I am not t Oh God 

MS was discovered in the 1800s by French doctor It has never, Until the NHS and government understand that our everyday health should be treated holistically and NOT with medicines,  our hospitals remain FULL indefinitely.

Correct alignment is crucial. If the C1 and C2 are out even 1mm it can have consequences anywhere in the body

The Vagus nerve is also so very, very important. And  is not  afforded the respect it deserves.

There are meridians, pressure points, these too are affected.

Gut  health is also  important as one can affect the other

I am a product of that  oversight, that I am 100% certain and I am my only witness.

its probably too late for me to benefit from anyone changing their attitudes or opening their minds to this possibility.

For 10yrs + I  have managed my own mobility by constantly shifting my weight by tiny adjustments and movements keeping my head over my hips,  I experienced slow and small improvements esp. to my dexterity or motor skills I could pick up an olive or  a plum tomato that I  had mastered, I was learning to put my fingers in my cup handle again. Most of these benefits ceased when my chair was accidentally scrapped, and later furthermore when my bed was permanently removed and I could not follow, my unique to me regime anymore with the chair and bed that I was accustomed to.

I was gutted as I was no longer in control.

But it is imperative that attitudes change for young people to get the correct diagnosis

Through several events instigated by an OT and changes to my routine in the last No 14 Plus months I am now displaying symptoms typical to MS which I never had before and what little strength I had managed to maintain in my centre this was an area as it included my lower back, my bottom, groin area, and between hips. I now have issues that only I seem to know of,  it’s not because of MS. These include but are not limited to

My neck protruding and my head leaning forward.

A shaky hand

A shaky head

A loss of feeling in the groin area

Permanent neck pain

Sharp, shooting face pain

My hands have changed shape too

Now I experience pain in my knees and pain in my left hip my right curls in more and my hands are now non-functional but if the open

And now my Legs wont straighten And painfully spasm when I awake  and My hand flexes also.

it is not 'if I'm wrong it is 'If I'm right………………… then the consequences could

be massive.

The system that should care for me has actually made me more disabled than I need to be. And I am not the only one. A huge mistake Goodbye me I hate me Frankly you're Right. I'd like a car I'm late

MS was discovered in the 1800s by French doctor It has never ever been challenged as far as I can see.

 

                                            I challenge it, I challenge it now.

                                                                                Fiona Nottingham