my mess/ms
Tuesday, 8 July 2025
Monday, 7 July 2025
My Opinion is...
Until the NHS and government understand that our everyday health should be treated holistically and NOT with medicines, our hospitals remain FULL indefinitely.
Correct alignment is crucial. If the C1 and C2 are out even
by 1mm it can have consequences anywhere in the body
The Vagus nerve is also so very, very important and is
not afforded the respect it deserves.
There are meridians, pressure points, these too are
affected.
Gut health is also important as one can affect the
other
I am a product of that oversight, that I am 100%
certain and I am my only witness.
its probably too late for me to benefit from anyone changing
their attitudes or opening their minds to this possibility.
For 10yrs + I have managed my own mobility by
constantly shifting my weight by tiny adjustments and movements keeping my head
over my hips, I experienced slow and small improvements esp. to my
dexterity or motor skills I could pick up an olive or a plum tomato
that I had mastered, I was learning to put my fingers in my cup
handle again. Most of these benefits ceased when my chair was accidentally
scrapped, and took best part of the year to get a suitable replacement and by
that time I was unable to get into it and later furthermore when my bed was
permanently removed and I could not follow, my unique to me regime anymore with
chair and bed that I was accustomed
I was gutted, as I was no longer in control. Others had
intervened and taken decisions that have been to my detriment without my
approval. It was a case of telling me what I needed instead of asking me what I
wanted.
It is imperative that attitudes change for young people to
get the correct diagnosis they deserve. For too long they have been barking up
the wrong tree for those like me.
Through several well intentioned events and changes to my
routine in the last 14 Plus months I am now displaying symptoms typical to MS
which I never had before because of the pressure in my lower back and being in
this chair for 14 hours day.
These symptoms include;
·
My neck protruding and my head leaning forward.
·
A shaky hand
·
A shaky head
·
A loss of feeling in the groin area
·
Permanent neck pain
·
Sharp, shooting face pain
·
My hands have changed shape too
·
Now I experience pain in my knees and pain in my
left hip my right curls in more and my hand is non-functional
·
And now my Legs wont straighten
Also I believe that I have functional scoliosis
because my upper torso twists to the right. And it is no wonder that we
cannot stay on our feet.
it is not 'if I'm wrong it is 'If I'm right………………… then the
consequences will be massive
Sunday, 6 July 2025
Friday, 4 July 2025
The Correct Balance We need to have our heads on straight.
Until the NHS and government understand that our everyday
health should be treated holistically and NOT with medicines, our
hospitals will remain FULL indefinitely.
Correct alignment is crucial. If the C1 and C2 are out even
1mm it can have consequences anywhere in the body
The Vagus nerve is also so very, very important.
And is not afforded the respect it deserves.
There are meridians, pressure points, these too are
affected.
Gut health is also important as one
can affect the other
I am a product of that oversight, that I am 100%
certain and I am my only witness.
its probably too late for me to benefit from anyone changing
their attitudes or opening their minds to this possibility.
For 10yrs + I have managed my own mobility by
constantly shifting my weight by tiny adjustments and movements keeping my head
over my hips, I experienced slow and small improvements esp. to my
dexterity or motor skills I could pick up an olive or a plum tomato
that I had mastered, I was learning to put my fingers in my cup
handle again. Most of these benefits ceased when my chair was accidentally
scrapped, and later furthermore when my bed was permanently removed and I could
not follow, my unique to me regime anymore with the chair and bed that I was
accustomed to.
I was gutted as I was no longer in control.
But it is imperative that attitudes change for young people
to get the correct diagnosis
Through several events instigated by an OT and changes to my
routine in the last No 14 Plus months I am now displaying symptoms typical to
MS which I never had before and what little strength I had managed to maintain
in my centre this was an area as it included my lower back, my bottom, groin
area, and btwn hips. I now have issues that only I seem to know of, it’s not because of MS. These include but are
not limited to
My neck protruding and my head leaning forward.
A shaky hand
A shaky head
A loss of feeling in the groin area
Permanent neck pain
Sharp, shooting face pain
My hands have changed shape too
Now I experience pain in my knees and pain in my left hip my
right curls in more and my hands are now non-functional but if the open
And now my Legs wont straighten And painfully spasm when I
awake and My hand flexes also.
it is not 'if I'm wrong it is 'If I'm right………………… then the
consequences could
be massive.
Spoken me The system that should care for me has actually made me more disabled than I need to be. And I am not t Oh God
MS was discovered in the 1800s by French doctor It has
never, Until the NHS and government understand that our everyday health should
be treated holistically and NOT with medicines, our hospitals remain
FULL indefinitely.
Correct alignment is crucial. If the C1 and C2 are out even
1mm it can have consequences anywhere in the body
The Vagus nerve is also so very, very important.
And is not afforded the respect it deserves.
There are meridians, pressure points, these too are
affected.
Gut health is also important as one
can affect the other
I am a product of that oversight, that I am 100%
certain and I am my only witness.
its probably too late for me to benefit from anyone changing
their attitudes or opening their minds to this possibility.
For 10yrs + I have managed my own mobility by
constantly shifting my weight by tiny adjustments and movements keeping my head
over my hips, I experienced slow and small improvements esp. to my
dexterity or motor skills I could pick up an olive or a plum tomato
that I had mastered, I was learning to put my fingers in my cup
handle again. Most of these benefits ceased when my chair was accidentally
scrapped, and later furthermore when my bed was permanently removed and I could
not follow, my unique to me regime anymore with the chair and bed that I was
accustomed to.
I was gutted as I was no longer in control.
But it is imperative that attitudes change for young people
to get the correct diagnosis
Through several events instigated by an OT and changes to my
routine in the last No 14 Plus months I am now displaying symptoms typical to
MS which I never had before and what little strength I had managed to maintain
in my centre this was an area as it included my lower back, my bottom, groin
area, and between hips. I now have issues that only I seem to know of, it’s not because of MS. These include but are
not limited to
My neck protruding and my head leaning forward.
A shaky hand
A shaky head
A loss of feeling in the groin area
Permanent neck pain
Sharp, shooting face pain
My hands have changed shape too
Now I experience pain in my knees and pain in my left hip my
right curls in more and my hands are now non-functional but if the open
And now my Legs wont straighten And painfully spasm when I
awake and My hand flexes also.
it is not 'if I'm wrong it is 'If I'm right………………… then the consequences
could
be massive.
The system that should care for me has actually made me more
disabled than I need to be. And I am not the only one. A huge mistake Goodbye me I hate me Frankly you're Right. I'd like a car I'm late
MS was discovered in the 1800s by French doctor It has never
ever been challenged as far as I can see.
I
challenge it, I challenge it now.
Fiona Nottingham
Tuesday, 28 May 2019
Don't waste people's time.
SO DON'T BOTHER
Still here - solutions, solutions, solutions.
I am still here.
Sunday, 5 May 2019
The brain-gut axis
Focus on the gut-brain axis: Multiple sclerosis, the intestinal barrier and the microbiome
Carlos R Camara-Lemarroy
Department of Clinical Neurosciences, Cumming School of Medicine, University of Calgary, Calgary T2N 2T9, CanadaHotchkiss Brain Institute, Cumming School of Medicine, University of Calgary, Calgary T2N 2T9, Canada. ac.secivreshtlaehatrebla@yorramel-aramac.solrac
Luanne M Metz
Department of Clinical Neurosciences, Cumming School of Medicine, University of Calgary, Calgary T2N 2T9, CanadaHotchkiss Brain Institute, Cumming School of Medicine, University of Calgary, Calgary T2N 2T9, Canada
V Wee Yong
Department of Clinical Neurosciences, Cumming School of Medicine, University of Calgary, Calgary T2N 2T9, CanadaHotchkiss Brain Institute, Cumming School of Medicine, University of Calgary, Calgary T2N 2T9, Canada
Abstract
INTRODUCTION
THE GUT MICROBIOME
THE INTESTINAL BARRIER
BILE ACIDS
CONCLUSION
