They may have got the cause wrong, but the rest of it is very interesting indeed. Is Candida misdiagnosed as
New York Times - July 20th 2010. Has Candida been under their noses for years
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For a Celiac Sufferer, a New Mystery Illness
By JONATHAN PAPERNICK
Jonathan Papernick
Patient Journal
Firsthand accounts of living with illness or disability.
The problems began not long after I moved in with my future wife. I
was losing weight at an alarming rate, drifting for hours after meals in
a confused fog. My acid reflux was so bad I felt like I had a golf ball
lodged in my throat. I suffered from otherworldly constipation and had
no sex drive. My tongue swelled like a wet sponge. It seemed everything I
ate contributed to my misery.
These symptoms weren’t the ones familiar to me from my mid-20s, when
I’d learned I had celiac disease. People with celiac can’t tolerate
gluten, a protein in wheat found in many foods and everyday products.
When I ate gluten, my sides ached and my small intestines felt as if
they had been rubbed raw by sandpaper; I felt tremors throughout my body
and deep, deep exhaustion. My mother lived with celiac disease for most
of her life, and after overcoming years of willful ignorance of my
mother’s condition, my health finally improved when I began avoiding
wheat and other gluten-containing grains.
Now even gluten-free foods caused my throat to tickle and my head to
throb, and I had no idea why. I had painful canker sores all the time. I
couldn’t understand how I could have solved one mystery by removing
gluten from my diet, only to be baffled by another, more frightening,
condition.
My future wife was afraid I was dying and wondered seriously whether I
was somehow allergic to her. By the time we were married a year later,
several allergists had told me that I had no allergies at all.
Gastrointestinal doctors blamed my mysterious affliction on stress. An
acupuncturist said my
chi was out of whack. I was tested for
parasites and came up clean. More than a few friends and family members
suggested indelicately that my problems were all in my head, or worse
still, that I was simply seeking attention. I couldn’t even look at the
skeleton resembling myself in the mirror anymore.
Illness can do strange things to an ordinarily rational mind, and I
was desperate to find a solution. A friend told me about a new-age
treatment that claimed to resolve undiagnosed health problems. After
shelling out several hundred dollars for a consultation, I was informed
that my problems were caused by “energy blockages,” disruptions in the
normal flow of energy through my body’s electrical circuits. The
practitioner said she could permanently cure me simply by treating my
pressure points while I held in my hand a vial of charged water
containing the same properties as the allergen. Apparently, a minimum of
30 to 40 treatments would be necessary to help me gain back chicken,
potatoes, rice, beans and other staples that I had relied on my entire
life. For more than six months I paid good money for treatments that did
nothing to help me, the practitioner always promising that next time I
was due for a breakthrough that would allow me to once again eat my
favorite foods. I should have been more skeptical of this miracle cure.
But with more and more foods finding their way onto my blacklist, I
could not afford cynicism. I needed a miracle and nothing less.
My wife had had enough of my indulgence in expensive, unproven
“voodoo” medicine, and she put out a frantic call to her friends and
colleagues asking for help. A friend passed along the name of a doctor
known to have success with people thought of as incurable — the last
resort for many seemingly hopeless cases.
Within minutes of meeting the doctor and explaining my symptoms, he
was certain that he had pinpointed the source of all my problems. Yeast.
He took a blood test just to be sure, and as predicted, my yeast
levels were off the charts. He explained how Candida albicans, an
aggressive sugar-eating yeast that had been colonizing my intestines, is
a common concern for celiacs, whose tiny, hair-like villi in their
intestines have been flattened and damaged by gluten.
Under normal circumstances, the majority of the human population
lives with Candida albicans in their digestive systems without any
problems. But I listened with horror as he explained how the roots of
the Candida were starting to break through the walls of my intestinal
tract, causing a leaky gut through which microscopic bits of food were
entering my bloodstream.
I was ordered to cut out all sugar, alcohol, fruit, starch, peanuts
and mushrooms and told to eat protein and vegetables with low sugar
content. I was allowed kale and collard greens, but carrots and red
peppers were off the list. I was taking no less than 12 different
supplements, including probiotics and digestive enzymes, to heal my
system. My compromised digestive system couldn’t even handle ordinary
calcium supplements, and my wife and I sat at our coffee table filling
gelatin capsules with white calcium powder. (You can imagine what it
looked like to an unknowing visitor.)
The doctor prescribed an antifungal that would work slowly to kill
off the unwelcome aggressor. Every time I took the medication, even at
the lowest possible dose, I felt like I’d been struck down by the flu as
the invading yeasts died off — evidence of how serious my problem was.
It would take a long time to reverse the damage that the Candida had
done, but I was finally on the right track.
When I didn’t improve as quickly as my doctor expected, he sent a
mold remediation specialist out to our apartment to check out our living
situation. There was black mold in our closets and on our walls, and
the air shaft that was supposed to provide fresh air to three of our
rooms was full of pigeon feces and filth. I was shocked to learn that
our New York City apartment was slowly killing me.
My doctor explained that others could live perfectly normal lives
with this mold, but in my case, with a compromised immune system, the
toxic mold was simply piling on a heavily taxed system and adding fuel
to the Candida — the literal last straw. We were ordered to clean our
walls with hydrogen peroxide and to purchase an industrial-strength air
filter with an infrared beam to get rid of the mold. The hydrogen
peroxide had little effect, as the tenacious mold seemed to reappear
within days.
I slowly reintroduced foods back into my diet, starting with a simple
forkful at a time. However, with every slice of potato, mouthful of
rice, nibble of chicken, I felt my head throb, my throat tickle. My
doctor suggested that we move, and before long, a job opened up in
Boston. I packed up and left town — four months ahead of my wife, who
still needed to wrap up things with her job.
Within weeks of living in New England, I started to improve, slowly,
ever so slowly, and I found the courage to reintroduce foods back into
my diet. It took years, not months, as I followed the doctor’s strict
diet, which included egg whites and spinach and tuna for breakfast.
Eventually, gradually, thankfully I got better.
I have since gained the weight back (and then some) and have started a
family. With the increased availability of allergen-free medicines and
supplements, and my own hard-learned lessons, I am now able to enjoy
life all over again. But I can’t help but wonder how many people with
celiac disease have suffered unnecessarily because so many doctors are
not prepared to deal effectively with the condition.
liac Disease
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What came to mind immediately is: were you taking probiotics? For four years I completely avoided stomach/digestive upsets by taking them while taking three or four abxi every day. Given your diagnosis, you may by now have an inkling of what lies ahead of you. When you decide to do it, we will be here for you.
Remember that the sooner you begin, the easier it will be (I didn't say easy, but maybe not as hard as you think) and the sooner it will be done.
Rica